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Creating a therapeutic schedule for your Child

29/9/2017

8 Comments

 
#RareDiseasesNews:How to organize yourself and your child's therapeutic and stimulatory activities, when your child has a complex and multi-systemic condition?
It may seem your time management or prioritizing skills may not be up to the herculous task, but that's just your perfeccionism talking.
Anyway, here is a strategy that can enable EVERYONE to accomplish 
#CDG 
What do you think? Do you have other strategies?
Share, comment, like and know more HERE 
Picture
8 Comments
Aaron Jeremy
14/1/2021 03:08:07 pm

CHIEF DR LUCKY HERBAL THERAPY 
Thank you very much for curing my Human Papillomavirus (HPV) totally. You are really a Godsent, I promise you that I will always recommend you. and to share your testimony to people. Contact him now thanks all. 
CHIEF DR LUCKY HERBAL THERAPY CAN AS WELL CURE THE FOLLOWING VIRUSES :-
1: HIV/AIDS
2: HSV
3: LUPUS
4: ALS
5: HEPATITIS B
6: DIABETES
7: HUMAN PAPILLOMAVIRUS (HPV)
8: CANCER
9: PAD
10: PENIS ENLARGEMENT 
11: THYROID ETC..  
WhatsApp him on +2348132777335 or email (chiefdrlucky@gmail.com). 
Website: https://chiefdrluckyherbaltherapy.wordpress.com/

Reply
SOPHIE WHITE
3/3/2022 02:42:57 pm

I NEED MY EX LOVER BACK TO ME EMAIL assurancesolutionhome@gmail.com whatsapp   +1(424)-261-8520
I contacted DR LARRY and he told me that my ex will come back to me in the next 4days, DR LARRY released him to let me know how much I loved and wanted him. And opened his eyes to picture how much we have shared together. My ex is now back to me again. As I`m writing this testimony right now I`m the happiest Woman on earth and myself and my boyfriend are living a happy life and our love is now stronger than how it was even before our break up. All thanks goes to DR LARRY for the excessive work that he has done for me by helping me to get back with my ex boyfriend. I would like to drop DR LARRY website  http://assurancesolutioncenter.website2.me/     and hope you see this testimony and contact him if you have a lover that you really want back so badly, Email assurancesolutionhome@gmail. com or you can whatsapp him on this Number +1(424)-261-8520  assurancesolutiohome.blogspot.com 

Reply
Brittany Seiber
24/5/2021 05:42:08 am

To know more about Chief Dr Lucky you can visit his website (https://chiefdrluckyherbaltherapy.wordpress.com/)
 
 A friend that suffered from Herpes and was cure with the help of this great herbal doctor Chief Lucky so i decided to contact him for help in getting rid of my families genital herpes virus 1/2 which i did and all i was told to provide was just some useful information and some materials used in preparation of the natural cure and that i did and now i am the happiest person on earth because i am writing this testimony of mine with joy and happiness in my heart to the whole world to know that natural remedy is real because i am a living testimony of Chief Lucky traditional herbal cure and i want you all to contact Chief Lucky via his email: chiefdrlucky@gmail.com or WhatsApp him +2348132777335 am sure he will help you too.

Reply
Caillo Lisa
5/6/2021 02:32:24 pm

This is another testimony on how Chief Dr Lucky cured my HIV disease. Do you need a cure for your HIV disease? Do you want to be cured from your cancer disease? Or you want to be free from any type of disease. Kindly visit his website https://chiefdrluckyherbaltherapy.wordpress.com/ , he just cured my HIV disease and I’m very grateful to him, he is the only herbalist that can cure you.
WhatsApp number : +2348132777335
Via Email : chiefdrlucky@gmail.com
Thank you all for reading,
God bless"

