Part of research done on rare diseases, is supported by families initiatives. Here, you can read a nice idea coming from kids that embraced the idea to support research! " Right now, only 5 percent of rare disorders have an FDA approved treatment." said Robyn Nebrich-Duda, assistant director of development for the TGen Foundation. Initiatives like this one can make a difference in families lives! Read more at http://www.bizjournals.com/phoenix/blog/health-care-daily/2016/03/kid-philanthropists-raise-money-for-rare-disease.html
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