APCDG - Congenital Disorders of Glycosylation
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    • Previous Edition World Conference on CDG 2017 >
      • Follow up - World Conference on CDG 17
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Volunteer World CDG Awareness Day 2019

VERY IMPORTANT, PLEASE READ IF YOU USE OUR
World Congenital Disorders of Glycosylation (CDG) Awareness Day Toolkit:



Our work is publicly available to help the CDG community and related rare disease communities. Importantly, we do not receive government funding. We rely solely on donations in order to continue our projects.

​
Consider to make a donation using Paypal, debit or credit card or bank transfer. 
DONATE
Picture

Your donation will help fund advocacy efforts, awareness, education and research. All details are found at www.apcdg.com/donate.html THANKS!
The resources cannot be used for commercial purposes.
​For further questions or suggestions please contact: sindromecdg@gmail.com​


Volunteer World CDG Awareness Day 2019


Volunteer

Get the satisfaction of making a real difference in CDG children and adults lives while helping us volunteering for the World CDG Awareness Day 2019. 
There's plenty you can do, so contact us at worldcdgawareness@gmail.com to get started. Be a proud volunteer and share it on Social Media! 

1-
​

Change your Facebook cover to the one dedicated to our volunteers during the celebrations of the World Congenital Disorders of Glycosylation (CDG) Awareness Day Facebook.
For USA:
  • Download: HERE
For around the World:
  • Download: HERE

2-
​

Use the Email signature that shows that you are a volunteer during the World Congenital Disorders of Glycosylation (CDG) Awareness Day.
For USA:
  • Download: HERE
For around the World:
  • Download: HERE

3-

Change your Facebook and Twitter profile picture  to the World Congenital Disorders of Glycosylation (CDG) Awareness Day Facebook and Twitter profile picture.
For USA:
  • Download: HERE
For around the World:
  • Download: HERE

4-

Suggested Social Media Posts for # WorldCDGDay
All volunteers are encouraged to share the following tweets or Facebook posts on their personal accounts. By sharing messages like these on social media, you will help in bringing more awareness for World Congenital Disorders of Glycosylation (CDG) Awareness Day. Please accompany your posts with the CDG International Awareness Symbol.
For USA:
  • #WorldCDGDay: I proudly volunteer to support May 16, the World CDG Awareness Day.
  • #WorldCDGDay: We are part of the fight! May 16 is the World Congenital Disorders of Glycosylation (CDG) Awareness Day.
For around the World:
  • #WorldCDGDay: I proudly volunteer to support 16th May, the World Congenital Disorders of Glycosylation (CDG) Awareness Day.
  • #WorldCDGDay: We are part of the fight! 16th May, World Congenital Disorders of Glycosylation (CDG) Awareness Day.

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  • About US
    • What we do
    • Who we help >
      • Research
  • Resources
    • Rare CDG
    • Publications
    • Guia Metabolica
    • CDG Facts
    • Task Force CDG Communication >
      • PMM2-CDG (CDG Ia)
      • PGM1-CDG (CDG It)
      • ALG6-CDG (CDG Ic)
  • EDUCATION
  • Awareness
    • Get involved World CDG Awareness Day 2019 >
      • Go Social World CDG Awareness Day 19
      • Spread World CDG Awareness Day 19
      • Plan An Event World CDG Awareness Day 19
      • Frame your CDG Awareness Campaign 19
      • Go green! Think CDG! ©Campaign 19
      • Volunteer World CDG Awareness Day 19
      • Press kit World CDG Awareness Day 19
    • Map of events for World CDG Awareness Day 2019
    • CrowdCDG
    • Awareness Day 2018
    • Awareness Day 2017
    • Awareness Day 2016
    • Rare Diseases
  • Community
    • Join Us - Membership
    • CDG Patient Groups
    • Empowerment
  • Events
    • 1st CDG Satellite Meeting
    • Speakers - World Conference on CDG 2019
    • Registrations - World Conference on CDG 2019
    • Poster submission - World Conference on CDG 2019
    • Follow up - World Conference on CDG 19
    • Volunteer Registration - World Conference on CDG 2019
    • Previous Edition World Conference on CDG 2017 >
      • Follow up - World Conference on CDG 17
      • Speakers - World Conference on CDG 17
  • DONATE
  • BLOG