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#RareDiseasesNews: This is a small recognition to all the Teachers, who believe and stimulate their students to be best of their abilities! To those who help every child & adult flourish and achieve their fullest potential! Join us in our thank you - Like and share this posts! 👨🏫👩🎓 Know more HERE 
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#RareDiseasesNews: This #Special Father built his baby daughter a tailored wheelchair! How wonderful & inspiring is this story?💚♿🚺 #RareDiseasesNews: For those of you considering to hire an in-home nurse or for those unfamiliar, but curious about the subject, find an article written by a #SpecialNeeds Mom. Do you have a in-home nurse? How has your experience been? Like & Share! 👩⚕️👨⚕️ Read the full text HERE  #RareDiseasesNews:Little Charlotte is the smallest girl in the world. She suffers from a Rare type of dwarfism.She has numerous health issues, including a learning disability. She has various and special needs, but she also has a loving & supportive family!💚 #RareDiseasesNews: What are the main needs of #SpeecialNeedsParents? An expert Mom names 10 and coffee, lots of coffee!😁😉 Do you agree with this list? What would you also include? Like & Share it with the #SpecialNeeds parents you know! More HERE  #RareDiseasesNews:Thanks to patients, families & patient associations all Spinal Muscular Dystrophy #SMA patients in the UK will receive the newly approved therapy Spinraza! Another example of how #Advocacy can make a difference, but also a reminder of the high costs and difficult accessibility to #OrphanDrugs. #KeepFighting Know more about this HERE  #RareDiseasesNews: A #SpecialNeeds Mom's plea for accessibility, inclusion & dignity for her daughter and the entire disabled community! #Advocacy Like, Share & Comment! Read the full article HERE  #CDGResearch Have you been looking for CDG&Allies-PPAIN research posters? You can access them and other resources HERE You just need to fill in the form with your name,email, indicate which resource(s) you'd like us to send you and please also tell why you want it (the why can be e.g having a CDG child). If you have any trouble, please write to sindromecdg@gmail.com Thank you 💚 for raising #CDGAwareness and supporting #CDGResearch Share & Like this post!  #RareDiseasesNews: The most inclusive edition of Miss World Contest ever!👏 Because beauty comes in all shapes, sizes, gender and abilities! ♿😍 Learn more about this story  #RareDiseasesNews:Here are 10 foods that are easy to get to a pureed consistency and that can get your child those extra calories #CDG Access this list HERE  |
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July 2018
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Awareness
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Events
- 1st CDG Satellite Meeting
- Speakers - World Conference on CDG 2019
- Registrations - World Conference on CDG 2019
- Poster submission - World Conference on CDG 2019
- Follow up - World Conference on CDG 19
- Volunteer Registration - World Conference on CDG 2019
- Previous Edition World Conference on CDG 2017 >
- DONATE
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