1st CDG Satellite Meeting - 2019
Defining CDG at the international level!
25th July 2019 (afternoon)
Why a Satellite Meeting?
A clear disease definition is essential for diagnostics and therapy development.
With the increasing number of CDGs there is a need to clarity and establish a defined classification and nomenclature for the disease.
With the increasing number of CDGs there is a need to clarity and establish a defined classification and nomenclature for the disease.
What will be discussed?
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In this Satellite Meeting, professionals will discuss the necessity for a clear CDG definition, the CDG Nomenclature and Nosology (classification of a list of diseases).
This is a very pressing discussion topic because a clear disease definition and classification is fundamental for therapy development and approval. For more information read the Press Release below: |
| press_release_registrations1stsatellitemeeting_eng.pdf |
Agenda and Speakers
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The main speaker of the 1st CDG Satellite Meeting will be Dr. Carlos Ferreira, M.D.
He is the leading author of the publication "A proposed nosology for inborn errors of metabolism." His presentation - State of the art for CDG nomenclature - will be followed by a Discussion Session with all the Professionals present. Download Dr. Carlos Ferreira biography HERE. |
Dr. Carlos R. Ferreira, M.D. |
Registration
The Registration form is available HERE.
HOWEVER, to obtain a full and valid registration you MUST send proof of payment of the registration fee and meals 15 days after your registration, to the organizing committee at worldcdgconference2019@gmail.com.
The registration fee is a donation that will support the meeting, the organization, logistics for the event, The Registration fee includes Meeting participation, information material, networking sessions and coffee break.
The registration fee is a donation that will support the meeting, the organization, logistics for the event, The Registration fee includes Meeting participation, information material, networking sessions and coffee break.
Did you know...
This conference is being organized in collaboration with the European Reference Network for Rare Metabolic Diseases - MetabERN (know more HERE)?
AND
in collaboration with the Applied Molecular Biosciences Unit (UCIBIO) and the Faculty of Sciences and Technology of the Nova University of Lisbon (FCT-UNL) - know more HERE.
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with the endorsement of the Portuguese Society of Metabolic Diseases (SPDM) and of the Society for the Study of Inborn Errors of Metabolism (SSIEM) - know more HERE and HERE.
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Reasons to attend
See the AGENDA HERE
- Opportunity to have direct contact, establish dialogue and engage in meaningful discussions with CDG professionals)
- Knowledge and information exchange
- Forging partnerships with main stakeholders
- Shaping basic and applied research based on CDG community concerns and needs
- Networking Promotion
- Identification and assessment of CDG unmet needs and urgent challenges
- Possibility to attend presentations by international and highly qualified CDG professionals
- Promotion of translational research
Meeting Venue, Accommodation and Meals
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The 1st CDG Satellite Meeting will be held in classroom nº6 of the Faculty of Psychology of the University of Lisbon. For more information consult the Conference Booklet (available soon).
On your registration form there will be a section for you to book your meals (afternoon coffee break and dinner). Accommodation will be booked by the participants directly with the hotels.
Information regarding surrounding hotels and AirB&Bs is available on the Conference Booklet. For any further information, please contact the organizing committee at worldcdgconference2019@gmail.com |
Satellite Meeting Venue
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Important DATES
- Launch Registration: 28th February 2019
Registration deadline (mandatory to all participants): 10th June 2019
Preparing for the Meeting
Preparation is key to getting the most out of the meeting. Listed here are multiple tips that will guarantee your successful attendance:
- Register for the meeting: Registration is MANDATORY to everybody. DEADLINE 10th June 2019. Be sure to register very early in advance for the meeting. Register HERE
- Make your travel arrangements early: Flights and hotel rooms will be in demand during the dates of the World Conference.
- Prepare your schedule.
- Download and print the program: we do not have available programs
- Prepare to network: read the program carefully and select the relevant key stakeholders with whom you wish to interact. You will have the opportunity to meet well-known individuals who will be accessible during the conference. Breaks and meals will also be suitable times to meet and network with people that you do not normally get to see.
- If it is the case, Practice your formal oral presentation
- Take notes: it helps you to focus when listening; it will be a record for later reference and helps to promote information retention.
- Do not be shy – Ask questions: we encourage you to ask questions at the sessions you attend. Asking good questions is an important skill that can be developed. To become a more active meeting participant, we suggest you to try to have at least three good questions, and write these questions in your notebook-whether or not you intend to ask them. Please, work up to asking your question(s) preferentially in public or after the session. Questions will also promote discussions, which may result in greater advancements or in more clarification.
World Conference on CDG for families and professionals is an initiative of the Portuguese Association for CDG (APCDG)
Newsletter
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