CROWDCDG - Fundraising campaign for Congenital Disorders of Glycosylation (CDG) Immunology Research - APCDG

CROWDCDG - Fundraising campaign for Congenital Disorders of Glycosylation (CDG) Immunology Research

16/5/2018

The Portuguese Association for CDG (APCDG) and CDG&Allies–Patients and Professionals Association International Network (PPAIN) are determined to raise funds to foment CDG research, the key to improve diagnosis, management and find therapies for such a group of rare diseases.

CDG are a family of rare metabolic diseases with more than 130 types identified and a wide and severe clinical spectrum. The majority of CDG still do not have a cure and targeted therapies are scarce. Although the immune system is often affected, and high child mortality numbers are due to severe and recurrent infections, CDG Immunology is still an unknown and unexplored field.

In line with the activities of the 16th May World CDG Awareness day, APCDG is launching a new fundraising movement and appealing to all community to join us in facing this urgent unmet need.

‘APCDG and CDG&Allies-PPAIN are devoted to accelerate research for all CDG types in an holistic manner. There is a high sense of urgency in the immunological knowledge for CDG because if we learn more about this area, it can really save lives and improve patients’ and family members’ life quality! The importance is clearly seen by the fact that other CDG patient groups are making a joint effort with us to address this and support this project financially. We are globally united to help CDG children and adults!’, said Rosalia Felix, mom to a CDG patient and APCDG founder and vice-president.

For the past 2 years, CDG&Allies-PPAIN invested in research to unravel immunological involvement in CDG (WG CDG & Glycoimmunology) after identifying the lack of knowledge in this area as one of the biggest needs from the patient perspective.

‘We witnessed that immune symptoms are extremely worrying for CDG families because each infection puts their kids in danger. Glycans and the immune response are interrelated influencing the function of every cell and system in our body. The more we investigate, create and share scientific knowledge, the more we contribute to the development of better and precise therapies to treat our patients’ explained Paula Videira, CDG&Allies–PPAIN director and Glycoimmunology Group Leader.

The fundraising campaign for the Immunology Project will be active from May 16th until May 31th and we encourage everyone that wish to be involved to visit, watch the video and donate HERE.

If you wish to obtain more information, do not hesitate to contact sindromecdg@gmail.com.

18 Comments

leo valsa

25/7/2018 06:22:57 am

I have been suffering from (HERPES) disease for the past 13 months and had constant pain, especially in my knees. During the first month , I had faith in God that I would be healed someday.This disease started to circulate all over my body and I have been taking treatment from my doctor, a few weeks ago I came on search on the internet if I could get any information concerning the prevention of this disease, on my search I saw a testimony of someone who has been healed from (Hepatitis B and Cancer) by this Man DR ABAKA and she also gave the email address of this man and advise we should contact him for any sickness that he would be of help, so I wrote to DR ABAKA telling him about my (HERPES Virus) he told me not to worry that I was going to be cured!! hmm i never believed it,, well after all the procedures and remedy given to me by this man few weeks later I started experiencing changes all over me as the DR assured me that I have cured, after 2 weeks i went to my doctor to confirmed if I have been finally healed behold it was TRUE, So friends my advice is if you have such sickness or any other like HSV1,2,HPV1,2,3,CANSER HIV,COLE SORES,TOOTH AKEA, ETC you can email DR ABAKA on drabakaspelltemple@gmail.com sir I am indeed grateful for the help I will forever recommend you to my friends!!! with your lovely Email Address or you can also phone/Whats App him on this number +2349063230051.

kaith leonard

8/6/2020 04:16:18 pm

I NEED A EFFECTIVE AND POWERFUL LOVE SPELL CASTER AND LOTTERY SPELL 2020 WICCALOVESPELLTOOLS@GMAIL.COM OR WHATSAPP HIM :+19085174108
With so much in my heart i am here to express myself on how Dr. jumba saved my marriage from divorce. Myself and my husband were having some misunderstanding and it was tearing our marriage apart to the extent my husband was seeking a divorce. So I have no option than to go to the internet to seek a solution to my problem. It was there I came across Dr. Jumba details and about how he has helped a lot of people by restoring their relationship. I contacted Dr.jumba and in less than 48 hours my husband cancelled the divorce papers. Now myself and my husband live together in peace and harmony all thanks to Dr.jumba for saving my marriage from breaking up. Dr. jumba contact information are via email: wiccalovespelltools@yahoo.com or wiccalovespelltools@gmail.com, text or call him +19085174108

