“Awareness is like the sun. When it shines on things, they are transformed” – Thich Nhat Han We are thrilled to announce the launch of the World CDG Awareness. Education. Diagnosis program for 2018 – 2022. Based on our global and holistic vision about CDG, we are launching a series of awareness and educational materials, particularly dedicated to less frequent CDG types. CDG are unknown and commonly misdiagnosed rare metabolic diseases. In order to learn about the families’ needs directly from the CDG community, back in 2015, the Portuguese Association for CDG (APCDG) coordinated the first “CDG Think Tank”. One of the outcomes was the urgent need to raise awareness for rarer CDG types. “This new program is very ambitious, highly representative of CDG heterogeneity, and has a very clear message – Let’s not leave anyone behind!” affirmed Rita Francisco, CDG PhD student and advocate (volunteer at APCDG and CDG & Allies-PPAIN). This series starts with an infographic dedicated to PIGN-CDG. “We are creating several patient-friendly infographics aimed at explaining the symptoms of less frequent CDG types. Doctors and families will unite to run a global campaign to educate and inform around these CDG. We are also actively raising funds to support the creation of these resources” said Rosália Félix, Mother to a CDG adult patient and APCDG vice-president. These resources are crucial for an early and accurate diagnosis which can improve the patient's quality of life as well as to improve treatments and care for their disease. We deeply acknowledge the collaboration of all the volunteers working on developing these FREELY available resources. Especially to the families, who actively participated in the creation and improvement of this informative poster. “This poster will be a great resource for families diagnosed with CDG-PIGN. It provides information that is easier to understand than the complex medical papers. This campaign also provides hope by sharing some of the successes of our amazing children.” explained Kerry Blondheim, CDG Mom. With our news, comes a CALL for participation from you CDG Families and Professionals. Download the PIGN-CDG infographic HERE. “It’s important for the whole CDG community to have accessible resources! I think good communication leads to increased knowledge and knowledge is power!” - concluded Sandra Brasil, CDG postdoc researcher and advocate (volunteer at APCDG and CDG & Allies-PPAIN). Let’s spread CDG Awareness like never before! And without leaving anyone (anywhere) behind! How can you spread the word about CDG using these resources?
About APCDG:
APCDG is nonprofit-organization aimed at fostering breakthrough research that make an important difference in the lives of patients and their family members. Our actions are performed at the national and international level. Learn more HERE.
32 Comments
kaith leonard
8/6/2020 04:16:38 pm
I NEED A EFFECTIVE AND POWERFUL LOVE SPELL CASTER AND LOTTERY SPELL 2020 WICCALOVESPELLTOOLS@GMAIL.COM OR WHATSAPP HIM :+19085174108
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Sharon Wayne
4/11/2020 09:30:58 pm
I want to thank Dr Emu a very powerful spell caster who help me to bring my husband back to me, few month ago i have a serious problem with my husband, to the extend that he left the house, and he started dating another woman and he stayed with the woman, i tried all i can to bring him back, but all my effort was useless until the day my friend came to my house and i told her every thing that had happened between me and my husband, then she told me of a powerful spell caster who help her when she was in the same problem I then contact Dr Emu and told him every thing and he told me not to worry my self again that my husband will come back to me after he has cast a spell on him, i thought it was a joke, after he had finish casting the spell, he told me that he had just finish casting the spell, to my greatest surprise within 48 hours, my husband really came back begging me to forgive him, if you need his help you can contact him with via email: Emutemple@gmail.com or add him up on his whatsapp +2347012841542 is willing to help any body that need his help.
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GEORGE BELLA
21/6/2022 09:39:40 am
REAL AND EFFECTIVE LOVE SPELL CASTER TO BRING BACK EX LOVER URGENTLY. CALL OR WHATSAPP +1(424)-261-8520 2022 / 2023
GEORGE BELLA
21/6/2022 01:21:31 pm
REAL AND EFFECTIVE LOVE SPELL CASTER TO BRING BACK EX LOVER URGENTLY. CALL OR WHATSAPP +1(424)-261-8520 2022 / 2023
deja merald
26/4/2021 02:05:33 pm
Its a real miracle Till today i still imagine how dr 0love brought back my man after he had vowed never to set his eyes on me again. he had even set the date for his wedding with another woman before i contacted dr 0love.
