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The meaning and feeling of Rareness

30/3/2017

19 Comments

 
#RareDiseasesNews: "What does Rare Disease mean to you?"
Find out more HERE 
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19 Comments
tracy wright
17/3/2021 07:02:27 am

MY REVIEWS ABOUT DR JUMBA THE BEST WORLD WIDE ONLINE REAL SPELLCASTER.
words can not describe how happy I felt after finding your website for the past few months, I have been so depressed after losing my fiance to another woman who had a spell on him. My money situation worsened so much that I thought I’d have to file for bankruptcy. I had a huge amount of debt and I didn’t know what to do. Out of complete and total desperation, I contacted many of those so-called individuals who promised powerful magic, witchcraft or black magic. None of them worked and none were as wonderful, affectionate and warm as Dr. Jumba has been. He is definitely different from the others and I felt immediate hope and strength from hearing about the promises he had to offer. He carries an air of purity and divine strength that is as pure as fresh snow on the ground. I requested Dr. Jumba Most powerful spells and I was relieved right away within 24hours that I had someone to solve my problems for me. His spells worked wonders and I am now back with my fiance and my money troubles resolved itself after winning the lottery. I have no idea what I would have done without you being there to help me out: thanks so much dr Jumba. . here is his contact details Email: wiccalovespelltools@gmail.com Call & Whatsapp+19085174108
website :  https://drjumbaspellhome.wordpress.com

Reply
Antoine Fuqua
4/11/2021 04:01:10 pm

It gladdens my heart to know that I have someone to always run to no matter my situation in life. Lord Zakuza is a God in a human body that has never failed anyone for I am a living testifier of his good works. I've been separated from my woman for more than 2 years and I thought I've lost it all till I got referred to Lord Zakuza who helped me to regain my lost relationship with my woman within 48 hours. Lord Zakuza prepared a spell for me that brought back my woman and now we are reunited with much more love and happiness. Don't be sceptical about this because I've been through it and you might be the next lucky one to get your lover back forever within 48 hours. Whosoever you are and you need help, don't hesitate to get in touch with Lord Zakuza now via his website: ( lordzakuzaspells.com ) or via WhatsApp on: +1 740 573 9483 or through his email via: lordzakuza7@gmail.com and he also does lottery spells as well. Good luck to everyone reading this.

Reply
Lerynne West
14/12/2021 09:59:28 pm

I never knew lottery spells existed until I was referred to Dr Amber by my neighbor. I have been playing lottery games for the past 7 years and I have never won above $2,000 but after I came in contact with Dr Amber, I told him my past experience about playing lottery of which I have never won big amount and Dr Amber told me what will be done by praying and preparing a lottery spell for me. He did that and gave me some numbers to play the lottery game. At first I took everything as a joke until I was emailed a week after that I had won the sum of $343.9 million. I was shocked and surprised at that very moment because my long awaited prayers had finally been answered and I thank Dr Amber for helping me out for my financial status to change and that of my generations. If you want to win a huge amount on your next lottery game, contact Dr Amber now and I assure you that your bold step will be your change of level.

Email him via: amberlottotemple@yahoo.com or Call/WhatsApp this number +1 (406) 646-2222 for immediate response.

Reply
Albert Washington
27/2/2022 01:19:32 pm

Hi guys, I don’t have much to say right now rather than to say thank you to Dr Amber for rescuing me and my family from poverty. I love playing the lottery but winning big is always the issue for me. I will never forget the day I came in contact with Dr Amber whose lottery spell made me a winner of $360,000,000 million dollars just by giving me sure winning numbers within 3 days to play the lottery after he prepared the lottery spell for me. My financial status has changed for good and I’ve started to live my dream life after 14 years of playing the lottery. Thank you Dr Amber for I’m very grateful for all you’ve done for me and my family. You can call or message Dr Amber via WhatsApp with +1 (318) 306-5044 or email: amberlottotemple@yahoo.com or visit: www.amberlottotemple.com for more information.

