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Work Package 7– CDG psychology and educational research
CDG & Allies - Professionals and Patient Associations
International Network (CDG & Allies-PPAIN)
Working Group (WG) Health psychology
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Working Group (WG) Educational Special Needs and Inclusion
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Working Group (WG) Language development and reading and writing acquisition
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Working Group (WG) Educational Special Needs and inclusion
Working Group Leader (WGL): Nora Cavaco (Director of the Degree in Psychology and Director of two Master’s degrees: one of them in Special Education: cognitive and motor domains; and of another MSc’s in Educational Psychology at escola superior de educação Almeida Garret, Portugal).
This current project led by Pf Cavaco, aims to identify teachers' conceptions, difficulties and proposed solutions when working with children with CDG patients.
This current project led by Pf Cavaco, aims to identify teachers' conceptions, difficulties and proposed solutions when working with children with CDG patients.
Results obtained so far from this research project:
- Currently, we delineated the pilot study aimed at staring on September 2016.
Any student, research groups, researchers, clinicians, patient organisations or other stakeholders who would like to become more involved within this project, are most welcome to get in touch to discuss possible future opportunities and collaborations. Fulfill the contact form available below:
Biography:
Professor Nora Cavaco has two BSc’s degrees, one in Childhood Education and a second one in Educational Psychology and Rehabilitation. Professor Cavaco has also a Master in Educational Practices and in Educational Psychology in the Specialty of Special Educational Needs. All of these four degrees were awarded by the University of Algarve. Moreover, Prof. Nora Cavaco holds a post-graduation degree in Neuropsychology and Dementias by the University of Barcelona and a second post-graduation degree in Neuroscience Applied to Education by FASP University, Faculty of Social Services in Sao Paulo, Brazil. Also, Professor Nora Cavaco received her PhD degree in Childhood and Family Education, Psychopedagogical Intervention and Development attributed by the University of Málaga.
Currently, she is a member of SICA International Research Group at University of Huelva. Additionally, Prof Cavaco is also a post-doc student at the Faculty of Psychiatry in USP University, in Sao Paulo, Brazil. Furthermore, since 2006 Prof Nora has been University Professor in the field of Special Education. Her research focus is autism, health and psychology. In addition to these, she has also been Director of the Degree in Psychology and Director of two Master’s degrees: one of them in Special Education: cognitive and motor domains; and of another MSc’s in Educational Psychology.
Prof Cavaco has several publications with great scientific relevance in her areas of study. She has also travelled throughout the country teaching Special Education. Also, she is a member of the scientific committees of the international magazine Cesuca in Rio Grande do Sul and of GREI Interdisciplinary Studies Group, where she also writes about numerous subjects related to psychological health, special and regular education. All in all, she is a national and international congresswoman and researcher.
About Vanessa Ferreira
From her unique perspective of being a sister of a patient with a rare disease named Congenital Disorders of Glycosylation (CDG) and Cell Biologist, Vanessa founded the Portuguese CDG Association and other Rare Metabolic Disorders (APCDG-DMR).
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Vanessa’s personal journey with her sister, combined with the community needs, have been the impetus to focus the APCDG activities.
Vanessa received a bachelor’s degree in Biological Sciences from Badajoz University (Spain). She holds a PhD (Sc.D.) in Cell and Developmental Biology from the Center for Genomic Regulation, University of Pompeu Fabra, Biomedical Research Park in Barcelona (PRBB). In 2014, she completed her background with an International MBA from IAE de Paris, Sorbonne Graduate Business School. |
Future opportunities and collaborations:
Support our research, advocacy, awareness and education efforts now!
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Our work is publicly available to help the CDG community and related rare disease communities. Importantly, we do not receive government funding. We rely solely on donations in order to continue our projects. Consider to make a donation using Paypal, debit or credit card or bank transfer. |
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