APCDG - Congenital Disorders of Glycosylation
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      • Go Social World CDG Awareness Day 19
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Go Social World CDG Awareness Day 2016

In 2016 it was so:


Our work is publicly available to help the CDG community and related rare disease communities. Importantly, we do not receive government funding. We rely solely on donations in order to continue our projects.

​
Consider to make a donation using Paypal, debit or credit card or bank transfer. 
DONATE
Picture

Your donation will help fund advocacy efforts, awareness, education and research. All details are found at www.apcdg.com/donate.html THANKS!
The resources cannot be used for commercial purposes.
​For further questions or suggestions please contact: sindromecdg@gmail.com​


Go Social World CDG Awareness Day


Facebook and Twitter 

1-

Follow us and  Hashtag like crazy using the world hashtag for 2016 at: #WorldCDGDay2016

Facebook: HERE
Twitter: HERE

2-

Help us collecting many signatures for our Online Public Petition directed to World Health Organization (WHO) to declare 16th May as the annual World Congenital Disorders of Glycosylation (CDG) Awareness Day.​
Sign Public Petition
  • Hashtagging on Twitter the suggested message:
#WorldCDGDay2016: Public Petition to declare 16th May as the annual World Congenital CDG  Awareness Day at https://www.change.org/p/congenital-disorders-of-glycosylation-cdg-world-awareness-day-on-may-16th
  • Hashtagging on Facebook and/or emailing the suggested message among your contacts:
#WorldCDGDay2016: Do you know we have almost 6500 signatures for an annual CDG Awareness Day? We need more signatures!  Help us collecting many signatures is fast! Please sign and share our Online Public Petition directed to World Health Organization (WHO) to declare 16th May as the annual CDG Awareness Day available at ​ https://www.change.org/p/congenital-disorders-of-glycosylation-cdg-world-awareness-day-on-may-16th

3-

Share our official Digital Poster available HERE in our social media profiles: 
  • Download: HERE

4-

Share the photos related with this day and using our Hashtags in our social media profiles: 
  • Facebook: HERE
  • Twitter: HERE 

5-

Change your Facebook and Twitter cover to the World Congenital Disorders of Glycosylation (CDG) Awareness Day Facebook and Twitter cover.
For USA:
  • Facebook: HERE
  • Twitter: HERE​
For around the World:
  • Facebook: HERE
  • Twitter: HERE

6-

Change your Facebook and Twitter profile picture  to the World Congenital Disorders of Glycosylation (CDG) Awareness Day Facebook and Twitter profile picture.
For USA:
  • Download: HERE
For around the World:
  • Download: HERE

7-

Use the Email signature that support the World Congenital Disorders of Glycosylation (CDG) Awareness Day.
For USA:
  • Download: HERE
For around the World:
  • Download: HERE

8-

Suggested Social media Posts for #WorldCDGDay2016

All community and friends are encouraged to share the following tweets or Facebook posts on their personal accounts. By sharing messages like these on social media, you will help in bringing more awareness for World Congenital Disorders of Glycosylation (CDG) Awareness Day. Please accompany your posts with the CDG International Awareness Symbol
For USA:
  • #WorldCDGDay2016: Finding cures for CDG starts with Awareness. Proudly supporting May 16 as World CDG Awareness Day.
  • #WorldCDGDay2016: May 16 is World CDG Awareness Day. Show you care, be aware!
  • #WorldCDGDay2016: Make a difference!  May 16 is the World CDG Awareness Day!
  • #WorldCDGDay2016: May 16 is World CDG Awareness Day. Together we can make a better world for CDG children and adults!
  • #WorldCDGDay2016: We are part of the fight!  May 16 is the World CDG Awareness Day!
  • #WorldCDGDay2016: Proudly supporting May 16 is the World CDG Awareness Day. 

For around the World:
  • #WorldCDGDay2016: Finding cures for CDG starts with Awareness. Proudly supporting 16th May as World CDG Awareness Day.
  • #WorldCDGDay2016: 16th May is World CDG Awareness Day. Show you care be aware!
  • #WorldCDGDay2016: Make a difference!  16th May is the World CDG Awareness Day!
  • #WorldCDGDay2016: 16th May is World CDG Awareness Day. Together we can make a better world for CDG children and adults!
  • #WorldCDGDay2016: We are part of the fight!  16th May is the World CDG Awareness Day!
  • #WorldCDGDay2016: Proudly supporting 16th May is the World CDG Awareness Day!

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  • About US
    • What we do
    • Who we help >
      • Research
  • Resources
    • Rare CDG
    • Publications
    • Guia Metabolica
    • CDG Facts
    • Task Force CDG Communication >
      • PMM2-CDG (CDG Ia)
      • PGM1-CDG (CDG It)
      • ALG6-CDG (CDG Ic)
  • EDUCATION
  • Awareness
    • Get involved World CDG Awareness Day 2019 >
      • Go Social World CDG Awareness Day 19
      • Spread World CDG Awareness Day 19
      • Plan An Event World CDG Awareness Day 19
      • Frame your CDG Awareness Campaign 19
      • Go green! Think CDG! ©Campaign 19
      • Volunteer World CDG Awareness Day 19
      • Press kit World CDG Awareness Day 19
    • Map of events for World CDG Awareness Day 2019
    • CrowdCDG
    • Awareness Day 2018
    • Awareness Day 2017
    • Awareness Day 2016
    • Rare Diseases
  • Community
    • Join Us - Membership
    • CDG Patient Groups
    • Empowerment
  • Events
    • 1st CDG Satellite Meeting
    • Speakers - World Conference on CDG 2019
    • Registrations - World Conference on CDG 2019
    • Poster submission - World Conference on CDG 2019
    • Follow up - World Conference on CDG 19
    • Volunteer Registration - World Conference on CDG 2019
    • Previous Edition World Conference on CDG 2017 >
      • Follow up - World Conference on CDG 17
      • Speakers - World Conference on CDG 17
  • DONATE
  • BLOG