Reply
Thomas Yi
23/3/2022 11:48:49 pm

I started playing lottery games 3 years ago and I have never won big sums. I went online to seek help on how I can win big in my lottery games and I saw some nice reviews about Dr Amber who has made different people huge winners in their lottery games with his prayers. I gave it a try and I contacted Dr Amber who told me how and what to do before I can become a big lottery winner and I accepted. He made special prayers for me at his temple and gave me the required numbers to play the lottery game and when I played it, I won a massive $235.4 million POWERBALL jackpot. I was so happy and I chose to receive my winnings in a one-time, lump-sum payment of $160,038,447.27 at Florida Lottery Headquarters in Tallahassee and the balance was given to the store that I bought & played the game from. I would love other people to seek help from him and he can be contacted through +1 (808) 481-5132 via call/text or email: amberlotterytemple@yahoo.com

Reply
Ashley Jacqueline
7/6/2022 10:59:51 am

I feel so blessed again in my marriage after Doctor Oku brought back my husband that separated with me for good 3 months. Even though I have mouths all over my body, it won't be enough to thank Doctor Oku for his help in my life. My husband separated with me for 3 months and has been in pain and agony without him. So, I searched for help everywhere but nothing worked out not until I meant Doctor Oku who I contacted online. I explained my situation to him and he promised that my husband will get back to me within 24 to 48 hours so that my heart still beats for him. I believed in him and he prepared a spell for me and my husband called me exactly when Doctor Oku said. He pleaded and said he needs me back and now we are living happily again for the past 9 months. Everyone out there reading my article that needs help should contact him... Email: okutemple@gmail.com or call +2347053113465
m

Reply
Ashley Jacqueline
7/6/2022 11:13:59 am

I feel so blessed again in my marriage after Doctor Oku brought back my husband that separated with me for good 3 months. Even though I have mouths all over my body, it won't be enough to thank Doctor Oku for his help in my life. My husband separated with me for 3 months and has been in pain and agony without him. So, I searched for help everywhere but nothing worked out not until I meant Doctor Oku who I contacted online. I explained my situation to him and he promised that my husband will get back to me within 24 to 48 hours so that my heart still beats for him. I believed in him and he prepared a spell for me and my husband called me exactly when Doctor Oku said. He pleaded and said he needs me back and now we are living happily again for the past 9 months. Everyone out there reading my article that needs help should contact him... Email: okutemple@gmail.com or call +2347053113465
....''[

Reply
Randy link
10/6/2022 12:43:11 am


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Wilson Fox
10/6/2022 01:40:03 am

I suffered from what they called peripheral artery disease (PAD). I have been suffering for years, Me and my wife searched for a medical cure, and then we came across a testimony of a man who suffered the same and was cured by Dr Chief Lucky. So my wife and I contacted Dr Chief Lucky via an email and thank God he replied. I explained what was wrong and he sent me herbal medicines that helped heal me completely. I am happy to say that herbal medicine is the ultimate and Dr Chief Lucky I am grateful. You can contact him on his email: chiefdrlucky@gmail.com or whatsapp: +2348132777335, Facebook page: http://facebook.com/chiefdrlucky or website: https://chiefdrlucky.com/. Dr Chief Lucky said that he also specializes in the following diseases: LUPUS, ALS, CANCER, HPV, HERPES, DIABETES, COPD, HEPATITIS B, HIV AIDS, And more.

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ripepipe link
5/7/2022 08:05:53 pm

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Aristide Mboneye
15/8/2022 09:36:35 pm

My wife and I will forever remain grateful to Dr Amber for his divine intervention in our lives. My wife and I fled from Burundi to Australia. We got to Australia and life was quite ok but we needed more funds to clear our bills. My wife did some research online to get help in winning the lottery and she got credible recommendations of Dr Amber who gives out lottery winning numbers with his magical spell. We got in touch with Dr Amber and he assured us that he can help us if only we believe in his work. We agreed to proceed with him and we bought one ticket in the Hospital Research Foundation Home lottery and played it just as Dr Amber instructed with the numbers he gave to us and within 5 days, we received the shock of a lifetime when we realized we've won a $3 million dollars house and $1 million dollars cash in the lottery. We want everyone to join us to appreciate Dr Amber. To know more, visit: amberlottotemple.com or call/text +18084815132 or email: amberlottotemple@gmail.com

