Email: fmmwaddell@gmail.com
Fiona Waddell was eighteen months old when the doctors discovered that she had liver fibrosis, but she always had problems which didn't fit the diagnosis. It was only when she was fifteen years old that she was diagnosed with MPI-CDG. She was the second patient in the world who was diagnosed with this illness. She was the first CDG patient who has had a liver transplant and due to the liver transplant she can now lead a healthy life.
Fiona received her bachelor of journalism in 2010. She now works as a journalist for different media and represents CDG within VKS, the Dutch umbrella organisation for patients with metabolic disorders. She wants to use her journalistic skills to create greater worldwide awareness around CDG in order to help other CDG patients and families. |
Vanessa’s personal journey with her sister, combined with the community needs, have been the impetus to focus the APCDG activities.
Vanessa received a bachelor’s degree in Biological Sciences from Badajoz University (Spain). She holds a PhD (Sc.D.) in Cell and Developmental Biology from the Center for Genomic Regulation, University of Pompeu Fabra, Biomedical Research Park in Barcelona (PRBB). In 2014, she completed her background with an International MBA from IAE de Paris, Sorbonne Graduate Business School |
Our work is publicly available to help the CDG community and related rare disease communities. Importantly, we do not receive government funding. We rely solely on donations in order to continue our projects. Consider to make a donation using Paypal, debit or credit card or bank transfer. |