Challenges faced by Adult Rare Disease Patients - APCDG - Congenital Disorders of Glycosylation

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Challenges faced by Adult Rare Disease Patients

5/4/2017

#RareDiseasesNews: Reaching adulthood with a Rare Disease - Does it get harder? According to the Canadian Organization for Rare Disorders, adult patients get less support. What is your experience?
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About US
- What we do
- Who we help
Research
Resources
EDUCATION
Awareness
Community
Events
- Volunteer Registration - World Conference on CDG 2019
- Previous Edition World Conference on CDG 2017 >
  - Speakers - World Conference on CDG 17
  - Follow up - World Conference on CDG 17
DONATE
BLOG