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#RareDiseasesNews:Having an Ultra-Rare disease results is an extraordinarily COMMON odessey of doctor appointments, (mis)diagnosis, isolation & uncertainty. This is Archie, he has#GATAD2B, but this could be any Rare Patient's story Read it HERE 
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AuthorWrite something about yourself. No need to be fancy, just an overview. Archives
June 2017
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- About US
-
Research
- WP1 Executive Commitee
- WP2 CDG Diagnosis
- WP3 CDG Genetics
- WP4 Biology to guide CDG therapies >
- WP5 Systems Biology and Bioinformatics >
- WP6 Clinical & Therapeutic CDG research >
- WP7 CDG psychology and educational research >
- WP8 CDG Lobby and Representation >
- WP9 Communication & Dissemination >
- WP10 Donations and funds
- WP11 Collaborations & Open positions
- WP12 Advisory committee
- Resources
- EDUCATION
-
Awareness
- Community
- Events
- DONATE
- BLOG
