Congenital Disorders of Glycosylation? Come again?

6/10/2017

#RareDiseasesNews:What is #CDG? It stands for Congenital Disorders of Glycosylation and these are a group of metabolic disorders with over 100 different types.
The most common form is called PMM2-CDG. Watch this video to know more, share and like it to raise #Awareness! Thank you💚

22 Comments

Misak Zetilyan link

25/10/2017 04:43:13 pm

If anyone is interested in translating this video into their language or making a video for another sub type of CDG please respond to this comment.

leo valsa

25/7/2018 06:20:47 am

I have been suffering from (HERPES) disease for the past 13 months and had constant pain, especially in my knees. During the first month , I had faith in God that I would be healed someday.This disease started to circulate all over my body and I have been taking treatment from my doctor, a few weeks ago I came on search on the internet if I could get any information concerning the prevention of this disease, on my search I saw a testimony of someone who has been healed from (Hepatitis B and Cancer) by this Man DR ABAKA and she also gave the email address of this man and advise we should contact him for any sickness that he would be of help, so I wrote to DR ABAKA telling him about my (HERPES Virus) he told me not to worry that I was going to be cured!! hmm i never believed it,, well after all the procedures and remedy given to me by this man few weeks later I started experiencing changes all over me as the DR assured me that I have cured, after 2 weeks i went to my doctor to confirmed if I have been finally healed behold it was TRUE, So friends my advice is if you have such sickness or any other like HSV1,2,HPV1,2,3,CANSER HIV,COLE SORES,TOOTH AKEA, ETC you can email DR ABAKA on drabakaspelltemple@gmail.com sir I am indeed grateful for the help I will forever recommend you to my friends!!! with your lovely Email Address or you can also phone/Whats App him on this number +2349063230051.

tamara barrow

22/9/2020 03:38:48 pm

I want to share this great testimony to the world on how Dr VOODOO cure me from HSV1&2 with his herbs, I was nervous when i first contact him about the cure for HSV but i decided to give him a try because i was desperate to get cured and be free from HSV. Dr VOODOO prepared the remedy and sent it to me through UPS,which I use just the way Dr VOODOO instructed me and thank God today I am a beneficiary to this cure and I went back to the hospital after 7 days of taking the herbs and I tested HSV1&2 Negative. So I will tell you all who are looking for a cure to his/her HSV1&2 that Dr VOODOO took research before he could finally get the solution to it and a lot of people are benefiting from him right now. He also cured my friend from HPV. Dr VOODOO heals with natural herbs. Please I urge you to contact him now through his email address: voodoospelltemple66@gmail.com or call and WhatsApp him on +2348140120719. He is capable of curing HIV/AIDS, HERPES, HPV, HSV1&2, CANCER of all kinds, DIABETES and so many other infections.

Deebra Jones

3/4/2019 05:20:34 pm

Am very happy to tell everyone to hear my testimony will say. am from united state,am a nurse,this story of my love life.I have been married for 4years and on the fifth year of my marriage, another woman had to take my lover away from me and my husband left me and the kids and we have suffered for 2years until i met a post where this man Dr. Udebhuluhave helped someone and i decided to give him a try to help me bring my lover back home and believe me i just send my picture to him and that of my husband and after 48hours as he have told me, i saw a car drove into the house and behold it was my husband and he have come to me and the kids and that is why i am happy to make every one of you in similar problems to meet with this powerful man and have your lover back to your self.You cancontact him with this email address {shomorikasolutiontemple@yahoo.com or shomorikasolutiontemple@hotmail.com} Thank you Dr Udebhulu. I am sure he will do same to help you