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Mary Counts
22/8/2020 09:30:54 am
I can’t believe this. A great testimony that i must share to all HERPES SIMPLEX VIRUS patient in the world i never believed that their could be any complete cure for Herpes or any cure for herpes,i saw people’s testimony on blog sites of how Dr Wealthy prepare herbal medicine that cure and brought them back to life again. i had to try it too and you can,t believe that in just few weeks i started using it all my pains stop gradually and i had to leave without the pills the doctor gave to me. Right now i can tell you that few months now i have not had any pain,delay in treatment leads to death. Here is his email:(wealthylovespell@gmail.com) whatsapp him with +2348105150446 visit blog http://wealthyspellhome.over-blog.com
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Mike rose?
15/12/2020 07:50:08 am
I want to let the world know about Doctor AKHERE the Great spell caster that brought back my husband to me when i thought all hope was lost. Doctor AKHERE used his powerful spell to put a smile on my face by bringing back my man with his spell, at first i thought i was dreaming when my husband came back to me on his knees begging me to forgive him and accept him back and even since then he loves me more than i ever expected so i made a vow to my self the i will let the World know about Doctor AKHERE because he is a God on earth. Do you have problems in your relationship ? have your partner broke up with you and you still love and want him back ? Do you have problem with your finance ? or do you need help of any kind then contact Doctor AKHERE today for i give you 100% guarantee that he will help you just as he helped me. Doctor AKHERE email is: AKHERETEMPLE@gmail.com or
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Lara Fox
7/1/2021 06:19:26 pm
REAL URGENT EFFECTIVE SPELL CASTER TO HELP BRING BACK EX LOVER AND SAVE MARRIAGE : http://drjumbaspellhome.wordpress.com I recently saw a testimony about a spell caster in a blog I visit for relationship counseling problems because I had been having serious issues with my husband and we had been dating for six months, he just suddenly changed, he was returning my calls, he started cheating,he was hurting me in so many ways i never thought possible and I just thought I should try it maybe out of desperation ..and I contacted them. At first everything felt dreamy and unbelievable, their consultations and solution was a little bit easy and strange and I was scared a little cos I heard read and heard lots of stories of spell casters and I never really believed in spell ..I played along with a little hope and faith and I was sent some few stuffs after everything and it worked like a miracle, everything went to a whole new direction, I guess it was all good faith that made me read That particular post that fateful day. I hope they could help other people too like they did a little and I got everything I wanted and wished for my husband, my family and my life back their address is; wiccalovespelltools@gmail.com Call him or add him on WhatsApp via: +19085174108
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Aaron Jeremy
14/1/2021 02:52:42 pm
CHIEF DR LUCKY HERBAL THERAPY
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Julie Andrew
24/1/2021 10:45:59 pm
HOW I GOT BACK MY MAN WITHIN 24 HOURS WITH THE HELP OF DR JUMBA +1 908 517 4108 ..
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tracy wright
17/3/2021 07:00:07 am
MY REVIEWS ABOUT DR JUMBA THE BEST WORLD WIDE ONLINE REAL SPELLCASTER.
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deja merald
26/4/2021 02:06:03 pm
Its a real miracle Till today i still imagine how dr 0love brought back my man after he had vowed never to set his eyes on me again. he had even set the date for his wedding with another woman before i contacted dr 0love.
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Amelia
1/5/2021 11:56:15 pm
Hi, good day everyone!
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Amelia
1/5/2021 11:57:25 pm
Hi, good day everyone!
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Brittany Seiber
24/5/2021 05:39:29 am
To know more about Chief Dr Lucky you can visit his website (https://chiefdrluckyherbaltherapy.wordpress.com/)
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Leelee Williams
4/6/2021 09:23:46 pm
I NEED A LOVE SPELL THAT WILL MANIFEST WITHIN 24 HOURS CONTACT (DR MARCUS ) HE HIS THE BEST LOVE SPELL CASTER WHO HELPED ME RESTORE HAPPINESS BACK TO MY RELATIONSHIP
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Caillo Lisa
5/6/2021 02:29:21 pm
This is another testimony on how Chief Dr Lucky cured my HIV disease. Do you need a cure for your HIV disease? Do you want to be cured from your cancer disease? Or you want to be free from any type of disease. Kindly visit his website https://chiefdrluckyherbaltherapy.wordpress.com/ , he just cured my HIV disease and I’m very grateful to him, he is the only herbalist that can cure you.
