CDG & Allies - Professionals and Patient Associations International Network  (CDG & Allies -PPAIN) keeps expanding and now counts with 42 collaborators.
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This pionneer patient-led network has recently been joined by 2 new important additions: Dr Sandra Brasil (PhD, Portugal) and Dr Eleonora Passeri (PhD, Italy).

Dr Brasil will be using her expertise to advance the projects at the Working Group CDG Patient reported Outcomes (PROMs) (learn more HERE), whereas Dr Passeri will be acting as our social media consultant and analyst (learn more HERE)

If you are a CDG professional, patient or relative interested in collaborating with us, please contact sindromecdg@gmail.com or visit HERE.