kaith leonard

8/6/2020 04:18:23 pm

I NEED A EFFECTIVE AND POWERFUL LOVE SPELL CASTER AND LOTTERY SPELL 2020 WICCALOVESPELLTOOLS@GMAIL.COM OR WHATSAPP HIM :+19085174108
With so much in my heart i am here to express myself on how Dr. jumba saved my marriage from divorce. Myself and my husband were having some misunderstanding and it was tearing our marriage apart to the extent my husband was seeking a divorce. So I have no option than to go to the internet to seek a solution to my problem. It was there I came across Dr. Jumba details and about how he has helped a lot of people by restoring their relationship. I contacted Dr.jumba and in less than 48 hours my husband cancelled the divorce papers. Now myself and my husband live together in peace and harmony all thanks to Dr.jumba for saving my marriage from breaking up. Dr. jumba contact information are via email: wiccalovespelltools@yahoo.com or wiccalovespelltools@gmail.com, text or call him +19085174108

I highly recommend his services. website : http://wiccalovespelltools.website2.me/
blogspot created by me for dr jumba, to thank him for restoring happiness back to my relationship : https://wiccalovespelltols.blogspot.com/

kait cole

27/6/2020 03:52:41 pm

A love spell and within 48 hours my husband came back to me and started apologizing, now he has stopped going out with other ladies and his with me for good and for real. Contact this great love spell caster for your relationship or marriage problem to be solved today via: {oliha.miraclemedicine@gmail.com} or directly WhatsApp: +2349038382931 Dr Oliha.

Mary Counts

22/8/2020 09:32:08 am

I can’t believe this. A great testimony that i must share to all HERPES SIMPLEX VIRUS patient in the world i never believed that their could be any complete cure for Herpes or any cure for herpes,i saw people’s testimony on blog sites of how Dr Wealthy prepare herbal medicine that cure and brought them back to life again. i had to try it too and you can,t believe that in just few weeks i started using it all my pains stop gradually and i had to leave without the pills the doctor gave to me. Right now i can tell you that few months now i have not had any pain,delay in treatment leads to death. Here is his email:(wealthylovespell@gmail.com) whatsapp him with +2348105150446 visit blog http://wealthyspellhome.over-blog.com

ben mark

3/9/2020 01:26:33 am

Hello everyone i Am Ben Mark and i am from USA i am here to give my
testimony about an herbal doctor called Dr,Akioya I was heartbroken because
i had very small penis,not nice to satisfy a woman, i have been in so many
relationship, but cut off because of my situation, i have used so many
product which doctors prescribe for me, but could not offer me the help i
searched for. i saw some few comments on the internet about this specialist
called Dr,Akioya and decided to email him on his email i saw on the
internet,(drakioya17spellhome@gmail.com ) so I decided to give his herbal
product a try. i emailed him and he got back to me, he gave me some
comforting words with his herbal product for Penis Enlargement, Within
three weeks of me use it, i began to feel the enlargement, " and now it
just 4 weeks of using his products my penis is about 8 inches longer, and i
had to settle thing out with my ex girlfriend , i was surprised when she
said that she is satisfied with my performance in bed and i now have a
large penis.thanks to DR Akioya for is herbal product. you can also reach
him with emsil drakioya17spellhome@gmail.com though is..number WHATASPP him
today on this number [ +2348105257464 ] you can checkout is website;
http://drakioyaherbalcenter.home.blog
https://drakioyaherbalhome.blogspot.com/

Monisha Alexis

3/9/2020 03:16:17 pm

I promise to share this testimony all over the world once my boyfriend returns back to me, and today with all due respect I want to thank DR.ONIHA for bringing joy and happiness to my relationship and my family. I want to inform you all that there is a spell caster that is real and genuine. I never believed in any of these things until I lost my boyfriend, I required help until I found a great spell caster, And he cast a love spell for me, and he assured me that I will get my boyfriend back in two days after the spell has been cast. Three days later, my phone rang, and so shockingly, it was my boyfriend who has not called me for the past 6 years now, and made an apology for the heart break, and told me that he is ready to be my backbone till the rest of his life with me. DR.ONIHA released him to know how much I loved and wanted him. And opened his eyes to picture how much we have shared together. As I`m writing this testimony right now I`m the happiest girl on earth and me and my boyfriend are living a happy life and our love is now stronger than how it was even before our break up. So that`s why I promised to share my testimony all over the universe. All thanks goes to DR.ONIHA for the excessive work that he has done for me. Below is the email address in any situation you are undergoing, it may be a heart break, and I assure you that as he has done mine for me, he will definitely help you too.
EMAIL: ONIHASPELLTEMPLE@GMAIL.COM
CALL/WHATSAPP : +16692213962.

