APCDG - Congenital Disorders of Glycosylation
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3rd WORLD 
​CONFERENCE CDG

Leuven, Belgium - 15 and 16 July 2017

SAVE THE DATE!

3rd WORLD 
CONFERENCE CDG 2017

United Shaping The Future!


"3rd World Conference on Congenital Disorders of Glycosylation (CDG)
for families and professionals: United shaping the future for CDG"
Leuven, Belgium - 15 and 16 July 2017.

“Nothing about us, without us”- James Charlton


Dear families, professionals, colleagues and friends:
 
It is with great pleasure that we invite you to the "3rd World Conference on CDG: United shaping the future for CDG" planned to be held in  Leuven, Belgium - 15 and 16 July 2017.

Here you will find all the information you need about the experts who will be sharing their knowledge and expertise with ALL at the 3rd World Conference on CDG.

Taking into account the genesis of this Conference, among speakers there will be: Clinicians, Health Professionals, Researchers and Families so that every VOICE is heard and every CDG Community stakeholder is effectively represented.

In this section you will have access to the speakers biographies, in case you would like to learn more about their professional and personal paths.
 
We would  like to express our appreciation to the speakers, as well as to the invited chairs for their careful preparation of the invited sessions.
 
CDG families together with professionals can make the difference! 

We are looking forward to seeing you in Leuven!
With our warmest regards,
On behalf of the organizing committee.

 WCCDG Leuven 2017 SPEAKERS


Read the Speakers biographies of the World Conference on CDG for families and professionals 15 and 16 July 2017 in Leuven, Belgium

 The full agenda is available HERE.

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Prof JAAK JAEKEN.
Talk: CDG history and clinical presentation on 15th July


prof_jaak_jaeken_bio.pdf
File Size: 191 kb
File Type: pdf
Download File

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Dr MERCEDES SERRANO
Talk: CDG Neurology:What you need to know on 15th July
​

dr_mercedes_serrano_bio.pdf
File Size: 87 kb
File Type: pdf
Download File

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Prof EVA MORAVA
Talk:Treatment on 15th July
​

prof_eva_morava_bio.pdf
File Size: 190 kb
File Type: pdf
Download File

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Dr MERELL LIDDLE
Talk: Overall strategies to improve communication in CDG on 16th July
​


dr_merell_liddle_bio.pdf
File Size: 183 kb
File Type: pdf
Download File

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Dr Raquel Castro
Talk: Advocacy tool kit to integrate rare diseases into social services and policies on 16th July
dr_raquel_castro_biography.pdf
File Size: 186 kb
File Type: pdf
Download File

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Dr DIRK LEFEBER
Talk:Biochemical aspects on 15th July


dr_dirk_lefeber_bio.pdf
File Size: 86 kb
File Type: pdf
Download File

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Dr MARC PATTERSON
Talk: The role of the cerebellum in cognition and behavior:beyond coordination in the Central Nervous System on 15th July
​

dr_marc_patterson_bio.pdf
File Size: 86 kb
File Type: pdf
Download File

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Dr CHANTAL VERHILLE
Talk: Physical Therapy on 16th July
​

dr_chantal_verhille_bio.pdf
File Size: 184 kb
File Type: pdf
Download File

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Dr CLÁUDIA de FREITAS
Talk: The needs of people affected by CDG and community-framed strategies to address them on 16th July
dr_cláudia_de_freitas_biography.pdf
File Size: 182 kb
File Type: pdf
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Dr LYNNE WOLFE
Talk: Natural History of CDG, and envisioning the future on 16th July

dr_lynne_wolfe_biography.pdf
File Size: 88 kb
File Type: pdf
Download File

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Dr CHRISTIAN THIEL
Talk: Diagnostics Tools on 15th July
dr_christian_thiel_bio.pdf
File Size: 89 kb
File Type: pdf
Download File

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Prof  DAVID CASSIMAN
Talk: CDG Adults: main symptoms and management on 15th July​​
prof_david_cassiman.pdf
File Size: 188 kb
File Type: pdf
Download File

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Dr DOLORES GAMITO
Talk: Psychomotor Therapy and Body Experience on 16th July​
dr_dolores_gamito_bio.pdf
File Size: 183 kb
File Type: pdf
Download File

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Prof LUÍSA BARROS
Talk: Emotional Impact & Coping Strategies in CDG Families on 16th July
prof_luísa_barros_bio.pdf
File Size: 183 kb
File Type: pdf
Download File

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Prof HUDSON H. FREEZE
​Talk: ​Natural History of CDG, and envisioning the future on 16th July
prof_hudson_freeze_biography.pdf
File Size: 183 kb
File Type: pdf
Download File

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Dr STEPHANIE GRünewald
Talk: Gastrointestinal Problems on 15th July​
speakers_bio_WCCDG_leuven_2017.pdf
File Size: 670 kb
File Type: pdf
Download File

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Prof GERT MATTHIJS
Talk: Genetic aspects of CDG on 15th July
prof_gert_matthijs_bio.pdf
File Size: 192 kb
File Type: pdf
Download File

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Dr JOANA PEIXINHO
Talk: Educational digital resources for CDG on 16th July
dr_joana_peixinho_bio.pdf
File Size: 183 kb
File Type: pdf
Download File

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Prof LIZ FORBAT
​Talk:Patient Reported Outcomes for CDG on 16th July
​

prof_liz_forbat_bio.pdf
File Size: 91 kb
File Type: pdf
Download File

This page is dedicated to the various experts: Physicians, therapists, nurses, researchers,parents and all other Professional who will be the 3rd World Conference on CDG Speakers.
It is our pleasure to introduce them to YOU - Meet them!

