The Rare Barometer initiative by EURORDIS has created a survey to assess the daily quality of life of people liviing with Rare Disease. It is a pionneer project with tremendous potencial and with great impact and importance.
But, for it to become even more relevant YOU need to participate! Your views are important and should be taken into account! YOU matter! YOU are RARE and an expert of the condition that affects you or your family member!
The survey is available in 23 languages.
Let your voice be heard at www.eurordis.org/voices
Share this message using #RareBarometer!
Write something about yourself. No need to be fancy, just an overview.