Monisha Alexis

3/9/2020 03:16:35 pm

lara

20/9/2020 02:04:00 am

I’m so happy, i never believe i will be this happy again in life, I was working as an air-hoster for 3years but early this year, i lost my job because of this deadly

disease called Herpes virus (HSV), I never felt sick or have any symptom, till all workers were ask to bring their doctors report, that was how i got tested and i found out that am HSV positive that made me loose my job, because it was consider as an STD and is incurable disease, i explained to a friend of mine, who always said to me a problem share is a problem solved, that was how she directed me to Dr omohan , that was how i contacted him and get the medication from this doctor and i got cured for real, for similar issues contact this herbal doctor via dromohanherbalmedicine@gmail. com you can also WhatsApp/call +2348164816038....

smith john

22/9/2020 04:42:03 pm

i want to inform the public how i was cured of herpes Virus by a Doctor
called Dr ishiaku. i visited different hospital but they gave me list of
drugs like Famvir, Zovirax, and Valtrex which is very expensive to treat
the symptoms and never cured me. I was browsing through the Internet
searching for remedy on Herpes and i saw comment of people talking about how Doctor ishiaku cured them. I Was scared because i never believed in the
Internet but i was convince to give him a try because i was having no hope
of been cured of herpes so i decided to contact him on his email, i searched
his email on net and i saw a lot of people testifying about his goodness.
when i contacted him he gave me hope and send a Herbal medicine to me that
i took and it seriously worked for me, am a free person now without
problem, my HERPES result came out negative. You can contact him on his
Email: ishiakuherbalcure@gmail.com or whatsapp him via +2348180828544
and get all your problem solved.
1)Sickness of any kind
2)Help to CURE Hepatitis B, herpes, HIV/AIDS CANCER and BIPOLAR
3)Divorce, Breakup problem and To Re-unit
4)Pregnancy problem
5)Financial problem and Job promotion
6)To get a good and rich life partner
7)To Lose your wrath
8)to enlargement of manhood

mary

23/9/2020 10:55:21 am

I really happy that i and my husband are cured of (HERPES SIMPLEX VIRUS) with the herbal medicine of Dr Omohan , i have been suffering from this disease for the past 3 years without solution until i came across the email of this doctors who have cure so many people with his herbal medicine, i also choose to give him a chance to help me and my husband, he told me what to do and i kindly did it, and he gave us his herbal medicine and direct me on how to use it, i also follows his instruction for use and he ask us to go for a check up after 3 weeks and which i did, to my greatest surprise our result came out as negative, we are really happy that there is someone like this DR who is ready to help anytime any day. to all the readers and viewers that is doubting this testimony stop doubting it and contact this Dr and see if he will not actually help you. i am not a stupid woman that i will come out to the public and start saying what someone have not done for me. His contact on: dromohanherbalmedicine@gmail.com or call on +2348164816038.