Conference Booklet available HERE
If you have any doubts or questions, please contact the organizing committee at .rita.francisco.28@gmail.com

Did you know that...
This Conference is organized in collaboration with the European Reference Network for Rare Metabolic diseases - MetabERN (know more HERE)?
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Instructions for Formal Oral Presentations at the World Conference on CDG 

If you are a Speaker or a moderator, please download the document below, which will give you important guidance: 
instructions_for_formal_oral_presentations_at_the_world_conference_on_cdg.pdf
File Size: 283 kb
File Type: pdf
Download File


Online Registrations will be open from February to June 2017
REGISTERATIONS ARE NOW CLOSED


The  "World Conference on Congenital Disorders of Glycosylation for Families and Professionals" toolkit to boost awareness

How you can get involved in the "World Conference on Congenital Disorders of Glycosylation for Families and Professionals" activities?

STEPS:
  1. Join us on Facebook and be updated on the "3rd World Conference on CDG: United shaping the future for CDG" will be held in  Leuven, Belgium - 15 and 16 July 2017.
  2. When the event is close, use the World Conference Symbol on your Facebook profile picture & Twitter page !
  3. Change your Facebook cover to the World Conference on CDG  Facebook cover (see toolkit below)
  4. Disseminate the infographic dedicated to explain the important benefits of this gathering event (see toolkit below).
  5. Be a volunteer! We need volunteers to assist in several activities. For detailed information please visit http://www.apcdg.com/get-involved1.html

Follow the updated information on http://www.apcdg.com/events.html


Symbol "World Conference on Congenital Disorders of Glycosylation for Families and Professionals" 

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The "World Conference on Congenital Disorders of Glycosylation for Families and Professionals" Symbol was selected by our World CDG community through a votation process in 2015.

It recognizes the continuous efforts that families and professionals, are doing united to boost research. The urgent goal: to achieve a better quality of life for our CDG children and adults in our lifetime.  

It is our hope that the logo will make the conference easily recognizable and memorable at the international level. Importantly, it will boost visibility for CDG and its community needs.

Infographic "World Conference on Congenital Disorders of Glycosylation for Families and Professionals"

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This event was created and initiated by the Portuguese Association for CDG and related Rare Metabolic Diseases (APCDG-DMR) with four main objectives:
  1. strengthening global awareness of these  diseases,
  2. fighting geographic isolation that impacts families and professionals,
  3. sharing knowledge and experiences,
  4. potentiating visibility of the work performed by patient representatives and professionals and
  5. identifying areas in which international collaboration can have an immediate impact on the life quality of these families

To learn more about the First and Second World Conference on Congenital Disorders of Glycosylation for Families and Professionals please visit http://www.apcdg.com/education.html

Facebook cover "World Conference on Congenital Disorders of Glycosylation for Families and Professionals" 

When the event is close, change your Facebook cover  to the World Conference on CDG Facebook cover.  You just have to save one of the covers available below.

Email signature

When the event is close, use our Email signature to spread the word about the World Conference on CDG. You just have to save one of the emails signature available below.

Video

Watch and Share the video that summarizes the best moments lived in the Second World Conference on CDG. It gives a simple, yet informative explanation of what means your attendance during the next World Conference on CDG. 

If you wish to learn on how to boost World CDG Awareness, visit our World CDG Awareness toolkit available at http://www.apcdg.com/awareness.html

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The World Conference on CDG for families and professionals is supported by the generosity of the following organizations

Gold generosity

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Silver generosity

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Bronze generosity 

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World Conference on CDG for families and professionals is an initiative of the Portuguese Association for CDG (APCDG)

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  • About US
    • What we do
    • Who we help >
      • Research
  • Resources
    • Rare CDG
    • Publications
    • Guia Metabolica
    • CDG Facts
    • Task Force CDG Communication >
      • PMM2-CDG (CDG Ia)
      • PGM1-CDG (CDG It)
      • ALG6-CDG (CDG Ic)
  • EDUCATION
  • Awareness
    • Get involved World CDG Awareness Day 2019 >
      • Go Social World CDG Awareness Day 19
      • Spread World CDG Awareness Day 19
      • Plan An Event World CDG Awareness Day 19
      • Frame your CDG Awareness Campaign 19
      • Go green! Think CDG! ©Campaign 19
      • Volunteer World CDG Awareness Day 19
      • Press kit World CDG Awareness Day 19
    • Map of events for World CDG Awareness Day 2019
    • CrowdCDG
    • Awareness Day 2018
    • Awareness Day 2017
    • Awareness Day 2016
    • Rare Diseases
  • Community
    • Join Us - Membership
    • CDG Patient Groups
    • Empowerment
  • Events
    • 1st CDG Satellite Meeting
    • Speakers - World Conference on CDG 2019
    • Registrations - World Conference on CDG 2019
    • Poster submission - World Conference on CDG 2019
    • Follow up - World Conference on CDG 19
    • Volunteer Registration - World Conference on CDG 2019
    • Previous Edition World Conference on CDG 2017 >
      • Follow up - World Conference on CDG 17
      • Speakers - World Conference on CDG 17
  • DONATE
  • BLOG