4th WORLD 
CONFERENCE on CDG 2019

The CDG road: from diagnosis to therapies!
***Deadline for REGISTRATION to the 4th World Conference on CDG***

June 10th
CLOSED
 Over 220 people registered for the 3rd World COnference on CDG.
Will you join us in Lisbon for the 4th World Conference on CDG?
Looking forward to meeting you all there!
Registrations
There are TWO registration forms. One for FAMILIES and other for PROFESSIONALS.
Below you can find the corresponding link to each one of the forms. Please, select the one that applies to you.

Registration form for PROFESSIONALS - HERE

Registration form for FAMILIES - HERE

To obtain a full and valid registration you MUST:
1 - fill the corresponding Registration Form
2 - send the proof of payment for the meals and registration fee until 15 days after submitting the Registration Form to worldcdgconference2019@gmail.com

The registration fee is a donation that will support the overall conference, the organization, logistics for the event, as well as the social program targeted for children and adults and so forth. In addition, the Registration fee includes Conference participation, information material and networking sessions.
Registrations without proof of payment for meals and donation fees will be considered INVALID and will be CANCELED.
To read the final agenda go HERE

Information about all CDG speakers that will participate will be available shortly!

For further information go HERE and Read the Press Releases below:
press_release_registrationswccdg2019_eng.pdf
File Size: 452 kb
File Type: pdf
Download File
press_release_registrationswccdg2019_pt.pdf
File Size: 402 kb
File Type: pdf
Download File
Download the Conference Booklet below:
final_booklet_wccdg_2019.pdf
File Size: 4184 kb
File Type: pdf
Download File

Reasons to attend

See the FINAL AGENDA HERE
  • Opportunity to have direct contact, establish dialogue and engage in meaningful discussions with CDG experts (families and professionals)
  • Knowledge and information exchange
  • Empowerment
  • Gaining insight into new breakthroughs and state-of-the-art data related to the CDG field
  • Forging partnerships with main stakeholders
  • Chance to be motivated and inspired by brave people
  • Shaping basic and applied research based on CDG community concerns and needs
  • Networking Promotion
  • Identification and assessment of CDG unmet needs and urgent challenges
  • Possibility to attend presentations by international and highly qualified CDG professionals
  • Raising awareness for CDG at a global level
  • Community building event - Foment global CDG community union and companionship  
  • Promotion of translational research  
 
Who will be there? Families, key researchers, physicians, educationalists and other practitioners.
 
Type of sessions
  • Workshops
  • Think Tanks
  • Networking sessions
 
Themes
  1. Research and development - biobanks, biomarkers, pharmaceutical drug development,
  2. Pre-clinical and clinical drug development and approval - patient registries, natural history studies,
  3. Tools to accelerate therapeutic discovery - systems biology, artificial intelligence, metabolomics,
  4. Models for CDG research - in vitro and in vivo models,
  5. Drug approval and market access,
  6. CDG diagnostics and clinical impact,
  7. Therapies and clinical trials,
  8. International and interdisciplinary networks.

Important DATES

  • Launch Registration: 28th February 2019
  • Biographies and titles of presentations deadline: 15th March 2019
  • Booklet with full information official presentation: 15th March 2019
  • Instructions for formal oral presentations: 15th of June 2019
Registration  deadline: 10th June 2019

Preparing for the Meeting

Preparation is key to getting the most out of the meeting. Listed here are multiple tips that will guarantee your successful attendance:
  1. Register for the meeting: Registration is MANDATORY to everybody. DEADLINE is 10th June 2019. Be sure to register very early in advance for the meeting. 
  2. Make your travel arrangements early: Flights and hotel rooms will be in demand during the dates of the World Conference.
  3. Prepare your schedule.  
  4. Download and print the program: we do not have available programs.
  5. Prepare to network: read the program carefully and select the relevant key stakeholders with whom you wish to interact. You will have the opportunity to meet well-known individuals who will be accessible during the conference. Breaks and meals will also be suitable times to meet and network with people that you do not normally get to see.  
  6. If it is the case, Practice your formal oral presentation 
  7. Take notes: it helps you to focus when listening; it will be a record for later reference and helps to promote information retention.   
  8. Do not be shy – Ask questions: we encourage you to ask questions at the sessions you attend. Asking good questions is an important skill that can be developed. To become a more active meeting participant, we suggest you to try to have at least three good questions, and write these questions in your notebook-whether or not you intend to ask them. Please, work up to asking your question(s) preferentially in public or after the session. Questions will also promote discussions, which may result in greater advancements or in more clarification.

World Conference on CDG for families and professionals is an initiative of the Portuguese Association for CDG (APCDG)

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