Workshop "Think Metabolic, Think CDG" an educational initiative to Celebrate #RareDiseaseDay

30/1/2017

"Think Metabolic, Think CDG" is a workshop organized by the Portuguese Association for CDG (APCDG) in collaboration with Centro Hospitalar Universitário de Coimbra. It will take place in Ordem dos Médicos, Coimbra, Portugal on 27th February 2017. This workshop aims to raise awareness for CDG, but also to join the celebrations of #RareDiseaseDay 2017.

This event will count with the presence of Prof Jaak Jaeken, the medical doctor who described CDG for the first time in 1980. Lectures among CDG diagnosis, CDG & Liver, CDG recognisable phenotypes and other themes of relevance for rare diseases in general will be presented at the workshop.

Everyone is welcome - Physicians, Researchers, Families and the general public!
Resgistration is FREE,but MANDATORY and limited to the number of seats available.. Register HERE.

We are looking forward to meeting you there!

6 Comments

Lara Fox

7/1/2021 06:22:20 pm

REAL URGENT EFFECTIVE SPELL CASTER TO HELP BRING BACK EX LOVER AND SAVE MARRIAGE : http://drjumbaspellhome.wordpress.com I recently saw a testimony about a spell caster in a blog I visit for relationship counseling problems because I had been having serious issues with my husband and we had been dating for six months, he just suddenly changed, he was returning my calls, he started cheating,he was hurting me in so many ways i never thought possible and I just thought I should try it maybe out of desperation ..and I contacted them. At first everything felt dreamy and unbelievable, their consultations and solution was a little bit easy and strange and I was scared a little cos I heard read and heard lots of stories of spell casters and I never really believed in spell ..I played along with a little hope and faith and I was sent some few stuffs after everything and it worked like a miracle, everything went to a whole new direction, I guess it was all good faith that made me read That particular post that fateful day. I hope they could help other people too like they did a little and I got everything I wanted and wished for my husband, my family and my life back their address is; wiccalovespelltools@gmail.com Call him or add him on WhatsApp via: +19085174108

luna

14/12/2022 11:53:42 am

Getting back my ex lover was never easy until I read good reviews about Dr Paul love spell portion. My Boyfriend left the house without a note or a word and never returned or replies to my text. I tried all possible means to reach out to him but nothing i was depressed and devastated because I and my lover had just a baby together. It became more horrible when I found out he was seeing another lady in our neighborhood. I tried many two online spell casters they couldn’t help me out until last month my colleague at work told me about Dr Paul love spell and I decided to give it a trial i contacted this love spell caster he told me what to do i did everything and he told me in less than 24 hours my lover will be back to me. Like a dream come true it worked for me and my lover texted me and returned home, no stress No side effects. I will want anyone here having relationship/marriage issues should contact Dr Paul now.
WhatsApp +234 802 699 3268
Email; doctorpaulpowerfultemple@gmail.com
https://www.youtube.com/shorts/4WMDIPARhyI

Crystal haynes

21/11/2021 01:04:17 am

Good day everyone,my name is Crystal I am here to testify about the doctor I meet online who help me in saving my marriage which has already collapse. I meet him online and his name is Dr AKHIGBE he told me not to worry about my husband that I should trust him that my husband is going to come back to me within 48hours which I did, now I am happy once again because my husband is here right beside me we are happy together again I want to say doctor God bless you abundantly amen. you can reach him via +2349021374574 or email him on drakhigbespellhome7@gmail.com. Thank you all, he said he also cure any kind of diseases you can reach him too for more details.

Gordon Rees

15/12/2021 11:52:37 pm

I am Gordon Rees by name and I work as a taxi driver. I love playing lottery but I have not won any huge sum except for a few Pounds. I decided to search online for help on how I can win very big because I have been playing lottery for the past 10 years. Then, I saw a post of a spell caster named Dr Amber who specializes in lottery spells. I contacted him and he told me everything about how to get the spell done for me and I agreed. He prepared a lottery spell for me and within 3 days, he gave me the numbers to play the lottery of which I did and after 2 days, I was told that I have won the sum of 1 million Pounds on the lottery game I played. I was surprised about it and I had to make sure I verified everything before believing that I was the winner of 1 million Pounds and ever since then, my life has changed and I am so happy living my dream life. If you need help to win your lottery game, WhatsApp or Call Dr Amber on: +1 (406) 646-2222 or email: amberlottotemple@yahoo.com

Wilson Fox

10/6/2022 01:51:41 am

I suffered from what they called peripheral artery disease (PAD). I have been suffering for years, Me and my wife searched for a medical cure, and then we came across a testimony of a man who suffered the same and was cured by Dr Chief Lucky. So my wife and I contacted Dr Chief Lucky via an email and thank God he replied. I explained what was wrong and he sent me herbal medicines that helped heal me completely. I am happy to say that herbal medicine is the ultimate and Dr Chief Lucky I am grateful. You can contact him on his email: chiefdrlucky@gmail.com or whatsapp: +2348132777335, Facebook page: http://facebook.com/chiefdrlucky or website: https://chiefdrlucky.com/. Dr Chief Lucky said that he also specializes in the following diseases: LUPUS, ALS, CANCER, HPV, HERPES, DIABETES, COPD, HEPATITIS B, HIV AIDS, And more.

Jessica Colbert

28/1/2023 01:34:26 pm

Contact Doctor Odunga at odungaspelltemple@gmail.com if you want to get your Husband, Wife, Boyfriend and Girlfriend back now and regain your happiness.

Hi, I am Jessica Colbert from the USA. I live in Wallins Creek, Kentucky. I have just experienced the wonders of Doctor Odunga love spell that have been spread on the internet and worldwide, How he marvelously helped people all over the world to restore their marriage life and get back lost lovers, and also help to win the lottery. I contacted him after going through so many testimonies from different people about how he helped to bring his ex lover back, i told him about my husband that abandoned me about 8 months ago, and left home with all I had.. Dr Odunga only told me to smile and have a rest of mind. He will handle it all in just 24 hours, After the second day my husband called me, i was just so shocked, i picked the call and couldn't believe my ears, he was really begging me to forgive him and making promises on the phone.. He came back home and also got me a new car just for him to prove his love for me. i was so happy and called Dr Odunga and thanked him, he only told me to share the good news all over the world. Well if your need an effective and real spell caster contact Dr Odunga Via email: odungaspelltemple@gmail.com OR Whats App +2348167159012

Workshop "Think Metabolic, Think CDG" an educational initiative to Celebrate #RareDiseaseDay

Leave a Reply.

Author

Archives

Categories