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RANDA ROSE
2/8/2021 04:15:02 am
HOW I GOT MY EX HUSBAND BACK WITH THE HELP OF REAL AND EFFECTIVE SPELL FROM DR Owo. I never thought I will smile again, My husband left me with two kids for 5 year, All effort to bring him back failed I thought I'm not going to see him again not until I met a lady called Lisa who told me about a spell caster called Dr Owo , She gave me his contact: drowoherbs@gmail.com I contacted him and he assured me that within 48hours my husband will come back to me, In less than 48hours my husband came back started begging for forgiveness saying it is the devils work, so I'm still surprise till now about this miracle, i couldn't conceive but as soon as the priest pray for me, i became pregnant and gave birth to my third child, My heart is filled up of happiness to share my life marriage and relationship story with you over here. If you need any assistance from him you can contact him via: drowoherbs@gmail.com
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Michael DeBruin
31/8/2021 02:06:24 pm
My wish right now is that God should continue to bless Dr Emu for his good works towards the life of those people who are heart broken. My name is Michael DeBruin and I am from the USA, it's been a while since my lover's attitude changed from being the caring type she has been to me, but later turned out not to be caring at all. But not long, I later discovered that my lover was having an affair with someone else. and also she told me she doesn't need me after all we pass through then a friend told me about a spell caster. that with the spell I will get back my woman, I took his cell number then called him and also what's-app him which he reply to me and I did some sacrifices to the spell man and he bought the items for me which he used for the sacrifices and later called me that before 48 hours my love will come back to me and now we are more in love with each other than ever. you can reach him on WhatsApp +2347012841542 or reach him via mail ; emutemple@gmail.com , my lover returned back and broke up with the other guy she was having a relationship with... Thank you Dr Emu.
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Sally
6/12/2021 10:59:05 pm
Hello my name is Sally my fiance broke up with me last week i was so sad I changed completely, I wasn't eating and i wasn't talking to anybody, I cried a lot,I was so depressed and stressed out that I was scared I'm going to end up in the hospital because of all the stress and depression until one day i search online on getting love tips because I Love & care about him deeply and I just want us to be together as a couple again and I want us to last forever then i found a powerful spell caster Called Priest Ade that he solved so many relationship problem then Priest Ade told me he will come back to me between 24hrs after he cast spell on him never believe it until my finance called me on the phone and told me he want us to come back and live happily together forever , Am so happy now that Priest Ade help me bring my finance back to me. Thanks so much Priest Ade he can also help you Email him at
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Shanice
31/12/2021 05:26:17 pm
I am so happy sharing my amazing experience with the powerful spell caster Priest Ade who helped me bring my boyfriend back me and my partner was having a lot of issues things got so worst we broke up I was devastated I love him more than anything,I cried my eyes out until my friend who had a perfect relationship told me how she did it and introduced me to the wonderful man Priest Ade he told me everything was going to be Ok that there is no perfect relationship so he will help me fix mine,He told me what to do which I did and exactly 24 hours later my boyfriend came back I’m so happy thank you so much I’m going to leave his details here so you too can benefit from him and his work
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Barley
29/1/2022 04:40:00 am
How i got back my ex husband after he left me and our kids” I suggest you read my testimony. I’m from united state, I’m so excited my husband is back after he left me for another woman. My husband was having an affair with a co-worker and i love my husband so much but he was cheating on me with his co-worker and this girl i think she uses witchcraft or black magic on my husband to make him hate me and this was so critical and uncalled-for, I cry all day and night for God to send me a helper to bring back my husband! I was really upset and i needed help, so i searched for help online and I came across a website that suggested that Lord Zuma can help get ex-boyfriend back fast. So, I felt I should give him a try. I contacted him and he told me what to do and i did it, then he did a love spell for me. 11hours later, my husband really called me and told me that he miss me so much, Oh My God! i was so happy, and today i am happy with my man again and we are joyfully living together and i thank the powerful spell caster Lord Zuma, he is so powerful and i decided to share my story online here. if you are here and your Lover is turning you down, or your husband moved to another woman, do not cry anymore, contact Lord Zuma for help now..Here’s his contact, spiritualherbalisthealing@gmail.com or WhatsApp him: +1 506 800 1647
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Richard Wahl
2/2/2022 05:37:59 am
CONTACT THE BEST LOTTERY SPELL CASTER FOR THE RIGHT LOTTERY NUMBERS NOW HIS LOTTERY SPELL IS 100% GUARANTEE WHATSAPP +18488416266
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ElizabethCane
22/4/2022 11:07:38 am
Hello everyone i am very glad shearing this my amazing testimony on how Priest Bacasim brought back my husband, i have been living in hell for the past 2 years since my husband left me, i saw a testimony of a woman online on how Prist Bacasim restore her husband back to her, so i decided to also contact him through his email pristbacasim2000@gmail.com and i explain everything to him and he promised he will bring back my husband in 48hrs, at first i didn't believe it 100% but i have no choice, he told me what i should do which i did, on a faithful morning as i was preparing for work i saw my husband in front of the house i was so surprised, he started begging me to forgive him, i had to forgive him because i love him so much and now we are living happily together.
