APCDG - Congenital Disorders of Glycosylation
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4th WORLD 
​CONFERENCE on CDG

Lisbon, Portugal - 26 and 27 July 2019

SAVE THE DATE!

Volunteer Registration

"No act of kindness, no matter how small, is ever wasted" 
AESOP

You can now register as a Volunteer for the 4th World Conference on CDG!

This conference is taking place in Lisbon on 26th and 27th July 2019. 
​It will count with both professionals and families.

Can we count with YOU too?
Volunteer Registration Form: HERE
Register NOW!
How can you contribute?
  1. ACTIVITY ROOM (By entertaining, playing and developing some activities, including painting and drawing; face-painting and playing games);
  2. ADMINISTRATIVE & ORGANIZING TASK (e.g. registration desk; technical assistance; material preparation and distribution)
  3. SESSION MODERATION & ANNOTATION*** ( Keep the speakers time, write down discussion and conclusions of the sessions; promote discussion among participants)
*** The conference will be held in a Think Tank format and it will be organised in several different thematic workshops. We will create discussion group to identify challenges, needs, priorities and possible solutions with all the the CDG Community stakeholders
How do you  benefit?
  1. You are welcome to join some of the conference sessions;
  2. Expand your network and knowledge;
  3. For those who assist with session moderation and annotation, you can co-author the expected publications related to the event (2-3 publications expected)
  4. You will get a certificate of participation;
  5. Meals and social events attendance are included.
Most important:


Your help will allow CDG parents and family members to make the most of their participation in the conference!
You get to know the SWEET, SMILEFUL and BRAVE CDG Kids and Adults, as well as our amazing Professionals!


* Deadline for registration * 
10th June 2019

Registrations are now CLOSED
Volunteer Registration Form: HERE
Register NOW!
For any further information, please contact the organizing committee at s.arduim@gmail.com 

Did you know...
This conference is being organized in collaboration with the European Reference Network for Rare Metabolic Diseases - MetabERN (know more HERE)?
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AND
in collaboration with the Applied Molecular Biosciences Unit (UCIBIO) and the Faculty of Sciences and Technology of the Nova University of Lisbon (FCT-UNL) - know more HERE.
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World Conference on CDG for families and professionals is an initiative of the Portuguese Association for CDG (APCDG)

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  • About US
    • What we do
    • Who we help >
      • Research
  • Resources
    • Rare CDG
    • Publications
    • Guia Metabolica
    • CDG Facts
    • Task Force CDG Communication >
      • PMM2-CDG (CDG Ia)
      • PGM1-CDG (CDG It)
      • ALG6-CDG (CDG Ic)
  • EDUCATION
  • Awareness
    • Get involved World CDG Awareness Day 2019 >
      • Go Social World CDG Awareness Day 19
      • Spread World CDG Awareness Day 19
      • Plan An Event World CDG Awareness Day 19
      • Frame your CDG Awareness Campaign 19
      • Go green! Think CDG! ©Campaign 19
      • Volunteer World CDG Awareness Day 19
      • Press kit World CDG Awareness Day 19
    • Map of events for World CDG Awareness Day 2019
    • CrowdCDG
    • Awareness Day 2018
    • Awareness Day 2017
    • Awareness Day 2016
    • Rare Diseases
  • Community
    • Join Us - Membership
    • CDG Patient Groups
    • Empowerment
  • Events
    • 1st CDG Satellite Meeting
    • Speakers - World Conference on CDG 2019
    • Registrations - World Conference on CDG 2019
    • Poster submission - World Conference on CDG 2019
    • Follow up - World Conference on CDG 19
    • Volunteer Registration - World Conference on CDG 2019
    • Previous Edition World Conference on CDG 2017 >
      • Follow up - World Conference on CDG 17
      • Speakers - World Conference on CDG 17
  • DONATE
  • BLOG