Blog Archives

Let's make #WorldCDGDay a worldwide movement

28/4/2017

May 16th is #WorldCDGDay! CDG CARE and APCDG are proud to be a partners in the fight against CDG! Let's make this a worldwide movement! Let's all partner up in raising #CDGAwareness.
Find out how you can make the difference HERE

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Are always running out of time? #SpecialNeedsParents

28/4/2017

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#RareDiseasesNews: Time, a limited resource in the lives of Special Needs Mums (and Dads) - This article gives some tips on how to find more time.
If you find it helpful, please share!
Learn more HERE

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A Free App is making physical activity more accessible to disabled children

28/4/2017

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#RareDiseasesNews: Promoting Physical activity for Children with disabilities - A free App and a Physician are making it possible in Canada! #Jooay
Find out more HERE

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A list of accessible beaches worldwide

28/4/2017

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#RareDiseasesNews:For many families, it is time to start planning their summer holidays. So, here is a list of accessible beaches all around the world (you will find one in Italy, in Australia, in the US, in Thailand). If you find it helpful, please share!👙⛱️🌞
Read it HERE

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SindromeCDG Facebook page: 1300 Likes

26/4/2017

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1300 people are more Aware about #CDG! Share this post and help us spread the word! Visit ou website at http://www.apcdg.com.
1300 pessoas estao sensibilizadas para as #CDG! Partilhe este post e ajude-nos a espalhar a palavra! Visite o nosso website em http://www.apcdg.com.

Visit our Facebook page HERE/Visite a nossa página de Facebook AQUI
Help us reach more people! Share it and do LIKE!

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Global Developmental delay and CDG

26/4/2017

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#RareDiseasesNews: Global Develpmental Delay & #CDG: A family's experience. Is yours similar? HERE

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One day in the life of a Special Needs Parent

26/4/2017

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#RareDiseasesNews:One day in the life of a Special Needs Parent - A Hard Act to Follow! Share this message! #CDG

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#WorldCDGDay - Hope for CDG

26/4/2017

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A friend or family member has been diagnosed with CDG… What now?
Raising awareness to find therapies! It is the first step for HOPE! Show you CARE, Be Aware! May 16th is #WorldCDGDay.
Click HERE & HERE for resources and support

Keep following this campaign and sharing our posts on Facebook HERE

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3rd World COnference on CDG will count with a talk on Motor Development and Physiotherapy

24/4/2017

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#WorldCDGConference: Want to know how to improve motor development and improvement of CDG patients? Wait until you listen to Dr. Chantal Verhille at the 3rd WORLD CONFERENCE CDG -15 and 16 July 2017.
Click HERE to see how registration works.