The Common Odessey of an Ultra-Rare Patient

7/4/2017

#RareDiseasesNews:Having an Ultra-Rare disease results is an extraordinarily COMMON odessey of doctor appointments, (mis)diagnosis, isolation & uncertainty. This is Archie, he has#GATAD2B, but this could be any Rare Patient's story

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Jason Bennett

27/10/2022 11:12:50 pm

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The Common Odessey of an Ultra-Rare Patient

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