Join the World CDG Community
Become a Member of the Portuguese Association for CDG!
We are completely committed to our mission of improving the lives of CDG children and adults through international research, awareness and education projects led by patients.
Become a Member: Why?
Our association is based in Portugal, but our outreach is global!
CDG patients are globally dispersed. We truly believe that only by advocating, raising awareness and collaborating at a global level will we be able to find lasting and effective solutions for the CDG Community.
That's why we created the International Research network:
That's why we created the International Research network:
|
We are also preparing new international advocacy initiatives this year!
So, stay tunned! |
You will be supporting research projects in the field of Congenital Disorders of Glycosylation (CDG) and related disorders with very special features:
- Led and inspired by patients and families’ needs;
- Developed by a unique and pionneer international network of experts – physicians, researchers and families:
- Development of projects with global reach and impact;
- Aggregation and canalization of knowledge and expertise.
- In areas of unmet needs or limited knowledge with applicability in other rare and common diseases;
- Possibility to participate in research projects;
- Access to workshops and other training events;
- First hand access to results from CDG&Allies-PPAIN research projects;
- Access to personalized research services for families and patients;
- Access to updated information about several topics of interest for the Rare disease community; ;
- Access to awareness and motivational campaigns.
What are we going to transform your donation into?
WHAT HAVE WE DONE SO FAR:
- Research tools: such as 4 scientific scholarships for researchers (Maria Monticelli, Dorinda da Silva, Rita Francisco, Carlota Pascoal); creation of 7 posters, publication of 6 new scientific articles; conferences and congress attendance to present work
- Toolkits for campaigns: World CDG Awareness Day 2017 (HERE)
- Training programmes: Educational workshops and World conference on CDG (HERE)
- Patient-friendly documents and resources (Visit HERE)
- Among others. Please visit APCDG and/or CDG & Allies-PPAIN website to get more information.
Membership Application Form
APCDG treats all information with secrecy and confidentiality.
All information given by our members will be only used internally for statistical purposes of our institution as well as for divulgation/information purposes only when or if the members request it.
All information given by our members will be only used internally for statistical purposes of our institution as well as for divulgation/information purposes only when or if the members request it.
Thank you so much for being a driving force behind our initiatives!
APCDG-DMR: A non-profit organization, which congregates and represents CDG parents, relatives, friends and experts.
APCDG-DMR informs that whom is interested in helping our organization should contact us by email at: sindromecdg@gmail.com. We inform that never under any situation will we organize door to door or telephone based fundraising campaigns.
APCDG-DMR informs that whom is interested in helping our organization should contact us by email at: sindromecdg@gmail.com. We inform that never under any situation will we organize door to door or telephone based fundraising campaigns.
|
|
|
Newsletter
|
|
