Work Package 7– CDG psychology and educational research
Working Group (WG) Health psychology
Working Group Leader (WGL): Pf Luísa Barros (Professor at Faculdade de Psicologia e de Ciências da Educação. Universidade de Lisboa, Portugal). The WG led by Pf Barros aims at studying the impact of parental subjective meanings, concerns, coping strategies and health behaviours on CDG children and adults.
Results obtained so far from this research project:
Under the scope of a master degree program in health psychology, a student will start a master's thesis on September 2016. This involves conducting research for the pilot study conducted by Pr Barros.
Any student, research groups, researchers, clinicians, patient organisations or other stakeholders who would like to become more involved within this project, are most welcome to get in touch to discuss possible future opportunities and collaborations. Fulfill the contact form available below:
Biography: Prof. Luísa Barros received her/his Ph.D. in Clinical Psychology from the University of Lisbon, Portugal (1992). After completion of hers degree she was appointed as a Faculty Fellow in the Department of Psychology at the University of Lisbon. She is currently a Full Professor of Clinical and Health Psychology at the University of Lisbon and coordinates the Research Group on Health and Clinical Psychology – Familial and Individual Adaptation Processes. Her interests are focused on clinical and pediatric psychology. In particular her laboratory is currently working on understanding how parental processes are related to and affect children’s health and adaptation, both in healthy and chronically ill populations and developing measures of parenting processes and family adaptation. List of 6 publications in the field of CDG:
Pedro,H.; Barros,L. & Pereira,A.I.(2015).Pediatric Immunization Distress: A Cluster Analyses of Children's, Parents' and Nurses' Behaviors During the Anticipatory Phase. The Clinical Journal of Pain. DOI: 10.1097/AJP.0000000000000287.
Pereira, A. I., Muris, P., Barros, L., Goes, R., Marques, T., & Russo, V. (2015). Agreement and discrepancy between mother and child in the evaluation of children’s anxiety symptoms and anxiety life interference. European Child & Adolescent Psychiatry, 24(3), 327-337. DOI: 10.1007/s00787-014-0583-2.
Silva,C. & Barros,L. (2014). Pediatric Asthma Management: Study of the Family Asthma Management System Scale with a Portuguese Sample. Children's Health Care, 43: 203-220. Doi: 10.1080/02739615.2013.837822.
Silva, C.; Barros, L. & Simões,F (2014). Health-related quality of life in pediatric asthma: children’s and parents’ perspectives. Psychology, Health & Medicine,14, 1-15. Doi: 10.1080/13548506.2014.969745
Pereira, A. I., Barros, L., Muris, P. Mendonça, D. (2013). The Relationships Among Parental Anxiety, Parenting, and Children’s Anxiety: The Mediating Effects of Children’s Cognitive Vulnerabilities. Journal of Child and Family Studies. Doi 10.1007/s10826-013-9767-5.
Silva,C. & Barros,L. (2013). Asthma knowledge, subjective assessment of severity and symptom perception in parents of children with asthma. Journal of Asthma. Doi:10.3109/02770903.2013.822082
List of current grants focused on CDG:
Currently coordinating the Project: PainLess: OI youngsters take control, funded by the U.K.Brittle Bones Society, UL. (2015-2016).
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Our work is publicly available to help the CDG community and related rare disease communities. Importantly, we do not receive government funding. We rely solely on donations in order to continue our projects.