A New human organ has been identified and it belongs to the digestive system. It is the mesentery, a structure that wa thought - untl now - to be discontinuous and disorganized.
This news just shows us how little we know and how far we still have to go! It humbles us and shows how much medical research still has too uncovered.
Medical advances will bring more CURES for Rare Diseases #RareResearch http://bit.ly/2iKuo06
The CDG & Liver Questionnaire is a researh tool designed for families and patients with the aim of gathering data on liver affectation in CDG Patients. It is for ALL Patients:
- No age limit;
- Known or unknown liver condition;
- Available in 4 languages: English, Portuguese, French and Spanish
- Time to complete: 10-15min
When did advancing research take so little time and made such a huge difference?
CDG & Allies - PPAIN welcomes 2 new Physicians and Researchers: Prof Dr David Coman and Prof Dr Belén Pérez González
CDG & Allies - Professionals and Patient Associations International Network (CDG & Allies -PPAIN) continues to grow. This pionneer patient-led network counts now with 2 new important additions: Prof David Coman (MD, Australia) and Prof Bélen Pérez (PhD, Spain).
Prof Coman will be joining Working Groups CDG & Ophtalmology and CDG Patient reported Outcomes (PROMs) (learn more HERE and HERE), whereas Prof Pérez González will contribute to Working Group Clinical and therapeutic CDG research (learn more HERE).
Since its creation, in January 2016, CDG & Allis-PPAIN has been able to gather 30 collaborators - Physicians, researchers and families united by the cause of improving the lifes of CDG Children and adults and, ultimately, striving to find a cure for CDG!
If you are a CDG professional, patient or relative interested in collaborating with us, please contact firstname.lastname@example.org or visit HERE.
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