﻿#RAREvolution petition

#RAREvolution petition

22/9/2016

Sign the #RAREvolution petition !
Its aim is to increase awareness and support for research into RARE Diseases worldwide!
Their listed policies changes include:

Increase allocation of resources
Promote a multi-disciplinary and coordinated approach
Adopt specific incentives policies
Leverage existing knowledge and optimize the use of existing drugs
Widen health economics criteria in considering the cost-effectiveness of RDs research
Adopt appropriate and internationally recognized rare disease classification systems
Invest in innovative diagnostic methods of rare diseases to enable early intervention
Set criteria for ante-natal and newborn screening and ethical controls
Recognize the expanding role of patient groups in contributing to develop and foster knowledge and awareness on rare diseases, and include patients at all levels in the development of policies, research agenda and protocols for specific rare diseases

Show you care, sign NOW at http://chn.ge/2cqyEC7

1 Comment

Wilson Fox

10/6/2022 01:23:43 am

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