APCDG - Congenital Disorders of Glycosylation
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CDG&Allies-PPAIN most recent publication on patient needs, patient-led solution, patient-centred care and research

29/9/2017

6 Comments

 
#CDGPublication: Another CDG&Allies-PPAIN publication has been published!👌👏🎉
​This project was led by Dr Cláudia Freitas and, like all CDG&Allies-PPAIN projects, co-led and inspired by the CDG Community! This project reinforces the fact that a patient-centered approach is the most effective way to improve care and research for CDG (or any other disease for that matter). You can access the article's abstract HERE and to get a full copy write to sindromecdg@gmail.com.

Thank you so much to the entire CDG Community for answering present and available any and every time we ask!
Picture
6 Comments
Aaron Jeremy
14/1/2021 03:07:06 pm

CHIEF DR LUCKY HERBAL THERAPY 
Thank you very much for curing my Human Papillomavirus (HPV) totally. You are really a Godsent, I promise you that I will always recommend you. and to share your testimony to people. Contact him now thanks all. 
CHIEF DR LUCKY HERBAL THERAPY CAN AS WELL CURE THE FOLLOWING VIRUSES :-
1: HIV/AIDS
2: HSV
3: LUPUS
4: ALS
5: HEPATITIS B
6: DIABETES
7: HUMAN PAPILLOMAVIRUS (HPV)
8: CANCER
9: PAD
10: PENIS ENLARGEMENT 
11: THYROID ETC..  
WhatsApp him on +2348132777335 or email (chiefdrlucky@gmail.com). 
Website: https://chiefdrluckyherbaltherapy.wordpress.com/

Reply
Brittany Seiber
24/5/2021 05:41:55 am

To know more about Chief Dr Lucky you can visit his website (https://chiefdrluckyherbaltherapy.wordpress.com/)
 
 A friend that suffered from Herpes and was cure with the help of this great herbal doctor Chief Lucky so i decided to contact him for help in getting rid of my families genital herpes virus 1/2 which i did and all i was told to provide was just some useful information and some materials used in preparation of the natural cure and that i did and now i am the happiest person on earth because i am writing this testimony of mine with joy and happiness in my heart to the whole world to know that natural remedy is real because i am a living testimony of Chief Lucky traditional herbal cure and i want you all to contact Chief Lucky via his email: chiefdrlucky@gmail.com or WhatsApp him +2348132777335 am sure he will help you too.

Reply
Caillo Lisa
5/6/2021 02:32:16 pm

This is another testimony on how Chief Dr Lucky cured my HIV disease. Do you need a cure for your HIV disease? Do you want to be cured from your cancer disease? Or you want to be free from any type of disease. Kindly visit his website https://chiefdrluckyherbaltherapy.wordpress.com/ , he just cured my HIV disease and I’m very grateful to him, he is the only herbalist that can cure you.
WhatsApp number : +2348132777335
Via Email : chiefdrlucky@gmail.com
Thank you all for reading,
God bless"

Reply
Michael DeBruin
1/9/2021 03:40:51 pm

My wish right now is that God should continue to bless Dr Emu for his good works towards the life of those people who are heart broken. My name is Michael DeBruin and I am from the USA, it's been a while since my lover's attitude changed from being the caring type she has been to me, but later turned out not to be caring at all. But not long, I later discovered that my lover was having an affair with someone else. and also she told me she doesn't need me after all we pass through then a friend told me about a spell caster. that with the spell I will get back my woman, I took his cell number then called him and also what's-app him which he reply to me and I did some sacrifices to the spell man and he bought the items for me which he used for the sacrifices and later called me that before 48 hours my love will come back to me and now we are more in love with each other than ever. you can reach him on WhatsApp +2347012841542 or reach him via mail ; emutemple@gmail.com , my lover returned back and broke up with the other guy she was having a relationship with... Thank you Dr Emu.

Https://emutemple.wordpress.com/

Https://web.facebook.com/Emu-Temple-104891335203341

Reply
Jason Bennett
27/10/2022 10:24:49 pm

I really want to thank Dr Emu for saving my marriage. My wife really treated me badly and left home for almost 3 month this got me sick and confused. Then I told my friend about how my wife has changed towards me. Then she told me to contact Dr Emu that he will help me bring back my wife and change her back to a good woman. I never believed in all this but I gave it a try. Dr Emu casted a spell of return of love on her, and my wife came back home for forgiveness and today we are happy again. If you are going through any relationship stress or you want back your Ex or Divorce husband you can contact his whatsapp +2347012841542 or email emutemple@gmail.com
Https://web.facebook.com/Emu-Temple-104891335203341

Reply
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  • About US
    • What we do
    • Who we help >
      • Research
  • Resources
    • Rare CDG
    • Publications
    • Guia Metabolica
    • CDG Facts
    • Task Force CDG Communication >
      • PMM2-CDG (CDG Ia)
      • PGM1-CDG (CDG It)
      • ALG6-CDG (CDG Ic)
  • EDUCATION
  • Awareness
    • Get involved World CDG Awareness Day 2019 >
      • Go Social World CDG Awareness Day 19
      • Spread World CDG Awareness Day 19
      • Plan An Event World CDG Awareness Day 19
      • Frame your CDG Awareness Campaign 19
      • Go green! Think CDG! ©Campaign 19
      • Volunteer World CDG Awareness Day 19
      • Press kit World CDG Awareness Day 19
    • Map of events for World CDG Awareness Day 2019
    • CrowdCDG
    • Awareness Day 2018
    • Awareness Day 2017
    • Awareness Day 2016
    • Rare Diseases
  • Community
    • Join Us - Membership
    • CDG Patient Groups
    • Empowerment
  • Events
    • 1st CDG Satellite Meeting
    • Speakers - World Conference on CDG 2019
    • Registrations - World Conference on CDG 2019
    • Poster submission - World Conference on CDG 2019
    • Follow up - World Conference on CDG 19
    • Volunteer Registration - World Conference on CDG 2019
    • Previous Edition World Conference on CDG 2017 >
      • Follow up - World Conference on CDG 17
      • Speakers - World Conference on CDG 17
  • DONATE
  • BLOG