I highly recommend his services. website : http://wiccalovespelltools.website2.me/
blogspot created by me for dr jumba, to thank him for restoring happiness back to my relationship : https://wiccalovespelltols.blogspot.com/

Sharon Wayne

4/11/2020 09:28:57 pm

I want to thank Dr Emu a very powerful spell caster who help me to bring my husband back to me, few month ago i have a serious problem with my husband, to the extend that he left the house, and he started dating another woman and he stayed with the woman, i tried all i can to bring him back, but all my effort was useless until the day my friend came to my house and i told her every thing that had happened between me and my husband, then she told me of a powerful spell caster who help her when she was in the same problem I then contact Dr Emu and told him every thing and he told me not to worry my self again that my husband will come back to me after he has cast a spell on him, i thought it was a joke, after he had finish casting the spell, he told me that he had just finish casting the spell, to my greatest surprise within 48 hours, my husband really came back begging me to forgive him, if you need his help you can contact him with via email: Emutemple@gmail.com or add him up on his whatsapp +2347012841542 is willing to help any body that need his help.

deja merald

26/4/2021 02:02:43 pm

Its a real miracle Till today i still imagine how dr 0love brought back my man after he had vowed never to set his eyes on me again. he had even set the date for his wedding with another woman before i contacted dr 0love.
He told me to leave everything to him because i told him if the wedding takes place i would commit suicide.
After he cast the spell for me my man came back to me and said he wants to still marry on that date and the woman he wants is me and am so happy to announce that our wedding is coming up in 2 weeks time and i am still in contact with dr 0love till date because he is a very powerful man and a man to be trusted. CONTACT DR 0LOVE ON email: doctor0lovespell@gmail.com OR whatsapp him on: +1 (201) 781-2375 You can also visit his FB page: https://www.facebook.com/Lovespellthatworkfastusa or view his website: ttps://doctor0lovespell.wordpress.com/

Its a real miracle Till today i still imagine how dr 0love brought back my man after he had vowed never to set his eyes on me again. he had even set the date for his wedding with another woman before i contacted dr 0love.
He told me to leave everything to him because i told him if the wedding takes place i would commit suicide.
After he cast the spell for me my man came back to me and said he wants to still marry on that date and the woman he wants is me and am so happy to announce that our wedding is coming up in 2 weeks time and i am still in contact with dr 0love till date because he is a very powerful man and a man to be trusted. CONTACT DR 0LOVE ON email: doctor0lovespell@gmail.com OR whatsapp him on: +1 (201) 781-2375 You can also visit his FB page: https://www.facebook.com/Lovespellthatworkfastusa or view his website: ttps://doctor0lovespell.wordpress.com/

Deebra Jones

4/4/2019 05:09:09 pm

Am very happy to tell everyone to hear my testimony will say. am from united state,am a nurse,this story of my love life.I have been married for 4years and on the fifth year of my marriage, another woman had to take my lover away from me and my husband left me and the kids and we have suffered for 2years until i met a post where this man Dr. Udebhulu
have helped someone and i decided to give him a try to help me bring my lover back home and believe me i just send my picture to him and that of my husband and after 48hours as he have told me, i saw a car drove into the house and behold it was my husband and he have come to me and the kids and that is why i am happy to make every one of you in similar problems to meet with this powerful man and have your lover back to your self.You can contact him with this email address {shomorikasolutiontemple@yahoo.com or shomorikasolutiontemple@hotmail.com} Thank you Dr Udebhulu. I am sure he will do same to help you

Mary Counts

22/8/2020 09:30:41 am

I can’t believe this. A great testimony that i must share to all HERPES SIMPLEX VIRUS patient in the world i never believed that their could be any complete cure for Herpes or any cure for herpes,i saw people’s testimony on blog sites of how Dr Wealthy prepare herbal medicine that cure and brought them back to life again. i had to try it too and you can,t believe that in just few weeks i started using it all my pains stop gradually and i had to leave without the pills the doctor gave to me. Right now i can tell you that few months now i have not had any pain,delay in treatment leads to death. Here is his email:(wealthylovespell@gmail.com) whatsapp him with +2348105150446 visit blog http://wealthyspellhome.over-blog.com

Mike rose?

