Press release about the World Congenital Disorders of Glycosylation (CDG) Awareness Day. Show you care, be aware!
By Fiona Waddell
Congenital Disorders of Glycosylation (CDG) is a group of rare and unknown diseases and although more patients are diagnosed with CDG and also new types of CDG are discovered, there is still an under- or misdiagnosis. There is also no medicine for CDG. It's therefore important that CDG gets worldwide attention. Patients, family members, patient organisations and healthcare professionals are joining forces in order to hold an annual World Congenital Disorders of Glycosylation Awareness Day on 16 May.
The official poster is also available. The poster features Tereza (Czech Republic) and Phila (Finland), who are living with CDG. It doesn't matter whether you are organising a big event or holding a small action. You can download a toolkit, which is available at http://www.apcdg.com/get-involved-world-cdg-awareness-day.html.
People all around the world are encouraged to go social during the World Congenital Disorders of Glycosylation (CDG) Awareness Day. There are many other ways you can get involved in the World Congenital Disorders of Glycosylation (CDG) Awareness Day 2016:
16 May World Congenital Disorders of Glycosylation Awareness Day. Show you care, be aware!
Media and Communication Contact:Fiona Waddell
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16/1/2020 03:25:24 pm
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