APCDG - Congenital Disorders of Glycosylation
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WP4 - Biology to guide CDG therapies

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CDG & Allies - Professionals and Patient Associations International Network (CDG & Allies-PPAIN)

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WG CDG & GlycoImmunology
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WG CDG & Cardioendocrine Health
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WG CDG &
Liver
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WG CDG & Neurology
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WG CDG & Hematology
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WG CDG & Ophtalmology

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Working Group (WG) CDG & Hematology

About Vanessa Ferreira
From her unique perspective of being a sister of a patient with a rare disease named Congenital Disorders of Glycosylation (CDG) and Cell Biologist, Vanessa founded the Portuguese CDG Association and other Rare Metabolic Disorders (APCDG-DMR).
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Vanessa’s personal journey with her sister, combined with the community needs, have been the impetus to focus the APCDG activities.
​Vanessa received a bachelor’s degree in Biological Sciences from Badajoz University (Spain). She holds a PhD (Sc.D.) in Cell and Developmental Biology from the Center for Genomic Regulation, University of Pompeu Fabra, Biomedical Research Park in Barcelona (PRBB). In 2014, she completed her background with an International MBA from IAE de Paris, Sorbonne Graduate Business School.

Open position(s)

Working Group Leader (WGL) recruitment:
CDG & Allies- PPAIN offers a very collaborative and inspiring working environment. Our network involves scientists from many different fields, enabling to take the interdisciplinary approach needed to increase knowledge on CDG. To apply more information is available HERE.
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Inés Summer Internship for Undergraduate Students:
Currently the Working group CDG & Hematology expressed interest in hosting a student to conduct summer research focused on genetics for CDG. This position is available under the scope of the “1st Inés Summer Internship Program for Undergraduate Students 2016”. More information is available HERE. The research project will be coordinated by Pr Paula Videira and Dr Vanessa Ferreira (APCDG).

Future opportunities and collaborations:

Submit

Support our research, advocacy, awareness and education efforts now!


Our work is publicly available to help the CDG community and related rare disease communities. Importantly, we do not receive government funding. We rely solely on donations in order to continue our projects.

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Consider to make a donation using Paypal, debit or credit card or bank transfer. 
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  • About US
    • What we do
    • Who we help >
      • Research
  • Resources
    • Rare CDG
    • Publications
    • Guia Metabolica
    • CDG Facts
    • Task Force CDG Communication >
      • PMM2-CDG (CDG Ia)
      • PGM1-CDG (CDG It)
      • ALG6-CDG (CDG Ic)
  • EDUCATION
  • Awareness
    • Get involved World CDG Awareness Day 2019 >
      • Go Social World CDG Awareness Day 19
      • Spread World CDG Awareness Day 19
      • Plan An Event World CDG Awareness Day 19
      • Frame your CDG Awareness Campaign 19
      • Go green! Think CDG! ©Campaign 19
      • Volunteer World CDG Awareness Day 19
      • Press kit World CDG Awareness Day 19
    • Map of events for World CDG Awareness Day 2019
    • CrowdCDG
    • Awareness Day 2018
    • Awareness Day 2017
    • Awareness Day 2016
    • Rare Diseases
  • Community
    • Join Us - Membership
    • CDG Patient Groups
    • Empowerment
  • Events
    • 1st CDG Satellite Meeting
    • Speakers - World Conference on CDG 2019
    • Registrations - World Conference on CDG 2019
    • Poster submission - World Conference on CDG 2019
    • Follow up - World Conference on CDG 19
    • Volunteer Registration - World Conference on CDG 2019
    • Previous Edition World Conference on CDG 2017 >
      • Follow up - World Conference on CDG 17
      • Speakers - World Conference on CDG 17
  • DONATE
  • BLOG