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Workshop "Think Metabolic, Think CDG" an educational initiative to Celebrate #RareDiseaseDay

30/1/2017

10 Comments

 
​"Think Metabolic, Think CDG" is a workshop organized by the Portuguese Association for CDG (APCDG) in collaboration with Centro Hospitalar Universitário de Coimbra. It will take place in Ordem dos Médicos, Coimbra, Portugal on 27th February 2017. This workshop aims to raise awareness for CDG, but also to join the celebrations of #RareDiseaseDay 2017.

This event will count with the presence of Prof Jaak Jaeken, the medical doctor who described CDG for the first time in 1980. Lectures among CDG diagnosis, CDG & Liver, CDG recognisable phenotypes and other themes of relevance for rare diseases in general will be presented at the workshop.

Everyone is welcome - Physicians, Researchers, Families and the general public!
Resgistration is FREE,but MANDATORY and limited to the number of seats available.. Register HERE.

We are looking forward to meeting you there!
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10 Comments
Lara Fox
7/1/2021 06:22:20 pm

REAL URGENT EFFECTIVE SPELL CASTER TO HELP BRING BACK EX LOVER AND SAVE MARRIAGE   :  http://drjumbaspellhome.wordpress.com I recently saw a testimony about a spell caster in a blog I visit for relationship counseling problems because I had been having serious issues with my husband and we had been dating for six months, he just suddenly changed, he was returning my calls, he started cheating,he was hurting me in so many ways i never thought possible and I just thought I should try it maybe out of desperation ..and I contacted them. At first everything felt dreamy and unbelievable, their consultations and solution was a little bit easy and strange and I was scared a little cos I heard read and heard lots of stories of spell casters and I never really believed in spell ..I played along with a little hope and faith and I was sent some few stuffs after everything and it worked like a miracle, everything went to a whole new direction, I guess it was all good faith that made me read That particular post that fateful day. I hope they could help other people too like they did a little and I got everything I wanted and wished for my husband, my family and my life back their address is; wiccalovespelltools@gmail.com  Call him or add him on WhatsApp via: +19085174108

Reply
luna
14/12/2022 11:53:42 am

Getting back my ex lover was never easy until I read good reviews about Dr Paul love spell portion. My Boyfriend left the house without a note or a word and never returned or replies to my text. I tried all possible means to reach out to him but nothing i was depressed and devastated because I and my lover had just a baby together. It became more horrible when I found out he was seeing another lady in our neighborhood. I tried many two online spell casters they couldn’t help me out until last month my colleague at work told me about Dr Paul love spell and I decided to give it a trial i contacted this love spell caster he told me what to do i did everything and he told me in less than 24 hours my lover will be back to me. Like a dream come true it worked for me and my lover texted me and returned home, no stress No side effects. I will want anyone here having relationship/marriage issues should contact Dr Paul now.
WhatsApp +234 802 699 3268
Email; doctorpaulpowerfultemple@gmail.com
https://www.youtube.com/shorts/4WMDIPARhyI

Reply
Crystal haynes
21/11/2021 01:04:17 am

Good day everyone,my name is Crystal I am here to testify about the doctor I meet online who help me in saving my marriage which has already collapse. I meet him online and his name is Dr AKHIGBE he told me not to worry about my husband that I should trust him that my husband is going to come back to me within 48hours which I did, now I am happy once again because my husband is here right beside me we are happy together again I want to say doctor God bless you abundantly amen. you can reach him via +2349021374574 or email him on  drakhigbespellhome7@gmail.com. Thank you all, he said he also cure any kind of diseases you can reach him too for more details.  

