APCDG - Congenital Disorders of Glycosylation
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SSIEM Rome 2016: Maria's Report

22/9/2016

1 Comment

 
Picture
The Society for the Study of Inborn Errors of Metabolism (SSIEM) is a widely renowned and respected, worldwide, entity in the field of ​inherited metabolic disorders and related topics. It promotes knowledge and exhange of ideas and views among different and diverse professionals.

This year's annual meeting was held in Rome. Both CDG and APCDG were represented in the meeting!
There was a number of interesting talks by important physicians and researchers on different CDG-related topics.
Our Volunteer Maria Monticelli had the opportunity to be present, witness the talks as well as to represent the CDG community (APCDG had a booth, where information about CDG was available). Moreover, the most recent CDG&Allies-PPAIN research work 
“Liver involvement in Congenital Disorders of Glycosylation – Literature review” was accepted and exposed as a scientific poster.

Based on what Maria saw, learned and did at SSIEM Rome 2016, she wrote a report, so that the entire CDG community and the general public could have access to the information and knowledge that were exchanged during this relevant scientific gathering.

​Thank you Maria!

Download the document below!.

summary_ssiem_mmonticelli.pdf
File Size: 344 kb
File Type: pdf
Download File

1 Comment
Wilson Fox
10/6/2022 01:23:30 am

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  • About US
    • What we do
    • Who we help >
      • Research
  • Resources
    • Rare CDG
    • Publications
    • Guia Metabolica
    • CDG Facts
    • Task Force CDG Communication >
      • PMM2-CDG (CDG Ia)
      • PGM1-CDG (CDG It)
      • ALG6-CDG (CDG Ic)
  • EDUCATION
  • Awareness
    • Get involved World CDG Awareness Day 2019 >
      • Go Social World CDG Awareness Day 19
      • Spread World CDG Awareness Day 19
      • Plan An Event World CDG Awareness Day 19
      • Frame your CDG Awareness Campaign 19
      • Go green! Think CDG! ©Campaign 19
      • Volunteer World CDG Awareness Day 19
      • Press kit World CDG Awareness Day 19
    • Map of events for World CDG Awareness Day 2019
    • CrowdCDG
    • Awareness Day 2018
    • Awareness Day 2017
    • Awareness Day 2016
    • Rare Diseases
  • Community
    • Join Us - Membership
    • CDG Patient Groups
    • Empowerment
  • Events
    • 1st CDG Satellite Meeting
    • Speakers - World Conference on CDG 2019
    • Registrations - World Conference on CDG 2019
    • Poster submission - World Conference on CDG 2019
    • Follow up - World Conference on CDG 19
    • Volunteer Registration - World Conference on CDG 2019
    • Previous Edition World Conference on CDG 2017 >
      • Follow up - World Conference on CDG 17
      • Speakers - World Conference on CDG 17
  • DONATE
  • BLOG