APCDG - Congenital Disorders of Glycosylation
  • About US
    • What we do
    • Who we help
  • Research
  • Resources
    • Rare CDG
    • Publications
    • Guia Metabolica
    • CDG Facts
    • Task Force CDG Communication >
      • ALG1-CDG (CDG Ik)
      • PMM2-CDG (CDG Ia)
      • PGM1-CDG (CDG It)
      • ALG6-CDG (CDG Ic)
  • EDUCATION
  • Awareness
    • Get involved World CDG Awareness Day 2018 >
      • Go Social World CDG Awareness Day
      • Spread World CDG Awareness Day
      • Plan An Event World CDG Awareness Day
      • Frame your CDG Awareness Campaign
      • Go green! Think CDG! ©Campaign
      • Volunteer World CDG Awareness Day
      • Press kit World CDG Awareness Day
    • Map of events for World CDG Awareness Day 2018
    • CrowdCDG
    • Awareness Day 2017
    • Awareness Day 2016
    • Rare Diseases
  • Community
    • Join Us - Membership
    • CDG Patient Groups
    • Empowerment
  • Events
    • Speakers - World Conference on CDG
    • Registrations - World Conference on CDG
    • Follow up - World Conference on CDG
  • DONATE
  • BLOG
  • New Page

Orphan Drugs' Access: The Aussies set the example!

30/6/2017

0 Comments

 
#RareDiseasesNews: Easier, cheaper, faster access to #OrphanDrugs is needed!
The Aussies are giving the world a wonderful example 
#MorquioSyndrome #LifeSavingDrugsProgram
Read the full article HERE 
Picture
0 Comments



Leave a Reply.

    Author

    Write something about yourself. No need to be fancy, just an overview.

    Archives

    May 2018
    November 2017
    October 2017
    September 2017
    August 2017
    July 2017
    June 2017
    May 2017
    April 2017
    March 2017
    February 2017
    January 2017
    December 2016
    November 2016
    October 2016
    September 2016
    July 2016
    June 2016
    May 2016
    April 2016
    March 2016
    December 2015
    October 2015
    September 2015
    February 2015

    Categories

    All
    Press Release

    RSS Feed

Imagem


ABOUT US  |  RESEARCH  |  RESOURCES  |  EDUCATION  |  AWARENESS  |  COMMUNITY  |  EVENTS  |  DONATE  |  BLOG 
©2015 Portuguese Association for CDG and other Rare Metabolic Diseases (APCDG-DMR)
Contact us: sindromecdg@gmail.com
  • About US
    • What we do
    • Who we help
  • Research
  • Resources
    • Rare CDG
    • Publications
    • Guia Metabolica
    • CDG Facts
    • Task Force CDG Communication >
      • ALG1-CDG (CDG Ik)
      • PMM2-CDG (CDG Ia)
      • PGM1-CDG (CDG It)
      • ALG6-CDG (CDG Ic)
  • EDUCATION
  • Awareness
    • Get involved World CDG Awareness Day 2018 >
      • Go Social World CDG Awareness Day
      • Spread World CDG Awareness Day
      • Plan An Event World CDG Awareness Day
      • Frame your CDG Awareness Campaign
      • Go green! Think CDG! ©Campaign
      • Volunteer World CDG Awareness Day
      • Press kit World CDG Awareness Day
    • Map of events for World CDG Awareness Day 2018
    • CrowdCDG
    • Awareness Day 2017
    • Awareness Day 2016
    • Rare Diseases
  • Community
    • Join Us - Membership
    • CDG Patient Groups
    • Empowerment
  • Events
    • Speakers - World Conference on CDG
    • Registrations - World Conference on CDG
    • Follow up - World Conference on CDG
  • DONATE
  • BLOG
  • New Page