Reply
Elizabeth Kingstone
25/9/2022 12:06:10 am









Hello Viewers, are you looking for a reliable spell caster to make you win your lottery games? then search no further, contact Dr Benard today and all your financial problems will be over, He prayed for me and gave me a game to play and now i am a millionaire. contact him today and change your financial status. You can contact him via his Email drbenard 121 @gmail.com or Call him on +17187195976

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Sarah link
26/9/2022 03:38:36 am


Recovery lost funds from scammer / Cryptocurrency/ Recovery of Stolen bitcoin / Bitcoin Mining/ Increase your Credit score/ MOBILE SPY REMOTE CONTROL ACCESS AUTHORIZATION. Removing Bad Records from Both Public and Private databases and website is https://wzardgarryspeedhac.wixsite.com/my-site-1 WhatsApp:+1 928 534 9618

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Jason Bennett
27/10/2022 11:18:28 pm

I really want to thank Dr Emu for saving my marriage. My wife really treated me badly and left home for almost 3 month this got me sick and confused. Then I told my friend about how my wife has changed towards me. Then she told me to contact Dr Emu that he will help me bring back my wife and change her back to a good woman. I never believed in all this but I gave it a try. Dr Emu casted a spell of return of love on her, and my wife came back home for forgiveness and today we are happy again. If you are going through any relationship stress or you want back your Ex or Divorce husband you can contact his whatsapp +2347012841542 or email emutemple@gmail.com
Https://web.facebook.com/Emu-Temple-104891335203341

Reply
Aleksandra Marcin
16/11/2022 02:17:23 am

Having my husband back is like restoring back my life, my husband who left me without a word coming back home have been the greatest gift have ever had this is one thing that I have always wished for in my Life and I got it within the space of 7 days, I followed the procedures given to me by Dr Robbinson everything work fine perfectly, Am very grateful for restoring happiness into my family Thank you Doctor, if any one here need help to fix his or her marriage/relationship your solution is here contact today WhatsApp: +12267705795
Email:drrobbinsonspiritualhome@gmail.com
https://www.facebook.com/profile.php?id=100087189020870

Reply
sandra
7/12/2022 11:09:52 am

I wanna say a very big thank you to dr agbadudu for turning my life around with so much wealth to enjoy, i use to think I'm not destined to win big and I never believe winning big is possible, but after my encounter with Dr agbadudu, things turn around for me after he helped me cast a lottery spell I never believe people can be this powerful spiritually, i was introduced to dr agbadudu by a friend whom I met again at the supermarket after so many years of lost contact , she was looking so fresh and driving a very expensive car, I had to hide my shame and ask how she manage to be so rich , she told me about the spell caster whom helped her archived her dream of making it big. I pleaded with her to help me contact Dr agbadudu and she did. Dr agbadudu told me what to do and I didn't think it twice been a desperate woman that need urgent help, boom under 36 hours I became millionaires in dollars. All thanks to Dr agbadudu. if you want to stop wasting your money on lottery ticket and need your result . Do well to contact dragbadudu@gmail.com or WhatsApp @ +1(320)4050518

Reply
SOLUTION TO ALL PROBLEMS
26/12/2022 12:39:07 am

Read Up My Story Today as my story is a very special and unique one as is not like the numerous advert you always see online and also I want to be 100% sincere and truthful to you that there can never be any other online spell caster that can help you bring back your EX BACK to you other than DR HUNTER ALVIN as he alone is 100% effective,dynamic and very reliable as 99.9% of other spell casters are not for real and can never help you solve your problems at all instead they will complicate your present condition OK SO BE WISE AND ALSO BE WARNED AND CONTACT DR HUNTER ALVIN TODAY... MY OWN LIFE STORY / EXPERIENCES IS BELOW:


My Name is Mark Kelvin, From USA. I wish to share my testimonies with the general public about what this man called Dr HUNTER ALVIN has just done for me , this man has just brought back my lost Ex WIFE to me with his great spell, I was married to this woman called Sharon we were together for a long time and we loved our self’s but when I was unable to make her pregnant for me and also give her al she needs she left me and told me she can’t continue anymore then I was now looking for ways to get her back until a friend of mine told me about this man and gave his contact email: huntersalvinsolution@yahoo.com OR huntersalvinsolution@gmail.com .... YOU CAN USE ANY OF THE EMAILS TO CONTACT HIM as you won't believe this when I contacted this man on my problems he prepared this spell cast and bring my lost WIFE back, and after a month she became pregnant for me because he gave me some herbs to take also and when she went for a test and the result stated that she was pregnant am happy today am a FATHER of a baby girl, thank you once again the great DR HUNTER ALVIN for what you have done for me, if you are out there passing through any of this problems listed below:

