APCDG - Congenital Disorders of Glycosylation
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May is Williams Syndrome Awareness Month

9/5/2017

2 Comments

 
#RareDiseasesNews: May is Williams Syndrome Awareness Month and May 16th is Congenital Disorders of Glycosylation Awareness Day!
If the #RareDiseaseCommunity unites and helps each other raise awareness for their condition we will ALL make our voices more effectively heard!!! #WilliamsSyndrome #CDG 
Know more about Williams Syndorme HERE 
Picture
2 Comments
Lilly Macclesfield
11/11/2020 08:56:47 am

What a fantastic initiative in raising awareness about williams syndrome https://fdna.health/syndromes/williams-beuren/. I look forward to finding ways to support this when May comes around again.

Reply
Daniel link
25/11/2020 11:59:28 am

How things will change now with Covid? Is awareness month will be on Zoom?

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  • About US
    • What we do
    • Who we help >
      • Research
  • Resources
    • Rare CDG
    • Publications
    • Guia Metabolica
    • CDG Facts
    • Task Force CDG Communication >
      • PMM2-CDG (CDG Ia)
      • PGM1-CDG (CDG It)
      • ALG6-CDG (CDG Ic)
  • EDUCATION
  • Awareness
    • Get involved World CDG Awareness Day 2019 >
      • Go Social World CDG Awareness Day 19
      • Spread World CDG Awareness Day 19
      • Plan An Event World CDG Awareness Day 19
      • Frame your CDG Awareness Campaign 19
      • Go green! Think CDG! ©Campaign 19
      • Volunteer World CDG Awareness Day 19
      • Press kit World CDG Awareness Day 19
    • Map of events for World CDG Awareness Day 2019
    • CrowdCDG
    • Awareness Day 2018
    • Awareness Day 2017
    • Awareness Day 2016
    • Rare Diseases
  • Community
    • Join Us - Membership
    • CDG Patient Groups
    • Empowerment
  • Events
    • 1st CDG Satellite Meeting
    • Speakers - World Conference on CDG 2019
    • Registrations - World Conference on CDG 2019
    • Poster submission - World Conference on CDG 2019
    • Follow up - World Conference on CDG 19
    • Volunteer Registration - World Conference on CDG 2019
    • Previous Edition World Conference on CDG 2017 >
      • Follow up - World Conference on CDG 17
      • Speakers - World Conference on CDG 17
  • DONATE
  • BLOG