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Work Package 8 – CDG Lobby and Representation
CDG & Allies - Professionals and Patient Associations
International Network (CDG & Allies-PPAIN)
This Work Package (WP) is formed by several Working Groups (WGs):
Working group (WG) Medical Sociology
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Working group (WG) CDG patient Representative
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Future opportunities and collaborations:
Support our research, advocacy, awareness and education efforts now!
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Our work is publicly available to help the CDG community and related rare disease communities. Importantly, we do not receive government funding. We rely solely on donations in order to continue our projects. Consider to make a donation using Paypal, debit or credit card or bank transfer. |
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