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Happy #RareDiseaseDay! Join us in our Tribute to all Rare Families and Professionals! Today we pledge to continue our mission of helping Rare Patients! #CDGResearch Find out more HERE 
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#RareDiseasesNews: Today the Rare Disease Community is celebrating Research! Research is of paramount importance to find solutions for patients - effective and meaningful solutions! But, let's not forget that innovations need to be made available faster! Share this message! Patients and family needs must be first and at the centre! #RareDiseaseDay Read the full article HERE  #RareDiseaseDay is HERE! Show your Love for the Rare Disease community and share these messages! Know more HERE  #RareDiseaseDay Finding therapies for Rare Diseases is hard, but only through research will we achieve it! ***Share these messages*** Find out more HERE  #RareDiseaseDay is a day to celebrate difference, uniqueness! We hope that one day EVERY Rare Disease may have a cure and that EVERY Rare Patient may SMILE! ***Share these messages*** Know more HERE  #RareDiseaseDay Awareness will bring resources and investment for Research projects in Rare Diseases. Eventually, those projects will bring solutions for Rare Patients! Share these messages! Learn more HERE  #RareDiseaseDay Taking our dreams seriously will produce effective results in the lives of Rare Patients! #Research is key! Share these messages! Follow us on Find out more HERE  Tem um familiar com CDG? É médico ou investigador? Tem interesse em doenças raras ou metabólicas? Então venha "Think Metabolic, Think CDG!" - Um workshop GRÁTIS, com temas diversos e oradores especialistas. Venha à Ordem dos Médicos de Coimbra, no dia 27/02. Visite a agenda e REGISTE-SE AQUI  Did you know that José Afonso - Portuguese singer and anti-facist fighter was a Rare Disease Patient? #AmyotrophicLateralSclerosis Here's our homage to this great Portuguese Icon #Zeca #RareDiseaseMonth
As Doenças Congénitas da Glicosilação (CDG) são um grupo de doenças metabólicas Raras para as quais nao há CURA. Além disso, a informação é escassa e o desconhecimento generalizado. O evento "Think Metabolic, Think CDG!" vem colmatar estas falhas. É GRÁTIS e aberto a TODOS, Médicos, Pacientes, Famílias e Investigadores. Dia 27/02 venha até à Ordem dos Médicos de Coimbra. Consulte a Agenda e REGISTE-SE JÁ AQUI  |
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July 2018
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Events
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- Follow up - World Conference on CDG 19
- Volunteer Registration - World Conference on CDG 2019
- Previous Edition World Conference on CDG 2017 >
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