15/12/2020 07:45:37 am

I want to let the world know about Doctor AKHERE the Great spell caster that brought back my husband to me when i thought all hope was lost. Doctor AKHERE used his powerful spell to put a smile on my face by bringing back my man with his spell, at first i thought i was dreaming when my husband came back to me on his knees begging me to forgive him and accept him back and even since then he loves me more than i ever expected so i made a vow to my self the i will let the World know about Doctor AKHERE because he is a God on earth. Do you have problems in your relationship ? have your partner broke up with you and you still love and want him back ? Do you have problem with your finance ? or do you need help of any kind then contact Doctor AKHERE today for i give you 100% guarantee that he will help you just as he helped me. Doctor AKHERE email is: AKHERETEMPLE@gmail.com or
call/whatsapp:+2349057261346

Lara Fox

7/1/2021 06:19:11 pm

REAL URGENT EFFECTIVE SPELL CASTER TO HELP BRING BACK EX LOVER AND SAVE MARRIAGE : http://drjumbaspellhome.wordpress.com I recently saw a testimony about a spell caster in a blog I visit for relationship counseling problems because I had been having serious issues with my husband and we had been dating for six months, he just suddenly changed, he was returning my calls, he started cheating,he was hurting me in so many ways i never thought possible and I just thought I should try it maybe out of desperation ..and I contacted them. At first everything felt dreamy and unbelievable, their consultations and solution was a little bit easy and strange and I was scared a little cos I heard read and heard lots of stories of spell casters and I never really believed in spell ..I played along with a little hope and faith and I was sent some few stuffs after everything and it worked like a miracle, everything went to a whole new direction, I guess it was all good faith that made me read That particular post that fateful day. I hope they could help other people too like they did a little and I got everything I wanted and wished for my husband, my family and my life back their address is; wiccalovespelltools@gmail.com Call him or add him on WhatsApp via: +19085174108

Aaron Jeremy

14/1/2021 02:50:07 pm

CHIEF DR LUCKY HERBAL THERAPY
Thank you very much for curing my Human Papillomavirus (HPV) totally. You are really a Godsent, I promise you that I will always recommend you. and to share your testimony to people. Contact him now thanks all.
CHIEF DR LUCKY HERBAL THERAPY CAN AS WELL CURE THE FOLLOWING VIRUSES :-
1: HIV/AIDS
2: HSV
3: LUPUS
4: ALS
5: HEPATITIS B
6: DIABETES
7: HUMAN PAPILLOMAVIRUS (HPV)
8: CANCER
9: PAD
10: PENIS ENLARGEMENT
11: THYROID ETC..
WhatsApp him on +2348132777335 or email (chiefdrlucky@gmail.com).
Website: https://chiefdrluckyherbaltherapy.wordpress.com/

Julie Andrew

24/1/2021 10:45:04 pm

HOW I GOT BACK MY MAN WITHIN 24 HOURS WITH THE HELP OF DR JUMBA +1 908 517 4108 ..

I want to let the world know about Dr. Jumba, the Great spell caster that brought back my husband to me when I thought all hope was lost. Dr,Jumba used his powerful spell to put a smile on my face by bringing back my man with his spell, at first i thought i was dreaming when my husband came back to me on his knees begging me to forgive him and accept him back and ever since then he loves me more than i ever expected so i made a vow to myself that i will let the World know about Dr, Jumba because he is a God on earth. Do you have problems in your relationship ? Has your partner broke up with you and you still love and want him back ? Do you have problems with your marriage ? or do you need help of any kind then contact Dr, Jumba today for i give you 100% guarantee that he will help you just as he helped me. Dr, Jumba email is: wiccalovespelltools@gmail.com OR whatsapp via: +19085174108

DR JUMBA WEBSITE : http://drjumbaspellhome.wordpress.com

juwan james

14/3/2021 07:49:38 pm

Hello everyone. Dr Ishiaku herbs is a good remedy for herpes Virus , I was a carrier of herpes virus and I saw a testimony on how Dr. Ishiaku cure Herpes Virus, I decided to contact him, I contacted him and he guided me. I asked him for solutions and he started the remedies for my health. After he finish he sent me the herbs which i took for 2 weeks before asking me to go for a check up and getting there i could not believe that i was confirm HSV 2 Negative after the test, Today i am so happy because i'm free from herpes disease with the help of Dr. Ishiaku . Thank God now everything is fine, I'm cured by Dr. Ishiaku herbal medicine, I'm very thankful to God for making it possible. you can reach him on his email, i strongly recommend him to any one out here looking for a cure to herpes or any other deadly disease...Contact Dr ishiaku via email: ishiakuherbalcure@yahoo.com or whatsapp +2348180828544

