The Portuguese Association for CDG (APCDG) launches a central source of information on CDG to facilitate access to information about CDG for patients and their families, medical doctors, researchers and other relevant rare disease stakeholders.
The information is identified, selected and collected in collaboration with the CDG & Allies Community International Advisory Committee members (more information HERE).
Each article deals with medical aspects, such as symptoms and treatment, but also with psychological and social aspects. The main target groups are individuals with CDG, rare diseases and people close to them, health-care professionals, parents, patient organizations and public sector staff.
Access the full press release below:
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