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A rare disease diagnosis is just the beginning of a new odissey

20/7/2017

8 Comments

 
#RareDiseasesNews: "Hope is only lost when we give up hoping." 
The journey of a rare disease diagnosis that you can read HERE at 
The Mighty
Picture
8 Comments
ella jerry
28/6/2020 08:56:04 am

I NEED A LOVE SPELL THAT WILL MANIFEST WITHIN 24 HOURS CONTACT (DR JUMBA ) HE HIS THE BEST LOVE SPELL CASTER WHO HELPED ME RESTORE HAPPINESS BACK TO MY RELATIONSHIP 
Hello everyone i want to testify of the great and powerful spell caster named Dr Jumba who brought back my ex who left me and got engaged to another girl,We where happy together when all of a sudden he just change he used to call me every morning and and night before going to bed but all that stopped when i call him he yell at me and told me he didn't want to have anything to do with me anymore i was so sad and confused i didn't know what to do then i went online to search on how to get back my ex then i found  an article where someone was talking about how the great and powerful Dr Jumba helped her and she left his email address i took it and contacted him i told him my problem he only smiled and told me to relax everything will be OK i did everything he asked me to do  and he assured me that after 24hrs he will be back,To my greatest surprise the next morning it was my boyfriend he came back knelling and begging for me to accept him back now we are so happy together he can also help you contact him at   wiccalovespelltools@gmail.com or  wiccalovespelltools@yahoo.com   text or call him +19085174108  
website :  http://wiccalovespelltools.website2.me/ 
BLOG : https://manifest277.blogspot.com/

Reply
Michael DeBruin
1/9/2021 03:51:17 pm

My wish right now is that God should continue to bless Dr Emu for his good works towards the life of those people who are heart broken. My name is Michael DeBruin and I am from the USA, it's been a while since my lover's attitude changed from being the caring type she has been to me, but later turned out not to be caring at all. But not long, I later discovered that my lover was having an affair with someone else. and also she told me she doesn't need me after all we pass through then a friend told me about a spell caster. that with the spell I will get back my woman, I took his cell number then called him and also what's-app him which he reply to me and I did some sacrifices to the spell man and he bought the items for me which he used for the sacrifices and later called me that before 48 hours my love will come back to me and now we are more in love with each other than ever. you can reach him on WhatsApp +2347012841542 or reach him via mail ; emutemple@gmail.com , my lover returned back and broke up with the other guy she was having a relationship with... Thank you Dr Emu.

Https://emutemple.wordpress.com/

Https://web.facebook.com/Emu-Temple-104891335203341

Reply
Aaron Jeremy
14/1/2021 03:44:37 pm

CHIEF DR LUCKY HERBAL THERAPY 
Thank you very much for curing my Human Papillomavirus (HPV) totally. You are really a Godsent, I promise you that I will always recommend you. and to share your testimony to people. Contact him now thanks all. 
CHIEF DR LUCKY HERBAL THERAPY CAN AS WELL CURE THE FOLLOWING VIRUSES :-
1: HIV/AIDS
2: HSV
3: LUPUS
4: ALS
5: HEPATITIS B
6: DIABETES
7: HUMAN PAPILLOMAVIRUS (HPV)
8: CANCER
9: PAD
10: PENIS ENLARGEMENT 
11: THYROID ETC..  
WhatsApp him on +2348132777335 or email (chiefdrlucky@gmail.com). 
Website: https://chiefdrluckyherbaltherapy.wordpress.com/

Reply
Dannyclair
16/7/2021 09:49:02 pm

My life is back!!! After 1 year of Broken marriage, my husband left me with two kids . I felt like my life was about to end i almost committed suicide, i was emotionally down for a very long time. Thanks to a spell caster called Dr. Adebayo odu, which i met online. On one faithful day as I was browsing through the internet,I came across allot of testimonies about this particular spell caster. Some people testified that he brought their Ex lover back, some testified that he restores womb,cure cancer,and other sickness, some testified that he can cast a spell to stop divorce and so on. i also come across one particular testimony,it was about a woman called Helen, she testified about how he brought back her Ex lover in less than 2 days, and at the end of her testimony she dropped Dr. Adebayo odu e-mail address. After reading all these,I decided to give it a try. I contacted him via WhatsApp and explained my problem to him. In just 48hours, my husband came back to me. We solved our issues, and we are even happier than before Dr. Adebayo odu is really a gifted man and i will not stop publishing him because he is a wonderful man... If you have a problem and you are looking for a real and genuine spell caster to solve all your problems for you. Try High Dr. Adebayo odu, anytime, he might be the answer to your problems. Here's his contact:
Email: poweroflovespell@gmail.com
Whatsapp him +2347055287754.

