APCDG - Congenital Disorders of Glycosylation
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    • Get involved World CDG Awareness Day 2019 >
      • Go Social World CDG Awareness Day 19
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      • Follow up - World Conference on CDG 17
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Let's make #WorldCDGDay a worldwide movement

28/4/2017

3 Comments

 
May 16th is #WorldCDGDay! CDG CARE and APCDG are proud to be a partners in the fight against CDG! Let's make this a worldwide movement! Let's all partner up in raising #CDGAwareness.
Find out how you can make the difference HERE
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3 Comments

Are always running out of time? #SpecialNeedsParents

28/4/2017

3 Comments

 
#RareDiseasesNews: Time, a limited resource in the lives of Special Needs Mums (and Dads) - This article gives some tips on how to find more time.
If you find it helpful, please share! 
Learn more HERE 
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3 Comments

A Free App is making physical activity more accessible to disabled children

28/4/2017

3 Comments

 
#RareDiseasesNews: Promoting Physical activity for Children with disabilities - A free App and a Physician are making it possible in Canada! #Jooay 
Find out more HERE 
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3 Comments

A list of accessible beaches worldwide

28/4/2017

3 Comments

 
#RareDiseasesNews:For many families, it is time to start planning their summer holidays. So, here is a list of accessible beaches all around the world (you will find one in Italy, in Australia, in the US, in Thailand). If you find it helpful, please share!👙⛱️🌞 
Read it HERE 
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3 Comments

SindromeCDG Facebook page: 1300 Likes

26/4/2017

2 Comments

 
1300 people are more Aware about #CDG! Share this post and help us spread the word! Visit ou website at http://www.apcdg.com. 
1300 pessoas estao sensibilizadas para as #CDG! Partilhe este post e ajude-nos a espalhar a palavra! Visite o nosso website em http://www.apcdg.com.

Visit our Facebook page HERE/Visite a nossa página de Facebook AQUI 
Help us reach more people! Share it and do LIKE!
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2 Comments

Global Developmental delay and CDG

26/4/2017

2 Comments

 
#RareDiseasesNews: Global Develpmental Delay & #CDG: A family's experience. Is yours similar? HERE 
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2 Comments

One day in the life of a Special Needs Parent

26/4/2017

16 Comments

 
#RareDiseasesNews:One day in the life of a Special Needs Parent - A Hard Act to Follow! Share this message! #CDG
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16 Comments

#WorldCDGDay - Hope for CDG

26/4/2017

2 Comments

 
A friend or family member has been diagnosed with CDG… What now?
​ Raising awareness to find therapies! It is the first step for HOPE! Show you CARE, Be Aware! May 16th is 
#WorldCDGDay.
Click HERE  & HERE  for resources and support

Keep following this campaign and sharing our posts on Facebook HERE

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2 Comments

3rd World COnference on CDG will count with a talk on Motor Development and Physiotherapy

24/4/2017

2 Comments

 
#WorldCDGConference: Want to know how to improve motor development and improvement of CDG patients? Wait until you listen to Dr. Chantal Verhille at the 3rd WORLD CONFERENCE CDG -15 and 16 July 2017.
Click HERE 
to see how registration works. 
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2 Comments

Ultra-Rare Diseases' Drugs: What are the costs?

24/4/2017

2 Comments

 
#RareDiseasesNews: The (extra) cost of Ultra-Rare Disease drugs.
Read the full article HERE
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2 Comments
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  • About US
    • What we do
    • Who we help >
      • Research
  • Resources
    • Rare CDG
    • Publications
    • Guia Metabolica
    • CDG Facts
    • Task Force CDG Communication >
      • PMM2-CDG (CDG Ia)
      • PGM1-CDG (CDG It)
      • ALG6-CDG (CDG Ic)
  • EDUCATION
  • Awareness
    • Get involved World CDG Awareness Day 2019 >
      • Go Social World CDG Awareness Day 19
      • Spread World CDG Awareness Day 19
      • Plan An Event World CDG Awareness Day 19
      • Frame your CDG Awareness Campaign 19
      • Go green! Think CDG! ©Campaign 19
      • Volunteer World CDG Awareness Day 19
      • Press kit World CDG Awareness Day 19
    • Map of events for World CDG Awareness Day 2019
    • CrowdCDG
    • Awareness Day 2018
    • Awareness Day 2017
    • Awareness Day 2016
    • Rare Diseases
  • Community
    • Join Us - Membership
    • CDG Patient Groups
    • Empowerment
  • Events
    • 1st CDG Satellite Meeting
    • Speakers - World Conference on CDG 2019
    • Registrations - World Conference on CDG 2019
    • Poster submission - World Conference on CDG 2019
    • Follow up - World Conference on CDG 19
    • Volunteer Registration - World Conference on CDG 2019
    • Previous Edition World Conference on CDG 2017 >
      • Follow up - World Conference on CDG 17
      • Speakers - World Conference on CDG 17
  • DONATE
  • BLOG