3rd WORLD
CONFERENCE CDG 2017
United Shaping The Future!
"3rd World Conference on Congenital Disorders of Glycosylation (CDG)
for families and professionals: United shaping the future for CDG"
Leuven, Belgium - 15 and 16 July 2017.
“Nothing about us, without us”- James Charlton
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Dear families, professionals, colleagues and friends:
It is with great pleasure that we invite you to the "3rd World Conference on CDG: United shaping the future for CDG" planned to be held in Leuven, Belgium - 15 and 16 July 2017. Here you will find all the information you need about the experts who will be sharing their knowledge and expertise with ALL at the 3rd World Conference on CDG. Taking into account the genesis of this Conference, among speakers there will be: Clinicians, Health Professionals, Researchers and Families so that every VOICE is heard and every CDG Community stakeholder is effectively represented. In this section you will have access to the speakers biographies, in case you would like to learn more about their professional and personal paths. We would like to express our appreciation to the speakers, as well as to the invited chairs for their careful preparation of the invited sessions. CDG families together with professionals can make the difference! We are looking forward to seeing you in Leuven! With our warmest regards, On behalf of the organizing committee. |
WCCDG Leuven 2017 SPEAKERS |
Read the Speakers biographies of the World Conference on CDG for families and professionals 15 and 16 July 2017 in Leuven, Belgium
The full agenda is available HERE.
Prof JAAK JAEKEN.
Talk: CDG history and clinical presentation on 15th July 
Dr MERCEDES SERRANO
Talk: CDG Neurology:What you need to know on 15th July
Prof EVA MORAVA
Talk:Treatment on 15th July
Dr MERELL LIDDLE
Talk: Overall strategies to improve communication in CDG on 16th July
Dr Raquel Castro
Talk: Advocacy tool kit to integrate rare diseases into social services and policies on 16th July
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Dr DIRK LEFEBER
Talk:Biochemical aspects on 15th July
Dr MARC PATTERSON
Talk: The role of the cerebellum in cognition and behavior:beyond coordination in the Central Nervous System on 15th July
Dr CHANTAL VERHILLE
Talk: Physical Therapy on 16th July
Dr CLÁUDIA de FREITAS
Talk: The needs of people affected by CDG and community-framed strategies to address them on 16th July
Dr LYNNE WOLFE
Talk: Natural History of CDG, and envisioning the future on 16th July
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Dr CHRISTIAN THIEL
Talk: Diagnostics Tools on 15th July
Prof DAVID CASSIMAN
Talk: CDG Adults: main symptoms and management on 15th July
Dr DOLORES GAMITO
Talk: Psychomotor Therapy and Body Experience on 16th July
Prof LUÍSA BARROS
Talk: Emotional Impact & Coping Strategies in CDG Families on 16th July
Prof HUDSON H. FREEZE
Talk: Natural History of CDG, and envisioning the future on 16th July
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Dr STEPHANIE GRünewald
Talk: Gastrointestinal Problems on 15th July
Prof GERT MATTHIJS
Talk: Genetic aspects of CDG on 15th July
Dr JOANA PEIXINHO
Talk: Educational digital resources for CDG on 16th July
Prof LIZ FORBAT
Talk:Patient Reported Outcomes for CDG on 16th July
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This page is dedicated to the various experts: Physicians, therapists, nurses, researchers,parents and all other Professional who will be the 3rd World Conference on CDG Speakers.
It is our pleasure to introduce them to YOU - Meet them!
Conference Booklet available HERE
It is our pleasure to introduce them to YOU - Meet them!
Conference Booklet available HERE
If you have any doubts or questions, please contact the organizing committee at .rita.francisco.28@gmail.com
Did you know that...
This Conference is organized in collaboration with the European Reference Network for Rare Metabolic diseases - MetabERN (know more HERE)?
Instructions for Formal Oral Presentations at the World Conference on CDG
If you are a Speaker or a moderator, please download the document below, which will give you important guidance:
| instructions_for_formal_oral_presentations_at_the_world_conference_on_cdg.pdf |
Online Registrations will be open from February to June 2017
REGISTERATIONS ARE NOW CLOSED
The "World Conference on Congenital Disorders of Glycosylation for Families and Professionals" toolkit to boost awareness
How you can get involved in the "World Conference on Congenital Disorders of Glycosylation for Families and Professionals" activities?
STEPS:
Follow the updated information on http://www.apcdg.com/events.html
- Join us on Facebook and be updated on the "3rd World Conference on CDG: United shaping the future for CDG" will be held in Leuven, Belgium - 15 and 16 July 2017.
- When the event is close, use the World Conference Symbol on your Facebook profile picture & Twitter page !
- Change your Facebook cover to the World Conference on CDG Facebook cover (see toolkit below)
- Disseminate the infographic dedicated to explain the important benefits of this gathering event (see toolkit below).
- Be a volunteer! We need volunteers to assist in several activities. For detailed information please visit http://www.apcdg.com/get-involved1.html
Follow the updated information on http://www.apcdg.com/events.html
Symbol "World Conference on Congenital Disorders of Glycosylation for Families and Professionals"
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The "World Conference on Congenital Disorders of Glycosylation for Families and Professionals" Symbol was selected by our World CDG community through a votation process in 2015.
It recognizes the continuous efforts that families and professionals, are doing united to boost research. The urgent goal: to achieve a better quality of life for our CDG children and adults in our lifetime. It is our hope that the logo will make the conference easily recognizable and memorable at the international level. Importantly, it will boost visibility for CDG and its community needs. |
Infographic "World Conference on Congenital Disorders of Glycosylation for Families and Professionals"
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This event was created and initiated by the Portuguese Association for CDG and related Rare Metabolic Diseases (APCDG-DMR) with four main objectives:
To learn more about the First and Second World Conference on Congenital Disorders of Glycosylation for Families and Professionals please visit http://www.apcdg.com/education.html |
Facebook cover "World Conference on Congenital Disorders of Glycosylation for Families and Professionals"
When the event is close, change your Facebook cover to the World Conference on CDG Facebook cover. You just have to save one of the covers available below.
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Email signature
When the event is close, use our Email signature to spread the word about the World Conference on CDG. You just have to save one of the emails signature available below.
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Video
Watch and Share the video that summarizes the best moments lived in the Second World Conference on CDG. It gives a simple, yet informative explanation of what means your attendance during the next World Conference on CDG.
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If you wish to learn on how to boost World CDG Awareness, visit our World CDG Awareness toolkit available at http://www.apcdg.com/awareness.html
The World Conference on CDG for families and professionals is supported by the generosity of the following organizations
Gold generosity
Silver generosity
Bronze generosity
World Conference on CDG for families and professionals is an initiative of the Portuguese Association for CDG (APCDG)
Newsletter
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