CDG Research funding remains a major challenge and a pressing unmet need. Government institutions and pharma/biotech companies dedicate very limited funding for research on CDG.
With the goal of overcoming this great barrier, the Portuguese Association for CDG (APCDG) announces a partnership with NABIA Olive Oil Cosmetics (more information visit HERE), being the fundraising campaign "A Biocosmetic for CDG Biomedical Research" the first co-joint initiative. NABIA is a Portuguese start-up that R&D natural, hand-made biocosmetics and will devote 10% of their sales to fund the research done under the scope of our CDG & Allies – Professionals and Patient Associations International Network (CDG & Allies-PPAIN, for more information visit HERE). To know more about NABIA's concept, products, mission, values and the reason for their commitment to CDG Research, read the interview with Margarida Lopes, NABIA's CEO. Meet the person behind the project! Available in english and portuguese: |
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Vanessa’s personal journey with her sister, combined with the community needs, have been the impetus to focus the APCDG activities.
Vanessa received a bachelor’s degree in Biological Sciences from Badajoz University (Spain). She holds a PhD (Sc.D.) in Cell and Developmental Biology from the Center for Genomic Regulation, University of Pompeu Fabra, Biomedical Research Park in Barcelona (PRBB). In 2014, she completed her background with an International MBA from IAE de Paris, Sorbonne Graduate Business School. |
Rita Francisco has a Masters’ degree in Molecular Genetics by the University of Minho and among her main scientific interests are genetic disorders. In 2016, she was awarded the 3rd Liliana Scientific Scholarship. Rita is highly driven and motivated to make a difference in the lives of adults and children living with Congenital Disorders of Glycosylation (CDG). Her work is developed under the scope of the CDG & Allies - PPAIN. She is mapping funding options for research on CDG and related diseases, as well as deciphering the heart aspects of CDG. In addition, she is our CDG community social manager.
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Please, consider to make a donation to this unique patient-led international multidisciplinary network, using Paypal, debit or credit card or bank transfer.
For further questions or suggestions please contact: sindromecdg@gmail.com |