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On #RareDiseaseDay, or any other day, do not forget Ultra-Rare Diseases! A plead voices by one Rare Mom and Advocate, but felt by many, many ultra-rare families! Share this message #Canavandisease #CDG Read the full article HERE 
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Research
- WP1 Executive Commitee
- WP2 CDG Diagnosis
- WP3 CDG Genetics
- WP4 Biology to guide CDG therapies >
- WP5 Systems Biology and Bioinformatics >
- WP6 Clinical & Therapeutic CDG research >
- WP7 CDG psychology and educational research >
- WP8 CDG Lobby and Representation >
- WP9 Communication & Dissemination >
- WP10 Donations and funds
- WP11 Collaborations & Open positions
- WP12 Advisory committee
- Resources
- EDUCATION
-
Awareness
- Community
- Events
- DONATE
- BLOG