mora

26/9/2020 04:19:03 pm

Herpes is a sexually transmitted virus that primarily infects the mouth and the genitals. It is transmitted by bodily fluids – penetration isn’t required for transmission, oral-oral or oral-genital contact will suffice.I WAS ONCE HERPES SIMPLEX VIRUS patient, I have HSV-I genitally and I’m one of the rare cases where I was infected by sexual contact. The person who infected me was unaware that he had it, and he tested negative on a blood test (he probably got it from his mother at birth and never had an outbreak in his life).I’m sure I have HSV-I (they did a culture of the fluid from the sores i had during my initial outbreak). So it is possible to contract HSV-I by asymptomatic asexual contact, so please people talk about this and prevent anyone else from getting it, I’m kind of going through something. Four years ago my love and I both had an OB and when I got the blood work done it came back negative. We were happy in the relationship so I learned to accept it and never really bothered to get tested again. Now, that we broke up I decided to get tested again. I came back negative for both HSV-1 and HSV-2 (got the news!) and have not had an OB since the initial one four years ago. My X on the other hand has had a few small outbreaks and never came back positive for HSV-1.Only the help of Dr omohan where able to help me out with is Root and Herbs, if you are having any type of this disease or infection like HIV,CANCER OR ANY disease kindly email doctor Afrid for cure:( dromohanherbalmedicine@gmail.com https://dromohanherbalmedicine.webs.com/ or Whatsapp him on +2348164816038

williams douglas

9/10/2020 07:32:52 pm

I still can’t still believe that i got cured from Genital Herpes through herbal treatment from Dr Ogedegbe who I met through the internet, I actually couldn’t believe it at first because it sounded impossible to me knowing how far I have gone just to get rid of it. Dr Ogedegbe send me his medicine which I took as he instructed me and here I am living a happy life once again, a big thanks to Dr Ogedegbe, I am sure there are many herbal doctors out there but Dr Ogedegbe did it for me, contact him dr.ogedegbe6@gmail.com also call or whatsApp him on +2348109374702

cynthia williamas

13/10/2020 12:52:31 am

I Want To Appreciate Dr. momoh for his great deeds, I Was Diagnosed With Herpes Virus Last 2018, And i Was Looking For Solution To Be Cured Luckily I Saw Testimonies On How Dr. momoh Cure Herpes Virus I Decided To Contact Dr. momoh I Contacted Him He Prepared A Herbal Medicine Portion And Sent It To Me,I Started The Herbal Medicine For My Health.He Gave Me Step By Step Instructions On How To Apply It, When I Applied It As Instructed, I Was Cured Of This Deadly Herpes Within 2 weeks, I Am Now Herpes Negative.My Brother And Sister I Know That There Are So Many People That Have The Same Herpes Virus Please contact Dr momoh To Help You Too, And Help Me To Thank Dr. momoh For Curing Me, I’m Cured By Dr. momoh Herbal Medicine, His Contact Email:(dr.momoh9@gmail.com) Or Cell Whatsapp Number +234 708 372 4098 thank you so much DR.momoh. He can also cure other diseases/infections

Lisa Morgan

19/10/2020 09:18:34 am

Am really grateful and thankful for what DR ISIRAMEN has done for me with his herbal medicine, I suffered herpes for so long without a solution, it took everything from me, i went to different doctors who told me it has not permanent cure until this faithful day I went online, I saw a couple of testimonies about this great man named DR ISIRAMEN so I decided to give it a try and and he assured me i will be well. he send me a couple of his herbal product and instructed me on how to use it. and after a few weeks i went for another test and it was negative and that was how i got cured from herpes. If you need his help, email him ( drisiramenherbalhome05@gmail.com) and get your healing..

william

2/11/2020 09:04:28 pm

herpes is a serious and recurring disease which can't be cured through drugs or injections by the American doctors but the best way to deal with herpes is by taking natural herbs medicine for it and is only few American doctors that know about this herbal medicine from Dr Ogogo .. I have read about Dr Ogogo great herbalist doctor from African who can cure helpers with his powerful herbal medicine. for the people suffering from the following diseases Herpes, Cancer, Als,Herpatitis, Diabetes, Hps,Infections ETC should contact him for his herbal medicine because i am a living testimony and i was cured of herpes. Although, i sent him what he requested and he sent me his medicine which i took for two weeks and today when i went for test i was tested negative. you can reach him through his whatsapp number:+2347054665680 he will help you out.https://www.facebook.com/109551780873905/posts/109553370873746/?substory_index=0&app=fbl

