APCDG - Congenital Disorders of Glycosylation
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APCDG launches a new service for the CDG and Rare Disease Community

13/2/2017

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The Portuguese Association for CDG (APCDG) launches a central source of information on CDG to facilitate access to information about CDG for patients and their families, medical doctors, researchers and other relevant rare disease stakeholders.

Visit HERE.
 
The information is identified, selected and collected in collaboration with the CDG & Allies Community International Advisory Committee members (more information HERE).
Each article deals with medical aspects, such as symptoms and treatment, but also with psychological and social aspects. The main target groups are individuals with CDG, rare diseases and people close to them, health-care professionals, parents, patient organizations and public sector staff.

Access the full press release below:
press_release_publication_service_eng.pdf
File Size: 284 kb
File Type: pdf
Download File

press_release_publication_service_pt.pdf
File Size: 292 kb
File Type: pdf
Download File

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  • About US
    • What we do
    • Who we help >
      • Research
  • Resources
    • Rare CDG
    • Publications
    • Guia Metabolica
    • CDG Facts
    • Task Force CDG Communication >
      • PMM2-CDG (CDG Ia)
      • PGM1-CDG (CDG It)
      • ALG6-CDG (CDG Ic)
  • EDUCATION
  • Awareness
    • Get involved World CDG Awareness Day 2019 >
      • Go Social World CDG Awareness Day 19
      • Spread World CDG Awareness Day 19
      • Plan An Event World CDG Awareness Day 19
      • Frame your CDG Awareness Campaign 19
      • Go green! Think CDG! ©Campaign 19
      • Volunteer World CDG Awareness Day 19
      • Press kit World CDG Awareness Day 19
    • Map of events for World CDG Awareness Day 2019
    • CrowdCDG
    • Awareness Day 2018
    • Awareness Day 2017
    • Awareness Day 2016
    • Rare Diseases
  • Community
    • Join Us - Membership
    • CDG Patient Groups
    • Empowerment
  • Events
    • 1st CDG Satellite Meeting
    • Speakers - World Conference on CDG 2019
    • Registrations - World Conference on CDG 2019
    • Poster submission - World Conference on CDG 2019
    • Follow up - World Conference on CDG 19
    • Volunteer Registration - World Conference on CDG 2019
    • Previous Edition World Conference on CDG 2017 >
      • Follow up - World Conference on CDG 17
      • Speakers - World Conference on CDG 17
  • DONATE
  • BLOG