• About US
    • What we do
    • Who we help
  • Research
    • WP1 Executive Commitee
    • WP2 CDG Diagnosis
    • WP3 CDG Genetics
    • WP4 Biology to guide CDG therapies >
      • WG CDG & GlycoImmunology
      • WG CDG & Cardioendocrine
      • WG CDG & Liver >
        • Project CDG & Liver
      • WG CDG & Neurology
      • WG CDG & Hematology
      • WG CDG & Ophtalmology
    • WP5 Systems Biology and Bioinformatics >
      • WG CDG & Biomedical Bioinformatics
      • WG CDG & Computational biology/chemistry
      • CDG & Metabolomics
      • WG CDG & Systems Biology
    • WP6 Clinical & Therapeutic CDG research >
      • WG CDG Patient reported Outcomes (PROMs)
      • WG CDG Pharmacological chaperones
      • WG CDG Portugal
    • WP7 CDG psychology and educational research >
      • WG CDG Health psychology
      • WG CDG Educational Special Needs and inclusion
      • WG CDG Language & Reading
    • WP8 CDG Lobby and Representation >
      • WG CDG patient-centered care
      • WG CDG Patient Representatives
    • WP9 Communication & Dissemination >
      • Eva Morava CDG one-to-one
      • Jaak Jaeken CDG one-to-one
      • Paula Videira CDG one-to-one
      • Andrea Berarducci CDG one-to-one
      • David Cassimani CDG one-to-one
    • WP10 Donations and funds
    • WP11 Collaborations & Open positions
    • WP12 Advisory committee
  • Resources
    • Publications
    • Task Force CDG Communication >
      • ALG1-CDG (CDG Ik)
      • PMM2-CDG (CDG Ia)
      • PGM1-CDG (CDG It)
      • ALG6-CDG (CDG Ic)
  • EDUCATION
  • Awareness
    • About World CDG Awareness Day
    • Get involved World CDG Awareness Day 2017 >
      • Go Social World CDG Awareness Day
      • Spread World CDG Awareness Day
      • Plan An Event World CDG Awareness Day
      • Frame your CDG Awareness Campaign
      • Go green! Think CDG! ©Campaign
      • Volunteer World CDG Awareness Day
      • Press kit World CDG Awareness Day
    • Map of events for World CDG Awareness Day 2017
    • Awareness Day 2016
    • Rare Diseases
  • Community
    • CDG Patient Groups
    • Empowerment
  • Events
    • Speakers - World Conference on CDG
    • Registrations - World Conference on CDG
  • DONATE
  • BLOG

28.02.2017 - A Day of Rare Celebrations!

28/2/2017

0 Comments

 
#RareDiseaseDay is HERE!
Show your Love for the Rare Disease community and share these messages! 

Know more HERE 
Picture
0 Comments



Leave a Reply.

    Author

    Write something about yourself. No need to be fancy, just an overview.

    Archives

    June 2017
    May 2017
    April 2017
    March 2017
    February 2017
    January 2017
    December 2016
    November 2016
    October 2016
    September 2016
    July 2016
    June 2016
    May 2016
    April 2016
    March 2016
    December 2015
    October 2015
    September 2015
    February 2015

    Categories

    All
    Press Release

    RSS Feed

Imagem


ABOUT US  |  RESEARCH  |  RESOURCES  |  EDUCATION  |  AWARENESS  |  COMMUNITY  |  EVENTS  |  DONATE  |  BLOG 
©2015 Portuguese Association for CDG and other Rare Metabolic Diseases (APCDG-DMR)
Contact us: sindromecdg@gmail.com
  • About US
    • What we do
    • Who we help
  • Research
    • WP1 Executive Commitee
    • WP2 CDG Diagnosis
    • WP3 CDG Genetics
    • WP4 Biology to guide CDG therapies >
      • WG CDG & GlycoImmunology
      • WG CDG & Cardioendocrine
      • WG CDG & Liver >
        • Project CDG & Liver
      • WG CDG & Neurology
      • WG CDG & Hematology
      • WG CDG & Ophtalmology
    • WP5 Systems Biology and Bioinformatics >
      • WG CDG & Biomedical Bioinformatics
      • WG CDG & Computational biology/chemistry
      • CDG & Metabolomics
      • WG CDG & Systems Biology
    • WP6 Clinical & Therapeutic CDG research >
      • WG CDG Patient reported Outcomes (PROMs)
      • WG CDG Pharmacological chaperones
      • WG CDG Portugal
    • WP7 CDG psychology and educational research >
      • WG CDG Health psychology
      • WG CDG Educational Special Needs and inclusion
      • WG CDG Language & Reading
    • WP8 CDG Lobby and Representation >
      • WG CDG patient-centered care
      • WG CDG Patient Representatives
    • WP9 Communication & Dissemination >
      • Eva Morava CDG one-to-one
      • Jaak Jaeken CDG one-to-one
      • Paula Videira CDG one-to-one
      • Andrea Berarducci CDG one-to-one
      • David Cassimani CDG one-to-one
    • WP10 Donations and funds
    • WP11 Collaborations & Open positions
    • WP12 Advisory committee
  • Resources
    • Publications
    • Task Force CDG Communication >
      • ALG1-CDG (CDG Ik)
      • PMM2-CDG (CDG Ia)
      • PGM1-CDG (CDG It)
      • ALG6-CDG (CDG Ic)
  • EDUCATION
  • Awareness
    • About World CDG Awareness Day
    • Get involved World CDG Awareness Day 2017 >
      • Go Social World CDG Awareness Day
      • Spread World CDG Awareness Day
      • Plan An Event World CDG Awareness Day
      • Frame your CDG Awareness Campaign
      • Go green! Think CDG! ©Campaign
      • Volunteer World CDG Awareness Day
      • Press kit World CDG Awareness Day
    • Map of events for World CDG Awareness Day 2017
    • Awareness Day 2016
    • Rare Diseases
  • Community
    • CDG Patient Groups
    • Empowerment
  • Events
    • Speakers - World Conference on CDG
    • Registrations - World Conference on CDG
  • DONATE
  • BLOG
✕