shannel brooks

12/11/2020 07:41:05 am

I'm recommending Dr Aza to everyone who have herpes simplex virus to get the cure from him. I was diagnose of genital herpes in 2019 and i have been searching and asking questions to see if i could get something to cure the disease because i did not believe what the doctors say that no cure is found yet. I came across a comment on Youtube and the person testify how she was cured from herpes and hpv after using Dr Aza herbal medicine. I quickly contact Dr Aza and explain my problem to him and he prepare the herbs and send it to me through UPS and gave me instructions on how to use it and tell me to go for checkup after usage which i did after two weeks of taken the herbal medicine and my result was NEGATIVE. I waited another month and retested the result was still NEGATIVE and my doctor told me that am completely free from herpes. Am so happy and grateful to Dr Aza for what he has done for me and i will continue to share this for people out there to know that there is cure for herpes. You can contact Dr Aza on email and WhatsApp to get the cure from him. Email:drazaherbalcenter@gmail.com and WhatsApp +1(315) 795 1518 .

Lisa Morgan

13/11/2020 07:39:42 pm

I have been battling this Herpes disease for almost 3 year now....I tried all possible means to get cure from my Herpes Disease but all to me in vain until i saw a post in a health forum about a herbal doctor DR ISIRAMEN who prepare herbal medicine to cure all kind of diseases including Herpes Disease, at first i doubted if it was real but decided to give it a try...when i contact DR ISIRAMEN via his email drisiramenherbalhome05@gmail.com write him and reply me explain how the process work so after ordering for the medicine I got it within 3/4 working days through DHL Delivery and I took it according to the way DR ISIRAMEN instructed, I was so happy after 2 week I took the medicine there was very big change in my health when I was done with the process I go for test, I found out I am negative...Herpes patients should also get in touch with this herbalist DR ISIRAMEN to get rid of these Herpes Virus forever his whatsapp number +2348054753640

logan bate

24/11/2020 10:52:26 pm

DR AGBOMIAN herbal medicine is a good remedy for herpes simplex virus cure. My name is LOGAN BATE, am from USA,I am here to give my testimony about DR AGBOMIAN who helped me in my life, i want to inform the public how i was cured from (HERPES SIMPLEX VIRUS) by DR AGBOMIAN , i visited different hospital but they gave me list of drugs like Familiar, Zovirax, and Valtrex which is very expensive to treat the symptoms and never cured me. I was browsing through the Internet searching for remedy on HERPES and i saw comment of people talking about how DR AGBOMIAN cured them, when i contacted him he gave me hope and send a Herbal medicine to me that i took and it seriously worked for me, am a free person now without any problem, my HERPES result came out negative, I pray to God to never let me and my family forget you in our life, am now cured permanently, you can also get your self cured my friends if you really need this doctor help, you can reach him on his Email: Dragbomianherbalcured77@gmail.com or via whatsapp +2347040843115

christopher kim

25/11/2020 06:31:42 pm

I still don’t know the right words to express my gratitude to this great man Dr. Agbomian. After been diagnosed of HERPES SIMPLEX VIRUS in 2months ago, i was given so many health prescription and advice with no improvement, I totally lost hope, until i found testimonies of Great Dr. Agbomian online research and on Facebook, Like anybody would be, I was very skeptical about contacting him, but i later did and he opened up to me and told me what was involved and he started the remedies for my health. Thank God, i was cured from herpes by the herbal medication I received from him. I never thought that herpes can be cured from the bottom of my heart I’m truly grateful, i pray you have long life so you can help many more people on earth with your herbal medical support, You can Email him via email dragbomianherbalcured77@gmail.com or for easy and fast communication you can also call or add him on whats-app with this mobile number +2347040843115, one thing i love most about DR Agbomian is honestly, and he is very polite with his patience, everything he told me was what he did, and his herbal medicine are very affordable.

Congenital Disorders of Glycosylation? Come again?

Leave a Reply.

Author

Archives

Categories