3rd WORLD
CONFERENCE CDG 2017
United Shaping The Future!
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Over 220 people registered for the 3rd World COnference on CDG.
Are you one of them?
Thank you for joining us and for spreading the CDG word!
Looking forward to meeting you all there!
Are you one of them?
Thank you for joining us and for spreading the CDG word!
Looking forward to meeting you all there!
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To Pre-register download and read the relevant information in the document below:
Then go HERE. After pre-registration in the next 1-2 weeks you will will be sent an email from the organizing committee (worldconferencecdg2017@gmail.com ), with the final requirements to validate your registration. You MUST answer this email in order to have a VALID and FULL registration.
To read the agenda go HERE To learn about all CDG speakers that will participate go HERE For further information go HERE and Read the Press Release below:
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Did you know...
This conference is being organized in collaboration with the European Reference Network for Rare Metabolic Diseases - MetabERN(know more HERE)?
Reasons to attend
See the AGENDA HERE
- Opportunity to have direct contact, establish dialogue and engage in meaningful discussions with CDG experts (families and professionals)
- Knowledge and information exchange
- Empowerment
- Gaining insight into new breakthroughs and state-of-the-art data related to the CDG field
- Forging partnerships with main stakeholders
- Chance to be motivated and inspired by brave people
- Shaping basic and applied research based on CDG community concerns and needs
- Networking Promotion
- Identification and assessment of CDG unmet needs and urgent challenges
- Possibility to attend presentations by international and highly qualified CDG professionals
- Raising awareness for CDG at a global level
- Community building event - Foment global CDG community union and companionship
- Promotion of translational research
Who will be there? Families, key researchers, physicians, educationalists and other practitioners.
Type of sessions
- Lectures
- Round table discussions
- Networking sessions
Themes
- CDG biochemistry,genetics, history,clinical presentation and diagnosis
- Gastrointestinal and neurological involvement in CDG
- Therapeutic approaches
- Physical, occupational and educational approaches and resources
- Neuropsychological assessment and Patient Reported outcome measures for CDG
- Patient Advocacy
EventBrite - Pre Registration Form
The Pre-Registration form is available HERE.
Eventbrite (more information HERE) is an event platform, which has a very simple, quick and easy registration system for events. For those reasons and for your convinience, the Organizing Committe chose Eventbrite to be the PRE-REGISTRATION platform of the 3rd World Conference on CDG.
All the steps you need to take in order to PRE-REGISTER successfully are explained in detail in the Tutorial below. So, please, before proceeding to the PRE-REGISTRATION read this document!
Download it below:
All the steps you need to take in order to PRE-REGISTER successfully are explained in detail in the Tutorial below. So, please, before proceeding to the PRE-REGISTRATION read this document!
Download it below:
| how_to_pre-register_for_the_3rd_world_conference.pdf |
Now, please PRE-REGISTER HERE!
HOWEVER, to obtain a full and valid registration you MUST respond to the confirmation email, which will be sent to you from the organizing committee, with the final requirements to validate your registration.
The registration fee is a donation that will support the overall conference, the organization, logistics for the event, as well as the social program targeted for children and adults and so forth. In addition, the Registration fee includes Conference participation, information material and networking sessions.
The registration fee is a donation that will support the overall conference, the organization, logistics for the event, as well as the social program targeted for children and adults and so forth. In addition, the Registration fee includes Conference participation, information material and networking sessions.
REGISTRATIONS that do not respond to the email will be considered INVALID and will be CANCELLED.
* Note: Please notice that only emails from worldconferencecdg2017@gmail.com or sindromecdg@gmail.com are valid, any other email contact should be dismissed. Also, you will receive an email from us 1-2 weeks after you complete you pre-registration.
Conference Venue, Accommodation and Meals
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The 3rd World Conference on CDG Venue will be the ParkInn by Radisson Hotel in Leuven, Belgium (more information HERE). Besides being the conference venue, the ParkInn by Radisson Hotel will also host the Activity Room - A volunteer based service for CDG Children and Adults (for more information about the Activity Room, please see Page 10 of the Conference Booklet)
Download the Conference Booklet below:
Accommodation and meals will be booked by the participants directly with the hotels.
Information on how to establish contact will be sent to you VIA EMAIL after you complete your PRE-REGISTRATION. BE AWARE, the official new email of the organizing committee is worldconferencecdg2017@gmail.com |
Conference Venue
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Important DATES
- Official Announcement: 10 th November 2016
- Official invitations: 20th October 2016
- Details concerning the conference: 12th January 2017
- Launch Registration: 18th February 2017
- Biographies and titles of presentations deadline: 18th February 2017
- Booklet with full information official presentation: 18th February 2017
- Instructions for formal oral presentations: 15th of July 2013
Registration deadline (mandatory to all participants): 1st June 2017
Preparing for the Meeting
Preparation is key to getting the most out of the meeting. Listed here are multiple tips that will guarantee your successful attendance:
- Pre- Register for the meeting: Pre-Registration is MANDATORY to everybody. DEADLINE 1st June 2017. Be sure to register very early in advance for the meeting. Register HERE
- Make your travel arrangements early: Flights and hotel rooms will be in demand during the dates of the World Conference.
- Prepare your schedule.
- Download and print the program: we do not have available programs
- Prepare to network: read the program carefully and select the relevant key stakeholders with whom you wish to interact. You will have the opportunity to meet well-known individuals who will be accessible during the conference. Breaks and meals will also be suitable times to meet and network with people that you do not normally get to see.
- If it is the case, Practice your formal oral presentation
- Take notes: it helps you to focus when listening; it will be a record for later reference and helps to promote information retention.
- Do not be shy – Ask questions: we encourage you to ask questions at the sessions you attend. Asking good questions is an important skill that can be developed. To become a more active meeting participant, we suggest you to try to have at least three good questions, and write these questions in your notebook-whether or not you intend to ask them. Please, work up to asking your question(s) preferentially in public or after the session. Questions will also promote discussions, which may result in greater advancements or in more clarification.
World Conference on CDG for families and professionals is an initiative of the Portuguese Association for CDG (APCDG)
Newsletter
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