Call for participation: The Pionner Online CDG Liver Questionnaire for Families by CDG & Allies - PPAIN
#CDGResearch You can now participate to the online Liver CDG Questionnaire (LCDGQ) is now available in English, French, Spanish and Portuguese at http://www.apcdg.com/project-cdg--liver.html .
Limited knowledge about liver involvement in CDG among healthcare professionals exists. And CDG misdiagnosis or delayed diagnosis among hepatologists persists.
United we can change this current situation, and increase our understanding about the main signs, symptoms, management and psychological impact of liver affectation among CDG patients and family members.
The call for participation is open from 11.12.2016 until 21.12.2016.
Write something about yourself. No need to be fancy, just an overview.