CDG & Allies - Professionals and Patient Associations International Network (CDG & Allies -PPAIN) continues to grow. This pionneer patient-led network counts now with 2 new important additions: Prof David Coman (MD, Australia) and Prof Bélen Pérez (PhD, Spain).
Prof Coman will be joining Working Groups CDG & Ophtalmology and CDG Patient reported Outcomes (PROMs) (learn more HEREand HERE), whereas Prof Pérez González will contribute to Working Group Clinical and therapeutic CDG research (learn more HERE).
Since its creation, in January 2016, CDG & Allis-PPAIN has been able to gather 30 collaborators - Physicians, researchers and families united by the cause of improving the lifes of CDG Children and adults and, ultimately, striving to find a cure for CDG!
If you are a CDG professional, patient or relative interested in collaborating with us, please contact firstname.lastname@example.org or visit HERE.
For more detailed information, please download the press release below:
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