About US
Portuguese Association CDG and Rare Metabolic Diseases (APCDG-DMR), a global voice to fight the impact of Rare Metabolic Diseases on affected individuals and their families. |
Resources
Together, families and profissionals with a goal, to cure CDG. Sharing a number of CDG patient-friendly features to help you better understand this disease. |
Get Involved
The APCDG offers services that support the continuous exchange of knowledge through education and information, connecting families and professionals worldwide. |
Now you can make a single donation, support a specific research project or support our current fundraising CDG infusion campaign campaign!
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APCDG-DMR is led by affected family members that volunteer in an altruistic manner. We do not receive government funding. We rely solely on donations in order to continue our projects. Thus, we know how to do a lot with very modest budgets. However, we still need your donation contribution to help us do our work. Make a donation using Paypal, debit or credit card or bank transfer. Your donation will help fund advocacy efforts, awareness, education and research.
All details are found below. If you wish further information, please write us at: sindromecdg@gmail.com. |
If you are a CDG professional, patient, relative or a student interested in collaborating with us, please contact sindromecdg@gmail.com or visit HERE.
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.researchcdg.com
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CDG & Allies - Professionals and Patient Associations International Network (CDG & Allies -PPAIN) keeps expanding and now counts with 42 collaborators.
CDG & Allies - Professionals and Patient Associations International Network (CDG & Allies- PPAIN)
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2ND WORLD CONFERENCE CDG all videos:
CDG One-to-One
CDG One-to-One Interviews is a series of interviews with some of the greatest minds influencing and doing breakthroughs in the field of CDG. This is an initiative led by the Portuguese Association for CDG (www.apcdg.com) and coordinated by Vanessa Ferreira.
Read the full interviews of two of the most brilliant and influential minds in the CDG community: Prof Eva Morava , Prof Jaak Jaeken, Prof Paula Videira, Andrea Berarducci, Prof David Cassiman and Dr Bobby G Ng.
Latest addition to our gallery of remarkable CDG stakeholders: Sandro Bellinzis - a remarkable Father and Advocate, who his dedicated to improving CDG Lives. Full interview available HERE.
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This initiative is being promoted and disseminated by Rare Disease Report Online Magazine (www.raredr.com/news).
The CDG Global Task Force on Science and
Medical Communication and Outreach
Read the summaries about different CDG types below:
Support our research, advocacy, awareness and education efforts now!
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Our work is publicly available to help the CDG community and related rare disease communities. Importantly, we do not receive government funding. We rely solely on donations in order to continue our projects.
Consider to make a donation using Paypal, debit or credit card or bank transfer. |
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