CROWDCDG - Fundraising campaign for Congenital Disorders of Glycosylation (CDG) Immunology Research16/5/2018 The Portuguese Association for CDG (APCDG) and CDG&Allies–Patients and Professionals Association International Network (PPAIN) are determined to raise funds to foment CDG research, the key to improve diagnosis, management and find therapies for such a group of rare diseases. CDG are a family of rare metabolic diseases with more than 130 types identified and a wide and severe clinical spectrum. The majority of CDG still do not have a cure and targeted therapies are scarce. Although the immune system is often affected, and high child mortality numbers are due to severe and recurrent infections, CDG Immunology is still an unknown and unexplored field. In line with the activities of the 16th May World CDG Awareness day, APCDG is launching a new fundraising movement and appealing to all community to join us in facing this urgent unmet need. ‘APCDG and CDG&Allies-PPAIN are devoted to accelerate research for all CDG types in an holistic manner. There is a high sense of urgency in the immunological knowledge for CDG because if we learn more about this area, it can really save lives and improve patients’ and family members’ life quality! The importance is clearly seen by the fact that other CDG patient groups are making a joint effort with us to address this and support this project financially. We are globally united to help CDG children and adults!’, said Rosalia Felix, mom to a CDG patient and APCDG founder and vice-president. For the past 2 years, CDG&Allies-PPAIN invested in research to unravel immunological involvement in CDG (WG CDG & Glycoimmunology) after identifying the lack of knowledge in this area as one of the biggest needs from the patient perspective. ‘We witnessed that immune symptoms are extremely worrying for CDG families because each infection puts their kids in danger. Glycans and the immune response are interrelated influencing the function of every cell and system in our body. The more we investigate, create and share scientific knowledge, the more we contribute to the development of better and precise therapies to treat our patients’ explained Paula Videira, CDG&Allies–PPAIN director and Glycoimmunology Group Leader. The fundraising campaign for the Immunology Project will be active from May 16th until May 31th and we encourage everyone that wish to be involved to visit, watch the video and donate HERE. If you wish to obtain more information, do not hesitate to contact sindromecdg@gmail.com.
31 Comments
leo valsa
25/7/2018 06:22:57 am
I have been suffering from (HERPES) disease for the past 13 months and had constant pain, especially in my knees. During the first month , I had faith in God that I would be healed someday.This disease started to circulate all over my body and I have been taking treatment from my doctor, a few weeks ago I came on search on the internet if I could get any information concerning the prevention of this disease, on my search I saw a testimony of someone who has been healed from (Hepatitis B and Cancer) by this Man DR ABAKA and she also gave the email address of this man and advise we should contact him for any sickness that he would be of help, so I wrote to DR ABAKA telling him about my (HERPES Virus) he told me not to worry that I was going to be cured!! hmm i never believed it,, well after all the procedures and remedy given to me by this man few weeks later I started experiencing changes all over me as the DR assured me that I have cured, after 2 weeks i went to my doctor to confirmed if I have been finally healed behold it was TRUE, So friends my advice is if you have such sickness or any other like HSV1,2,HPV1,2,3,CANSER HIV,COLE SORES,TOOTH AKEA, ETC you can email DR ABAKA on drabakaspelltemple@gmail.com sir I am indeed grateful for the help I will forever recommend you to my friends!!! with your lovely Email Address or you can also phone/Whats App him on this number +2349063230051.
kaith leonard
8/6/2020 04:16:18 pm
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Sharon Wayne
4/11/2020 09:28:57 pm
I want to thank Dr Emu a very powerful spell caster who help me to bring my husband back to me, few month ago i have a serious problem with my husband, to the extend that he left the house, and he started dating another woman and he stayed with the woman, i tried all i can to bring him back, but all my effort was useless until the day my friend came to my house and i told her every thing that had happened between me and my husband, then she told me of a powerful spell caster who help her when she was in the same problem I then contact Dr Emu and told him every thing and he told me not to worry my self again that my husband will come back to me after he has cast a spell on him, i thought it was a joke, after he had finish casting the spell, he told me that he had just finish casting the spell, to my greatest surprise within 48 hours, my husband really came back begging me to forgive him, if you need his help you can contact him with via email: Emutemple@gmail.com or add him up on his whatsapp +2347012841542 is willing to help any body that need his help.
deja merald
26/4/2021 02:02:43 pm
Its a real miracle Till today i still imagine how dr 0love brought back my man after he had vowed never to set his eyes on me again. he had even set the date for his wedding with another woman before i contacted dr 0love.
