Being a RARE Parent and Advocate - APCDG - Congenital Disorders of Glycosylation

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Being a RARE Parent and Advocate

24/4/2017

#RareDiseasesNews: A Rare Mother of 2 explains why it is crucial for her to advocate for her children.
Do you agree with her? #Advocacy #PhelanMcDermidSyndrome

Read the full testimony HERE

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About US
- What we do
- Who we help
Research
Resources
EDUCATION
Awareness
Community
Events
- Volunteer Registration - World Conference on CDG 2019
- Previous Edition World Conference on CDG 2017 >
  - Speakers - World Conference on CDG 17
  - Follow up - World Conference on CDG 17
DONATE
BLOG