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Gordon Rees
15/12/2021 11:52:37 pm

I am Gordon Rees by name and I work as a taxi driver. I love playing lottery but I have not won any huge sum except for a few Pounds. I decided to search online for help on how I can win very big because I have been playing lottery for the past 10 years. Then, I saw a post of a spell caster named Dr Amber who specializes in lottery spells. I contacted him and he told me everything about how to get the spell done for me and I agreed. He prepared a lottery spell for me and within 3 days, he gave me the numbers to play the lottery of which I did and after 2 days, I was told that I have won the sum of 1 million Pounds on the lottery game I played. I was surprised about it and I had to make sure I verified everything before believing that I was the winner of 1 million Pounds and ever since then, my life has changed and I am so happy living my dream life. If you need help to win your lottery game, WhatsApp or Call Dr Amber on: +1 (406) 646-2222 or email: amberlottotemple@yahoo.com

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Wilson Fox
10/6/2022 01:51:41 am

I suffered from what they called peripheral artery disease (PAD). I have been suffering for years, Me and my wife searched for a medical cure, and then we came across a testimony of a man who suffered the same and was cured by Dr Chief Lucky. So my wife and I contacted Dr Chief Lucky via an email and thank God he replied. I explained what was wrong and he sent me herbal medicines that helped heal me completely. I am happy to say that herbal medicine is the ultimate and Dr Chief Lucky I am grateful. You can contact him on his email: chiefdrlucky@gmail.com or whatsapp: +2348132777335, Facebook page: http://facebook.com/chiefdrlucky or website: https://chiefdrlucky.com/. Dr Chief Lucky said that he also specializes in the following diseases: LUPUS, ALS, CANCER, HPV, HERPES, DIABETES, COPD, HEPATITIS B, HIV AIDS, And more.

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Jessica Colbert
28/1/2023 01:34:26 pm

Contact Doctor Odunga at odungaspelltemple@gmail.com if you want to get your Husband, Wife, Boyfriend and Girlfriend back now and regain your happiness.

Hi, I am Jessica Colbert from the USA. I live in Wallins Creek, Kentucky. I have just experienced the wonders of Doctor Odunga love spell that have been spread on the internet and worldwide, How he marvelously helped people all over the world to restore their marriage life and get back lost lovers, and also help to win the lottery. I contacted him after going through so many testimonies from different people about how he helped to bring his ex lover back, i told him about my husband that abandoned me about 8 months ago, and left home with all I had.. Dr Odunga only told me to smile and have a rest of mind. He will handle it all in just 24 hours, After the second day my husband called me, i was just so shocked, i picked the call and couldn't believe my ears, he was really begging me to forgive him and making promises on the phone.. He came back home and also got me a new car just for him to prove his love for me. i was so happy and called Dr Odunga and thanked him, he only told me to share the good news all over the world. Well if your need an effective and real spell caster contact Dr Odunga Via email: odungaspelltemple@gmail.com OR Whats App +2348167159012

Reply
Liliana Jose
10/2/2023 01:31:06 pm

Advice to save your marriage and get your Ex Boyfriend/girlfriend back ,contact drtrustspelltemple@gmail.com or WhatsApp +14242983869 for Urgent effective love Spell to get ex lover back or save you marriage fast and his result is 100% guaranteed.

I want to give thanks to Dr Trust for bringing back my ex husband. No one could have ever made me believe that the article I’m about to write would actually one day be written. I was the world’s biggest skeptic. I never believed in magic spells or anything like this, but I was told by a reliable source (a very close co-worker) that Trust is a very dedicated, gifted, and talented person, It was one of the best things I have ever done. My love life was in shambles, I had been through two divorces and was on the brink of a third. I just couldn't face another divorce, and I wanted to try harder to make our relationship work, but my husband didn’t seem to care. and he broke up with me again. I was confused and do not know what to do again, rather them to get in contact with Dr Trust. He did a love spell that made my husband come back to me. We are now very much happy with ourselves. Dr Trust makes him realize how much we love and need each other. This man is for REAL and for good, he can also help you to fix your broken relationship. I had my husband back! It was like a miracle! He suddenly wanted to go to marriage counseling, and we’re doing very, very well, in our love life. Contact