tracy wright

17/3/2021 06:59:39 am

MY REVIEWS ABOUT DR JUMBA THE BEST WORLD WIDE ONLINE REAL SPELLCASTER.
words can not describe how happy I felt after finding your website for the past few months, I have been so depressed after losing my fiance to another woman who had a spell on him. My money situation worsened so much that I thought I’d have to file for bankruptcy. I had a huge amount of debt and I didn’t know what to do. Out of complete and total desperation, I contacted many of those so-called individuals who promised powerful magic, witchcraft or black magic. None of them worked and none were as wonderful, affectionate and warm as Dr. Jumba has been. He is definitely different from the others and I felt immediate hope and strength from hearing about the promises he had to offer. He carries an air of purity and divine strength that is as pure as fresh snow on the ground. I requested Dr. Jumba Most powerful spells and I was relieved right away within 24hours that I had someone to solve my problems for me. His spells worked wonders and I am now back with my fiance and my money troubles resolved itself after winning the lottery. I have no idea what I would have done without you being there to help me out: thanks so much dr Jumba. . here is his contact details Email: wiccalovespelltools@gmail.com Call & Whatsapp+19085174108
website : https://drjumbaspellhome.wordpress.com

Rose

27/3/2021 02:46:13 am

I am very happy today with my family. My name is rose sarah living in USA, My husband left me for a good 3 years now, and i love him so much, i have been looking for a way to get him back since then. i have tried many options but he did not come back, until i met a friend that darted me to Dr.Moses a spell caster, who helped me to bring back my husband after 2 weeks. Me and my husband are living happily together today, That man is great, you can contact him Now i will advice any serious persons that found themselves in this kind of problem to contact him now a fast solution without stress.. He always hello, now i call him my father. Contact him now he is always online Drmosesspellcaster@gmail.com email or contact him on his WhatsApp mobile line +2348033690591

26/4/2021 02:04:33 pm

Amelia

1/5/2021 11:53:50 pm

Hi, good day everyone!
I am so proud and happy to be out here sharing Dr. Okosisi work. My ex Husband is really back to me on his knees presenting a ruby rose to beg me to take him back and he was feeling regretful and sorry for leaving me and for causing me pains after the divorce which occurred last year. And this whole miracle happened within 48 hours of Contacting the Great Love Psychic. I am the happiest woman today in this whole wide world. Dr. Okosisi, you really did it..Yes.. It's a miracle and everlasting pleasure and cheerfulness for me and my family today. I am so happy now and I don't know how much to convey my thankfulness and appreciation to you sir. To the whole world, contact him if you need urgent help to get your Ex back or if you wanna fix your broken relationship. Dr. Okosisi spells are guaranteed and effective.

Email: Spellservicetemple@gmail.com

website: https://spellservicetemple.com/

Whatsapp number: +1 770-200-5468

Amelia, from the USA!!

1/5/2021 11:54:38 pm

Brittany Seiber

24/5/2021 05:39:09 am

To know more about Chief Dr Lucky you can visit his website (https://chiefdrluckyherbaltherapy.wordpress.com/)

A friend that suffered from Herpes and was cure with the help of this great herbal doctor Chief Lucky so i decided to contact him for help in getting rid of my families genital herpes virus 1/2 which i did and all i was told to provide was just some useful information and some materials used in preparation of the natural cure and that i did and now i am the happiest person on earth because i am writing this testimony of mine with joy and happiness in my heart to the whole world to know that natural remedy is real because i am a living testimony of Chief Lucky traditional herbal cure and i want you all to contact Chief Lucky via his email: chiefdrlucky@gmail.com or WhatsApp him +2348132777335 am sure he will help you too.

Caillo Lisa

5/6/2021 02:29:07 pm

This is another testimony on how Chief Dr Lucky cured my HIV disease. Do you need a cure for your HIV disease? Do you want to be cured from your cancer disease? Or you want to be free from any type of disease. Kindly visit his website https://chiefdrluckyherbaltherapy.wordpress.com/ , he just cured my HIV disease and I’m very grateful to him, he is the only herbalist that can cure you.
WhatsApp number : +2348132777335
Via Email : chiefdrlucky@gmail.com
Thank you all for reading,
God bless"

CROWDCDG - Fundraising campaign for Congenital Disorders of Glycosylation (CDG) Immunology Research

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