(1) If you want your ex back.
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(5) If you want a child/PREGNANCY SPELL.
(6) You want to be rich.
(7) You want to tie your husband/wife to be
yours forever.
(8) If you need financial assistance.
(9) How you been scammed and you want to recover you lost money.
(10)Stop Divorce
(11) CURE TO ALL KIND OF SICKNESS/DISEASES HERE
(12) Winning of lottery
(13) Cure To Hiv/Aids
(14) LOTTERY/LOTTO SPELL WINNING
(15) CURE TO HERPES AND ANY OTHER SEXUALLY TRANSMITTED DISEASES AT ALL...
(16) HAVE YOU BEEN SCAMMED BEFORE AND NEEDS TO RECOVER ALL THE DOLLARS/MONEY YOU LOST TO THESE FRAUDSTER ???.. CONTACT HUNTER ALVIN AS HE HELPED MY FRIEND CALLED LEONARD CAPTAIN FROM USA TO RECOVER BACK THE SUM OF $300,000.00 DOLLARS HE LOST TO SCAMMERS ONLINE

Email: huntersalvinsolution@yahoo.com OR huntersalvinsolution@gmail.com .... YOU CAN USE ANY OF THE EMAILS TO CONTACT HIM ...... YOU CAN ALSO CALL / ADD HIM UP ON WHATSAPP USING THIS MOBILE NUMBER:+2347059232579

Reply
Miranda Chleo
3/1/2023 07:04:10 pm

My name is Miranda Chleo Words are not enough to express how i am happy in this year 2023 January, when i taught all hope is lost and nothing can be done about my situation, my marriage but at the last min of giving up, i saw an article online about Priest sakomo how restored broken home, reunite families, win court case, casting of death spell, divorced etc, I am not a fan of voodoo or spell but out of curiosity, i give it a try, i contacted him and told him my story, about what am going through at the moment, after much conversation with him, he told me to send my photo and my name, i did exactly what he ask of me, in a simple word from him, he told me, my troubles are over that i will find peace again and be happy in this year 2023, With is powerful voodoo Priest Sakomo reunite me and my Family on the 2nd of January 2023, my marriage is back, i am living with my husband we are once a happy family. I can't stop keep sharing this beautiful testimony of mine all over the world so they will hear the Good news of this great and powerful spell caster priest sakomo, here are the details (website website/email :https://drsakomolovespellhome.net/index/https://sakomospiritualtemple.blogspot.com/ OR drsakomo@gmail.com, Call/Whatsapp via: +1-5027953816) of him, feel free and contact and all your problem will be solved in less then days or hours

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12/1/2023 07:06:42 am

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  • About US
    • What we do
    • Who we help >
      • Research
  • Resources
    • Rare CDG
    • Publications
    • Guia Metabolica
    • CDG Facts
    • Task Force CDG Communication >
      • PMM2-CDG (CDG Ia)
      • PGM1-CDG (CDG It)
      • ALG6-CDG (CDG Ic)
  • EDUCATION
  • Awareness
    • Get involved World CDG Awareness Day 2019 >
      • Go Social World CDG Awareness Day 19
      • Spread World CDG Awareness Day 19
      • Plan An Event World CDG Awareness Day 19
      • Frame your CDG Awareness Campaign 19
      • Go green! Think CDG! ©Campaign 19
      • Volunteer World CDG Awareness Day 19
      • Press kit World CDG Awareness Day 19
    • Map of events for World CDG Awareness Day 2019
    • CrowdCDG
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  • Events
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    • Speakers - World Conference on CDG 2019
    • Registrations - World Conference on CDG 2019
    • Poster submission - World Conference on CDG 2019
    • Follow up - World Conference on CDG 19
    • Volunteer Registration - World Conference on CDG 2019
    • Previous Edition World Conference on CDG 2017 >
      • Follow up - World Conference on CDG 17
      • Speakers - World Conference on CDG 17
  • DONATE
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