#RareDiseasesNews:Could drug reporpusing save thousands of Rare Disease Patients? #OldDrugsmadeNew #OffLabelUse
Full article available HERE
#RareDiseasesNews:The Largest Gene Sequencing Initiative on World: How can this enormous database molde Drug Discovery & Disease Diagnosis? #GenomicMedicine
Read more HERE
#WorldCDGConference: Have you already looked for the agenda of the 3rd World Conference on CDG? No?! Click HERE and see how impactful it will be!
#RareDiseasesNews: Nike is improving its collection of accessible shoes - FlyEase lineup. Just do it, Nike! #SocialInclusion
Know more HERE
#CDGResearch Do you know how many articles we have found to write our revision of literature “Liver involvement in Congenital Disorders of Glycosylation (CDG)”? This work can be found HERE.
***Follow our CDG led research on CDG & allies PPAIN, the CDG international research network led by CDG patients and families in full collaboration with physicians and researchers.***
#WorldCDGConference: Did you know that Dr. Christian Thiel will be present on the 3rd World Conference on CDG to talk about Diagnostic tools? Curious?
Learn more about the Speakers that will be present on at this CDG special event HERE
#RareDiseasesNews: Most Rare Diseases are highly heterogeneous.
There is a spectrum of disease severity.
No one wants to be at the other end, but the truth is that some (unfortunately) are.
STOP being severe on yourself and just keep fighting - You are doing a great job! #CDG
Read the full article HERE
#CDGNews: On May 9 and 10th at the Hayward Genetics Center, Tulane University Medical School (New Orleans, USA) the 2017 NOLA CDG Parent, Patient & Physician meeting will take place. An educational event, which will also raise awareness for CDG!
To know more about the event's Agenda, download it below:
Additional registration through Eva Morava-Kozicz firstname.lastname@example.org
#WorldCDGConference: Still unsure about joining the CDG Community in Leuven?
Learn more about the Conference & Speakers HERE and HERE.
United we will shape the future for CDG Children and Adults!
REGISTER NOW HERE
Write something about yourself. No need to be fancy, just an overview.