Email: drtrustspelltemple@gmail.com

WhatsApp: +14242983869

Facebook Page: https://facebook.com/trustspelltemple

Reply
Josie Wilson
12/2/2023 02:20:20 am


Get your ex Love back with the help of a real spell caster who saved my marriage.
I'm Josie Wilson from USA. I was at the verge of losing my marriage when Dr.Excellent stepped in and rescued me. My husband had filed for divorce after an unending dispute and emotional abuses we both suffered due to misunderstandings. He left the house and refused to come back. I sought for Dr.Excellent knowing I don’t wish to suffer another penury due to divorce cases and losing my man. I complied with his work procedures which was very easy and he worked for me. The love and connection between me and my partner was restored and he came back and got the divorce case canceled. It’s all for a fact that Dr.Excellent is honest and transparent in helping people and you too reading this can get the solution you seek in restoring joy and happiness in your marriage or relationship. contact Dr.Excellent for help now..Here his contact. WhatsApp: +2348084273514 ,Email: Excellentspellcaster@gmail.com
Website:https://drexcellentspellcaster.godaddysites.com

Reply
helen paul
15/3/2023 07:19:25 am



HAPPY TESTIMONY OF HOW I GOT BACK MY HUSBAND THIS 2023…
I seriously cannot hide the joy and happiness I feel inside of me right now, I have been having issues with my relationship for some time now, My husband left me 2 weeks ago after 38 years of marriage. He left for a girl Over 20 years younger than him, life was very hard for me emotionally but I kept praying and believing in god..
I came in contact with this great man of god called DR. BALBOSA and all the problems in my relationship were gone, he casted a natural love spell and he brought back my husband after 24 hours of contacting him…
I will forever be grateful to DR. BALBOSA for his help..
CONTACT HIM BELOW:
WEBSITE: https://balbosasolutionhome.com
WHATSAPP/CALL ☎️☎️☎️ +1(780) 628-5506
GMAIL: balbosasolutionhome@gmail.com
YAHOOMAIL: balbosasolutionhome@yahoo.com
bye..

Reply
Charlene Harris
19/5/2023 08:47:22 pm

WHEN LOOKING FOR A TRUSTWORTHY SPELL CASTER TO HELP YOU GET YOUR EX BACK, CONTACT DR ISIKOLO. HIS website (https://isikolotemple.com)
Good day everyone. It was really heavy on me when my boyfriend left me for another lady. I was emotionally wrecked and knew not what to do to get him back. I was in distress for months and kept on searching for help from everywhere till i got to know about DR ISIKOLO. I contacted him and explained my problems to him. He was willing to help me and urge me to comply with the procedures so that he can restore the love between me and my man and also ensure we were both back to each other again. I met all the requirements and he did his job. After 48 hours, i got a text from my boyfriend asking for a date so that we can trash things out. Now we are back together and all thanks to DR ISIKOLO. He can help you too if you are willing to believe and stay hopeful. Just email him via: isikolosolutionhome@gmail.com You can also WhatsApp him on +2348133261196.

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  • About US
    • What we do
    • Who we help >
      • Research
  • Resources
    • Rare CDG
    • Publications
    • Guia Metabolica
    • CDG Facts
    • Task Force CDG Communication >
      • PMM2-CDG (CDG Ia)
      • PGM1-CDG (CDG It)
      • ALG6-CDG (CDG Ic)
  • EDUCATION
  • Awareness
    • Get involved World CDG Awareness Day 2019 >
      • Go Social World CDG Awareness Day 19
      • Spread World CDG Awareness Day 19
      • Plan An Event World CDG Awareness Day 19
      • Frame your CDG Awareness Campaign 19
      • Go green! Think CDG! ©Campaign 19
      • Volunteer World CDG Awareness Day 19
      • Press kit World CDG Awareness Day 19
    • Map of events for World CDG Awareness Day 2019
    • CrowdCDG
    • Awareness Day 2018
    • Awareness Day 2017
    • Awareness Day 2016
    • Rare Diseases
  • Community
    • Join Us - Membership
    • CDG Patient Groups
    • Empowerment
  • Events
    • 1st CDG Satellite Meeting
    • Speakers - World Conference on CDG 2019
    • Registrations - World Conference on CDG 2019
    • Poster submission - World Conference on CDG 2019
    • Follow up - World Conference on CDG 19
    • Volunteer Registration - World Conference on CDG 2019
    • Previous Edition World Conference on CDG 2017 >
      • Follow up - World Conference on CDG 17
      • Speakers - World Conference on CDG 17
  • DONATE
  • BLOG