Dear families, professionals, colleagues and friends:
It is with great pleasure that we invite you to the "3rd World Conference on CDG: United shaping the future for CDG" planned to be held in Leuven, Belgium - 15 and 16 July 2017. Here you will find all the information you need about the experts who will be sharing their knowledge and expertise with ALL at the 3rd World Conference on CDG. Taking into account the genesis of this Conference, among speakers there will be: Clinicians, Health Professionals, Researchers and Families so that every VOICE is heard and every CDG Community stakeholder is effectively represented. In this section you will have access to the speakers biographies, in case you would like to learn more about their professional and personal paths. We would like to express our appreciation to the speakers, as well as to the invited chairs for their careful preparation of the invited sessions. CDG families together with professionals can make the difference! We are looking forward to seeing you in Leuven! With our warmest regards, On behalf of the organizing committee. |
WCCDG Leuven 2017 SPEAKERS |
Prof JAAK JAEKEN.
Talk: CDG history and clinical presentation on 15th July ![]()
Dr MERCEDES SERRANO
Talk: CDG Neurology:What you need to know on 15th July ![]()
Prof EVA MORAVA
Talk:Treatment on 15th July ![]()
Dr MERELL LIDDLE
Talk: Overall strategies to improve communication in CDG on 16th July ![]()
Dr Raquel Castro
Talk: Advocacy tool kit to integrate rare diseases into social services and policies on 16th July ![]()
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Dr DIRK LEFEBER
Talk:Biochemical aspects on 15th July ![]()
Dr MARC PATTERSON
Talk: The role of the cerebellum in cognition and behavior:beyond coordination in the Central Nervous System on 15th July ![]()
Dr CHANTAL VERHILLE
Talk: Physical Therapy on 16th July ![]()
Dr CLÁUDIA de FREITAS
Talk: The needs of people affected by CDG and community-framed strategies to address them on 16th July ![]()
Dr LYNNE WOLFE
Talk: Natural History of CDG, and envisioning the future on 16th July ![]()
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Dr CHRISTIAN THIEL
Talk: Diagnostics Tools on 15th July ![]()
Prof DAVID CASSIMAN
Talk: CDG Adults: main symptoms and management on 15th July ![]()
Dr DOLORES GAMITO
Talk: Psychomotor Therapy and Body Experience on 16th July ![]()
Prof LUÍSA BARROS
Talk: Emotional Impact & Coping Strategies in CDG Families on 16th July ![]()
Prof HUDSON H. FREEZE
Talk: Natural History of CDG, and envisioning the future on 16th July ![]()
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Dr STEPHANIE GRünewald
Talk: Gastrointestinal Problems on 15th July ![]()
Prof GERT MATTHIJS
Talk: Genetic aspects of CDG on 15th July ![]()
Dr JOANA PEIXINHO
Talk: Educational digital resources for CDG on 16th July ![]()
Prof LIZ FORBAT
Talk:Patient Reported Outcomes for CDG on 16th July ![]()
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instructions_for_formal_oral_presentations_at_the_world_conference_on_cdg.pdf | |
File Size: | 283 kb |
File Type: |
The "World Conference on Congenital Disorders of Glycosylation for Families and Professionals" Symbol was selected by our World CDG community through a votation process in 2015.
It recognizes the continuous efforts that families and professionals, are doing united to boost research. The urgent goal: to achieve a better quality of life for our CDG children and adults in our lifetime. It is our hope that the logo will make the conference easily recognizable and memorable at the international level. Importantly, it will boost visibility for CDG and its community needs. |
This event was created and initiated by the Portuguese Association for CDG and related Rare Metabolic Diseases (APCDG-DMR) with four main objectives:
To learn more about the First and Second World Conference on Congenital Disorders of Glycosylation for Families and Professionals please visit http://www.apcdg.com/education.html |
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