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#RareDiseasesNews:Thanks to patients, families & patient associations all Spinal Muscular Dystrophy #SMA patients in the UK will receive the newly approved therapy Spinraza! Another example of how #Advocacy can make a difference, but also a reminder of the high costs and difficult accessibility to #OrphanDrugs. #KeepFighting Know more about this HERE 
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19/9/2021 09:49:44 am
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19/8/2021 05:38:15 pm
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