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26/4/2022 04:06:56 am
Real Love Spell To Bring Back Your Ex lover
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Avery Lindsey
23/5/2022 03:01:57 am
GREAT THANKS TO DR TRUE LOVE SPELL CASTER FOR HELPING ME WHEN I NEEDED HELP.
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Adams kevin
7/6/2022 10:35:54 am
To all who read this you must have faith. There are greater forces at work than you can imagine. It will get better and each of your situations will improve whether it is what intended to happen or not. Few days after consulting Dr Abaka for help my ex came back to me and today we are happy together as husband and wife, I highly recommend any one to Dr Abaka for whatever problems you are experiencing whether is love, protection, money or psychic powers, he is the real deal. {drabakaspelltemple@gmail.com} either Whats-app/call (+1)484-820-1518
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Mrsblatefe
9/6/2022 11:24:47 am
HOW TO GET YOUR EX BACK PANIC THANKS TO GREAT DR okon FOR SOLVING MY PROBLEMS HIS EMAIL IS (drokonsolutionspell@gmail.com
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9/6/2022 04:37:44 pm
Reply
14/6/2022 09:12:16 pm
BUY PAIN RELIEVERS PILLS,SLEEPING PILLS,SEX ENHANCERS PILLS,ECSTASY PARTY PILLS ETC WhatsApp:+1(312) 379-9621
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BELLA WENY
18/6/2022 02:13:30 pm
My husband was once loving and caring but to a point he stopped and totally forsake me, he wasn’t having time for me because he was having an affair, i was so devastated that i didn’t know what to do. I did love him so much, even when he was still not caring and was cheating i couldn’t leave cause i still loved him, i sorted for help from every where i could to have my husband back, i luckily found Dr Abaka who was helping people out on relationship and marriage issues. I went on and contacted him, i explained what i was going through in my marriage, then he assured me that he would help me, i did all that he instructed me to do and then he told me that my husband would return to me after some days, i waited patiently and after some days passed my husband came home one evening and started apologizing to me to forgive him for how he had been treating me, i was so surprised beyond words that i can’t thank him enough. you can reach him on via Email drabakaspelltemple@gmail.com or Whats-app +( 1 ) 484_820_1518
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martin
18/6/2022 06:10:25 pm
REAL AND EFFECTIVE LOVE SPELL CASTER TO BRING BACK EX LOVER URGENTLY, FIX BROKEN MARRIAGE, STOP DIVORCE,STOP TOXIC RELATIONSHIP ETC. CALL OR WHATSAPP +2347025891637 I hear how people are talking about The powerful spell caster called PRIEST OTAME in regard of how he bring back ex lover and helping them get married to their dream lover and i also contact him to help me cast a spell in regard of my ex lover whom i love so much that left me 2yrs ago, but today my ex is back to me and we are happily married with 3kids and i am so much happy for the help i found in you PRIEST OTAME. My family and I are very much happy and we are living large now, i am grateful and appreciate your good work of spell casting. Thank you and may you live long to help people in problems. if you are reading this and have any kind of problem in relationship, want your ex back etc. get in touch with PRIEST OTAME through whatsapp; +2347025891637 email; purespellcast@gmail.com
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