Reply
Michael DeBruin
1/9/2021 03:41:01 pm

My wish right now is that God should continue to bless Dr Emu for his good works towards the life of those people who are heart broken. My name is Michael DeBruin and I am from the USA, it's been a while since my lover's attitude changed from being the caring type she has been to me, but later turned out not to be caring at all. But not long, I later discovered that my lover was having an affair with someone else. and also she told me she doesn't need me after all we pass through then a friend told me about a spell caster. that with the spell I will get back my woman, I took his cell number then called him and also what's-app him which he reply to me and I did some sacrifices to the spell man and he bought the items for me which he used for the sacrifices and later called me that before 48 hours my love will come back to me and now we are more in love with each other than ever. you can reach him on WhatsApp +2347012841542 or reach him via mail ; emutemple@gmail.com , my lover returned back and broke up with the other guy she was having a relationship with... Thank you Dr Emu.

Https://emutemple.wordpress.com/

Https://web.facebook.com/Emu-Temple-104891335203341

Reply
willson care
24/1/2022 12:52:36 pm

I was depressed when doctor told me that I have been diagnosed with Herpes disease… I thought about my Family, I know my Family will face a serious problem when I'm gone, I lost hope and I wept all day, but one day I was searching the internet I found Dr.ezomo contact number. +2349056460552   I called him and he guided me. I asked him for solutions and he started the remedies for my health. Thank God, now everything is fine, I'm cured by Dr.ezomo herbal medicine, I'm very thankful to Dr.ezomo and very happy with my hubby and family. email him on dr.ezomorootandherbals@gmail.com or you can also reach him through WhatsApp number ‪+2349056460552He can also cure so many sickness{1}HIV And AIDS {2}Diabetes{3}Epilepsy {4}Blood Cancer {5}HPV {7}ALS {8}Hepatitis


Reply
Jason Bennett
27/10/2022 10:25:04 pm

I really want to thank Dr Emu for saving my marriage. My wife really treated me badly and left home for almost 3 month this got me sick and confused. Then I told my friend about how my wife has changed towards me. Then she told me to contact Dr Emu that he will help me bring back my wife and change her back to a good woman. I never believed in all this but I gave it a try. Dr Emu casted a spell of return of love on her, and my wife came back home for forgiveness and today we are happy again. If you are going through any relationship stress or you want back your Ex or Divorce husband you can contact his whatsapp +2347012841542 or email emutemple@gmail.com
Https://web.facebook.com/Emu-Temple-104891335203341

Reply
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  • About US
    • What we do
    • Who we help >
      • Research
  • Resources
    • Rare CDG
    • Publications
    • Guia Metabolica
    • CDG Facts
    • Task Force CDG Communication >
      • PMM2-CDG (CDG Ia)
      • PGM1-CDG (CDG It)
      • ALG6-CDG (CDG Ic)
  • EDUCATION
  • Awareness
    • Get involved World CDG Awareness Day 2019 >
      • Go Social World CDG Awareness Day 19
      • Spread World CDG Awareness Day 19
      • Plan An Event World CDG Awareness Day 19
      • Frame your CDG Awareness Campaign 19
      • Go green! Think CDG! ©Campaign 19
      • Volunteer World CDG Awareness Day 19
      • Press kit World CDG Awareness Day 19
    • Map of events for World CDG Awareness Day 2019
    • CrowdCDG
    • Awareness Day 2018
    • Awareness Day 2017
    • Awareness Day 2016
    • Rare Diseases
  • Community
    • Join Us - Membership
    • CDG Patient Groups
    • Empowerment
  • Events
    • 1st CDG Satellite Meeting
    • Speakers - World Conference on CDG 2019
    • Registrations - World Conference on CDG 2019
    • Poster submission - World Conference on CDG 2019
    • Follow up - World Conference on CDG 19
    • Volunteer Registration - World Conference on CDG 2019
    • Previous Edition World Conference on CDG 2017 >
      • Follow up - World Conference on CDG 17
      • Speakers - World Conference on CDG 17
  • DONATE
  • BLOG