Reply
John Tim
28/7/2021 01:14:50 pm

Genuine provider for BG/SBLC specifically for lease, at leasing price of 4+2 of face value, Issuance by HSBC London/Hong Kong or any other AA rated Bank in Europe, Middle East or USA.

Contact : Mr. EASON RONNIE
Email: easonronnie9@gmail.com
skype : keatcheng2@gmail.com

Intermediaries/Consultants/Brokers are welcome to bring their clients and are 100% protected. In complete confidence, we will work together for the benefits of all parties involved.

All inquires to Mr. Eason should include the following minimum information so I can quickly address your needs:

Complete contact information:
What exactly do you need?
How long do you need it for?
Are you a principal borrower or a broker?

Contact me for more details.

Whatsapp: +19893413179

Reply
Michael DeBruin
31/8/2021 02:04:58 pm

My wish right now is that God should continue to bless Dr Emu for his good works towards the life of those people who are heart broken. My name is Michael DeBruin and I am from the USA, it's been a while since my lover's attitude changed from being the caring type she has been to me, but later turned out not to be caring at all. But not long, I later discovered that my lover was having an affair with someone else. and also she told me she doesn't need me after all we pass through then a friend told me about a spell caster. that with the spell I will get back my woman, I took his cell number then called him and also what's-app him which he reply to me and I did some sacrifices to the spell man and he bought the items for me which he used for the sacrifices and later called me that before 48 hours my love will come back to me and now we are more in love with each other than ever. you can reach him on WhatsApp +2347012841542 or reach him via mail ; emutemple@gmail.com , my lover returned back and broke up with the other guy she was having a relationship with... Thank you Dr Emu.

Https://emutemple.wordpress.com/

Https://web.facebook.com/Emu-Temple-104891335203341

Reply
Karen_09
31/8/2021 05:56:33 pm

Hi everyone, my name is Karen!
Top Secret Way To Win Lottery With The Help Of A Magic spell caster called Dr. Okosisi. I requested a lottery spell, and he cast the spell and sent me the winning lottery number. Now I am a proud lottery winner with the help of Dr. Okosisi. I won $1,000,000.00 ( One Million Dollars) Thank you so much sir for dedicating your time to cast the Lottery spell for me. I am extremely grateful for the Lottery spell you did for me. You can contact him now for your own winning numbers. Website: https://spellservicetemple.com/contact-us/

Email: spellservicetemple@gmail.com

WhatsApp him: +55 11 98317-3881

Karen

Reply
Jason Bennett
27/10/2022 10:32:45 pm

I really want to thank Dr Emu for saving my marriage. My wife really treated me badly and left home for almost 3 month this got me sick and confused. Then I told my friend about how my wife has changed towards me. Then she told me to contact Dr Emu that he will help me bring back my wife and change her back to a good woman. I never believed in all this but I gave it a try. Dr Emu casted a spell of return of love on her, and my wife came back home for forgiveness and today we are happy again. If you are going through any relationship stress or you want back your Ex or Divorce husband you can contact his whatsapp +2347012841542 or email emutemple@gmail.com
Https://web.facebook.com/Emu-Temple-104891335203341

Reply



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  • About US
    • What we do
    • Who we help >
      • Research
  • Resources
    • Rare CDG
    • Publications
    • Guia Metabolica
    • CDG Facts
    • Task Force CDG Communication >
      • PMM2-CDG (CDG Ia)
      • PGM1-CDG (CDG It)
      • ALG6-CDG (CDG Ic)
  • EDUCATION
  • Awareness
    • Get involved World CDG Awareness Day 2019 >
      • Go Social World CDG Awareness Day 19
      • Spread World CDG Awareness Day 19
      • Plan An Event World CDG Awareness Day 19
      • Frame your CDG Awareness Campaign 19
      • Go green! Think CDG! ©Campaign 19
      • Volunteer World CDG Awareness Day 19
      • Press kit World CDG Awareness Day 19
    • Map of events for World CDG Awareness Day 2019
    • CrowdCDG
    • Awareness Day 2018
    • Awareness Day 2017
    • Awareness Day 2016
    • Rare Diseases
  • Community
    • Join Us - Membership
    • CDG Patient Groups
    • Empowerment
  • Events
    • 1st CDG Satellite Meeting
    • Speakers - World Conference on CDG 2019
    • Registrations - World Conference on CDG 2019
    • Poster submission - World Conference on CDG 2019
    • Follow up - World Conference on CDG 19
    • Volunteer Registration - World Conference on CDG 2019
    • Previous Edition World Conference on CDG 2017 >
      • Follow up - World Conference on CDG 17
      • Speakers - World Conference on CDG 17
  • DONATE
  • BLOG