"Nothing about Us,without Us!"
The “Letter for Public Participation in Health" is an initiative of the portuguese civil society that reinforces participatory democracy in Portugal.
This iniciative has been signed and suported by 72 patient associations and by several important characters in the portuguese panorama. The “Letter for Public Participation in Health" aims to fill an exisitng gap by bringing the patient to the centre of medical decisions.
In RARE Diseases, such as CDG, patient and families are the true experts, thus it is very important to give them the Voice they deserve and need.
For a fairer, high quality heath system for ALL and made by ALL. Sign the petition for OUR Health!#MaisParticipaçaoMelhorSaúde http://bit.ly/2etCPLv
Write something about yourself. No need to be fancy, just an overview.