patrecia
20/8/2021 10:07:41 pm
All thanks to dr.Ekpen powerful spiritual man who helped me to get my Ex back. I thought all hope was lost my husband left me and my three kids to other woman for seven years i go through pain those years no one could help me not until i come across a comment on how Dr. Ekpen help a lot of people i contacted dr i spork with dr. told me i have nothing to worry about that my husband will be back to me in the space of 14 working days this how i got my Ex back, contact Dr.Ekpen Email : doctorekpen222@gmail.com or : +2348102454875 or add up on whatsapp
Big Bull
18/11/2022 09:02:22 pm
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Deebra Jones
4/4/2019 05:09:09 pm
Am very happy to tell everyone to hear my testimony will say. am from united state,am a nurse,this story of my love life.I have been married for 4years and on the fifth year of my marriage, another woman had to take my lover away from me and my husband left me and the kids and we have suffered for 2years until i met a post where this man Dr. Udebhulu
Mary Counts
22/8/2020 09:30:41 am
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Mike rose?
15/12/2020 07:45:37 am
I want to let the world know about Doctor AKHERE the Great spell caster that brought back my husband to me when i thought all hope was lost. Doctor AKHERE used his powerful spell to put a smile on my face by bringing back my man with his spell, at first i thought i was dreaming when my husband came back to me on his knees begging me to forgive him and accept him back and even since then he loves me more than i ever expected so i made a vow to my self the i will let the World know about Doctor AKHERE because he is a God on earth. Do you have problems in your relationship ? have your partner broke up with you and you still love and want him back ? Do you have problem with your finance ? or do you need help of any kind then contact Doctor AKHERE today for i give you 100% guarantee that he will help you just as he helped me. Doctor AKHERE email is: AKHERETEMPLE@gmail.com or
Lara Fox
7/1/2021 06:19:11 pm
REAL URGENT EFFECTIVE SPELL CASTER TO HELP BRING BACK EX LOVER AND SAVE MARRIAGE : http://drjumbaspellhome.wordpress.com I recently saw a testimony about a spell caster in a blog I visit for relationship counseling problems because I had been having serious issues with my husband and we had been dating for six months, he just suddenly changed, he was returning my calls, he started cheating,he was hurting me in so many ways i never thought possible and I just thought I should try it maybe out of desperation ..and I contacted them. At first everything felt dreamy and unbelievable, their consultations and solution was a little bit easy and strange and I was scared a little cos I heard read and heard lots of stories of spell casters and I never really believed in spell ..I played along with a little hope and faith and I was sent some few stuffs after everything and it worked like a miracle, everything went to a whole new direction, I guess it was all good faith that made me read That particular post that fateful day. I hope they could help other people too like they did a little and I got everything I wanted and wished for my husband, my family and my life back their address is; wiccalovespelltools@gmail.com Call him or add him on WhatsApp via: +19085174108
Aaron Jeremy
14/1/2021 02:50:07 pm
CHIEF DR LUCKY HERBAL THERAPY
Julie Andrew
24/1/2021 10:45:04 pm
HOW I GOT BACK MY MAN WITHIN 24 HOURS WITH THE HELP OF DR JUMBA +1 908 517 4108 ..
juwan james
14/3/2021 07:49:38 pm
Hello everyone. Dr Ishiaku herbs is a good remedy for herpes Virus , I was a carrier of herpes virus and I saw a testimony on how Dr. Ishiaku cure Herpes Virus, I decided to contact him, I contacted him and he guided me. I asked him for solutions and he started the remedies for my health. After he finish he sent me the herbs which i took for 2 weeks before asking me to go for a check up and getting there i could not believe that i was confirm HSV 2 Negative after the test, Today i am so happy because i'm free from herpes disease with the help of Dr. Ishiaku . Thank God now everything is fine, I'm cured by Dr. Ishiaku herbal medicine, I'm very thankful to God for making it possible. you can reach him on his email, i strongly recommend him to any one out here looking for a cure to herpes or any other deadly disease...Contact Dr ishiaku via email: ishiakuherbalcure@yahoo.com or whatsapp +2348180828544
tracy wright
17/3/2021 06:59:39 am
MY REVIEWS ABOUT DR JUMBA THE BEST WORLD WIDE ONLINE REAL SPELLCASTER.
Rose
27/3/2021 02:46:13 am
I am very happy today with my family. My name is rose sarah living in USA, My husband left me for a good 3 years now, and i love him so much, i have been looking for a way to get him back since then. i have tried many options but he did not come back, until i met a friend that darted me to Dr.Moses a spell caster, who helped me to bring back my husband after 2 weeks. Me and my husband are living happily together today, That man is great, you can contact him Now i will advice any serious persons that found themselves in this kind of problem to contact him now a fast solution without stress.. He always hello, now i call him my father. Contact him now he is always online Drmosesspellcaster@gmail.com email or contact him on his WhatsApp mobile line +2348033690591
deja merald
26/4/2021 02:04:33 pm
Its a real miracle Till today i still imagine how dr 0love brought back my man after he had vowed never to set his eyes on me again. he had even set the date for his wedding with another woman before i contacted dr 0love.
