#RareDiseasesNews: EURORDIS - European Rare Diseases Organisationhas launched a new 5min-long survey for patients and families around the world to share their views on RESEARCH. You can contribute until October 26. Let's make the CDG Voice Heard, Let's identify our priorities as a Community! The survey is available in 23 languages!
Find it HERE
Write something about yourself. No need to be fancy, just an overview.