Amelia
1/5/2021 11:53:50 pm
Hi, good day everyone!
Amelia
1/5/2021 11:54:38 pm
Hi, good day everyone!
Brittany Seiber
24/5/2021 05:39:09 am
To know more about Chief Dr Lucky you can visit his website (https://chiefdrluckyherbaltherapy.wordpress.com/)
Caillo Lisa
5/6/2021 02:29:07 pm
This is another testimony on how Chief Dr Lucky cured my HIV disease. Do you need a cure for your HIV disease? Do you want to be cured from your cancer disease? Or you want to be free from any type of disease. Kindly visit his website https://chiefdrluckyherbaltherapy.wordpress.com/ , he just cured my HIV disease and I’m very grateful to him, he is the only herbalist that can cure you.
Michael DeBruin
1/9/2021 03:35:55 pm
My wish right now is that God should continue to bless Dr Emu for his good works towards the life of those people who are heart broken. My name is Michael DeBruin and I am from the USA, it's been a while since my lover's attitude changed from being the caring type she has been to me, but later turned out not to be caring at all. But not long, I later discovered that my lover was having an affair with someone else. and also she told me she doesn't need me after all we pass through then a friend told me about a spell caster. that with the spell I will get back my woman, I took his cell number then called him and also what's-app him which he reply to me and I did some sacrifices to the spell man and he bought the items for me which he used for the sacrifices and later called me that before 48 hours my love will come back to me and now we are more in love with each other than ever. you can reach him on WhatsApp +2347012841542 or reach him via mail ; emutemple@gmail.com , my lover returned back and broke up with the other guy she was having a relationship with... Thank you Dr Emu.
Barley
29/1/2022 04:39:00 am
How i got back my ex husband after he left me and our kids” I suggest you read my testimony. I’m from united state, I’m so excited my husband is back after he left me for another woman. My husband was having an affair with a co-worker and i love my husband so much but he was cheating on me with his co-worker and this girl i think she uses witchcraft or black magic on my husband to make him hate me and this was so critical and uncalled-for, I cry all day and night for God to send me a helper to bring back my husband! I was really upset and i needed help, so i searched for help online and I came across a website that suggested that Lord Zuma can help get ex-boyfriend back fast. So, I felt I should give him a try. I contacted him and he told me what to do and i did it, then he did a love spell for me. 11hours later, my husband really called me and told me that he miss me so much, Oh My God! i was so happy, and today i am happy with my man again and we are joyfully living together and i thank the powerful spell caster Lord Zuma, he is so powerful and i decided to share my story online here. if you are here and your Lover is turning you down, or your husband moved to another woman, do not cry anymore, contact Lord Zuma for help now..Here’s his contact, spiritualherbalisthealing@gmail.com or WhatsApp him: +1 506 800 1647
Jred Hatty
22/7/2022 02:37:40 pm
I TESTED POSITIVE FOR HSV-2 A FEW MONTHS AGO.
cindybyrd
3/8/2022 10:32:14 pm
Lices
9/8/2022 07:03:39 pm
Even though I was reluctant to buy this product immediately because of fear and doubts, I eventually did and it worked for me. My herpes has been cured permanently and I was tested negative. I conducted the test severally after completing the medication and all test results read negative. It is one of the best decisions I have ever made, just give it a trial. You’re almost there”contact drokonsolutionspell@gmail.com or WhatsApp him on his cellphone number+2348051145606
cindybyrd
10/8/2022 07:01:31 am
cindy byrd
27/8/2022 11:04:30 am
Jason Bennett
27/10/2022 10:19:03 pm
I really want to thank Dr Emu for saving my marriage. My wife really treated me badly and left home for almost 3 month this got me sick and confused. Then I told my friend about how my wife has changed towards me. Then she told me to contact Dr Emu that he will help me bring back my wife and change her back to a good woman. I never believed in all this but I gave it a try. Dr Emu casted a spell of return of love on her, and my wife came back home for forgiveness and today we are happy again. If you are going through any relationship stress or you want back your Ex or Divorce husband you can contact his whatsapp +2347012841542 or email emutemple@gmail.com 9/11/2022 11:26:04 am
He expect project system bed effect daughter space. Although color real onto number threat. Likely change eye wind explain life.
Big Bull
18/11/2022 09:01:26 pm
@leadsupplier Telegram
oliviastephen02
7/6/2023 04:39:11 am
Are you searching for real spell caster to get your ex back? I highly recommend this real spell caster to anyone in need of help getting their ex lover back". Leave a Reply. |
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